Huge congratulations to Mary Black and Pat Hewitt for making great strides in achieving greater recognition of PDA in Scotland.
Awareness & acceptance
This was then discussed at the Scottish Parliament’s Public Petitions Committee on 19th January where evidence was taken from Mary, Pat, Heather Fullbrook and Euan Robson (former MSP). Written evidence was also taken from Dr Phil Christie – this underlined the importance of accurate understanding and appropriate support for individuals with PDA and their families:
“It is widely recognised that individuals with PDA and their families are exceptionally vulnerable to being misunderstood, not having their needs met and of experiencing exclusion from educational settings. Wider recognition and assessment that leads to appropriate description and formulation of the child’s difficulties and needs is the starting point for the provision of appropriate support. With this support the lives of individuals and their families can be transformed.”
For further information please see: http://www.parliament.scot/GettingInvolved/Petitions/PE01625
Next steps elsewhere in the UK
There is also work going on by parents and the PDA Society at local level, trying to directly improve local services.
Jane Sherwin has a wonderful blog post explaining how you can go about campaigning for change locally.
If you don't have time to take all this on, remember that just writing one letter or email can make a difference.