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15th May - PDA Action Day!
  • RhanHRhanH
    Posts: 591
    Don't forget PDA Action Day is on 15th May. http://www.pdasociety.org.uk/blog/2017/03/pda-action-daysave-the-date

    Here in South Bucks we've decided to make it a month of activities and have lined up a family event at a local special needs playground (TVAP), a chat with our MP, talks about PDA at other local support groups and our own Coffee, Cake and Chat day. Not forgetting a raffle too!

    The PDA Society are also kindly forwarding their new leaflets so we have the most up to date information to share.

    What will you do? I appreciate it's not always possible to organise events but how about sharing, to at least one new person, what PDA means to you and your family. This could be a GP, clinical professional, teacher, SENCO, family member or friend, etc. We hid the challenges of PDA for a long time, it wasn't easy opening up but, as our family and friends begin to understand, acceptance of PDA grows!
  • RhanHRhanH
    Posts: 591
    Well what a few weeks, it's been so busy! However we had a lovely Family Day at TVAP last Saturday where we gained a new group member! Then a wonderful day on Monday with about 25 people popping into our house to find out more about PDA and to support the work of the PDA Society. Finally, I visited another local support group on Tuesday to talk all about PDA and share our leftover cake! So far we've raised just over £350 for the PDA Society but I know there's still a little more to come - many thanks to everyone who has supported these events.

    Cheryl Gillan, former member of parliament and now Conservative candidate for Chesham & Amersham, also tweeted about our recent meeting to discuss recognition of PDA on the 15th and we hope to work together further once the Election has been completed! Watch this space!



  • Holly59
    Posts: 2,189

    RhanH said:

    Well what a few weeks, it's been so busy! However we had a lovely Family Day at TVAP last Saturday where we gained a new group member! Then a wonderful day on Monday with about 25 people popping into our house to find out more about PDA and to support the work of the PDA Society. Finally, I visited another local support group on Tuesday to talk all about PDA and share our leftover cake! So far we've raised just over £350 for the PDA Society but I know there's still a little more to come - many thanks to everyone who has supported these events.

    Cheryl Gillan, former member of parliament and now Conservative candidate for Chesham & Amersham, also tweeted about our recent meeting to discuss recognition of PDA on the 15th and we hope to work together further once the Election has been completed! Watch this space!





    Wow , well done . That's exactly what we needs all the Parties working together . Extra wow for the fundraising . Those 25 , you're brave , would then tell more folks .Spot on .

    The youngest has just been for Physio this morning , once again poor communication . She has just had a debriefing on PDA . That's another Clinicians Guide , another branch of the NHS informed . Absolute sweetie . Wants to learn more .

    The Oil Tanker Driver looking for Directions this morning took away a leaflet . Knows lots in Social Services . Never miss an opportunity !

    Pat xx

    PS thanks for adding the link to the other thread this morning, headless chicken day, exam stress , I need more than PlanetAutisms wine Tanker that's for sure at present .



    Pat xx
  • RhanHRhanH
    Posts: 591
    Thank you.
    Now I'm impressed that you always seem to have leaflets to hand! Xx
  • Holly59
    Posts: 2,189

    RhanH said:

    Thank you.
    Now I'm impressed that you always seem to have leaflets to hand! Xx



    I ordered some more for PDA day , we are newbies up here compared with your well organised events . I buy the Clinicians Guides 5 at a time . We seem to go through the Specialists so it's easier to take one so they can look at it later .!.

    My handbag is rather like Mary Poppins , surprisingc what's in it .

    It's keeping the momentous going especially when MPs are in Limbo at present . Purdah is infuriating at times .

    It's so annoying you have to have 100,000 signatures for the English parliament to even consider listening to you .

    Pat xx



    Pat xx
  • RhanHRhanH
    Posts: 591
    Oohhh I'd like a Mary Poppins bag!

    We'll keep plugging away and as soon as things get back to normal in Gov we'll be checking in on the promises made!

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