{"id":10088,"date":"2025-04-24T19:24:25","date_gmt":"2025-04-24T18:24:25","guid":{"rendered":"https:\/\/www.pdasociety.org.uk\/?page_id=10088"},"modified":"2025-05-23T09:48:36","modified_gmt":"2025-05-23T08:48:36","slug":"pda-lives-worth-living","status":"publish","type":"page","link":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/research-professional-practice\/pda-lives-worth-living\/","title":{"rendered":"PDA lives worth living"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-9868c831-dc08-4be7-96b8-e0cb537cb9dc&#8221; custom_padding=&#8221;80px||80px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-9868c831-dc08-4be7-96b8-e0cb537cb9dc%22:%91%22background_color%22%93}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;PDA lives worth living&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_font=&#8221;&#8211;et_global_heading_font||||||||&#8221; title_text_align=&#8221;center&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|desktop&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-d4d84b5e-d061-48e7-894c-a52b4e3d47de&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_margin_tablet=&#8221;0px||0px||false|false&#8221; custom_margin_phone=&#8221;0px||0px||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding_tablet=&#8221;64px||64px||false|false&#8221; custom_padding_phone=&#8221;&#8221; global_colors_info=&#8221;{%22gcid-d4d84b5e-d061-48e7-894c-a52b4e3d47de%22:%91%22background_color%22%93}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; make_equal=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||0px||false|false&#8221; custom_margin_tablet=&#8221;24px||0px||false|false&#8221; custom_margin_phone=&#8221;10px||||false|false&#8221; custom_margin_last_edited=&#8221;on|desktop&#8221; custom_padding=&#8221;||16px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>In May 2023, the PDA Society ran a survey of PDA adults and their families, as well as parents of PDA children. We had 921 responses and the results were clear; autistic-PDA people are experiencing a mental health crisis.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||0px||false|false&#8221; custom_margin_tablet=&#8221;24px||0px||false|false&#8221; custom_margin_phone=&#8221;10px||||false|false&#8221; custom_margin_last_edited=&#8221;on|desktop&#8221; custom_padding=&#8221;||16px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]There are very few professionals who have access to adequate training, resources or specialists to advise on support approaches that are helpful for PDA people. That\u2019s why we are calling for wider recognition of less common presentations of autism, including PDA, and for all providers to follow a needs-based support approach with autistic adults and children. [\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||0px||false|false&#8221; custom_margin_tablet=&#8221;24px||0px||false|false&#8221; custom_margin_phone=&#8221;10px||||false|false&#8221; custom_margin_last_edited=&#8221;on|desktop&#8221; custom_padding=&#8221;||16px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>The statistics in this report are from a survey the PDA Society undertook in Spring 2023. Quotes from this report have been anonymised, and came from survey responses, facilitated sessions with community members and written submissions from PDA people and family members.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||0px||false|false&#8221; custom_margin_tablet=&#8221;24px||0px||false|false&#8221; custom_margin_phone=&#8221;10px||||false|false&#8221; custom_margin_last_edited=&#8221;on|desktop&#8221; custom_padding=&#8221;||16px||false|false&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>The research findings on mental health can be found in full <a href=\"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-content\/uploads\/2025\/05\/PDA-Society-PDA-Lives-Worth-Living-Report.pdf\" target=\"_blank\" rel=\"noopener\">here<\/a>.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-content\/uploads\/2025\/04\/PDA-lives-worth-living.webp&#8221; alt=&#8221;Promotional flyer from the PDA Society highlighting a mental health crisis among autistic individuals with a PDA profile. It features the tagline &#8216;PDA lives worth living,&#8217; along with the PDA Society logo, website, and charity registration details.&#8221; url=&#8221;https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-content\/uploads\/2023\/11\/PDA-Society-PDA-Lives-Worth-Living-Report.pdf&#8221; url_new_window=&#8221;on&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; dvmd_acat_aria_description_enabled=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-9868c831-dc08-4be7-96b8-e0cb537cb9dc&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-9868c831-dc08-4be7-96b8-e0cb537cb9dc%22:%91%22background_color%22%93}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-d4d84b5e-d061-48e7-894c-a52b4e3d47de&#8221; custom_padding=&#8221;40px|40px|40px|40px|false|false&#8221; border_radii=&#8221;on|24px|24px|24px|24px&#8221; global_colors_info=&#8221;{%22gcid-d4d84b5e-d061-48e7-894c-a52b4e3d47de%22:%91%22background_color%22%93}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Do you want to be the first to see our reports?&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h2&#8243; title_text_align=&#8221;center&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\"><span>There\u2019s always more to learn about PDA &#8211; and it can be hard to keep up. Our newsletter brings updates, ideas and support straight to your inbox. It\u2019s free, and easy to join.<\/span><\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjgwMjgifX0=@&#8221; button_text=&#8221;Sign up&#8221; button_alignment=&#8221;center&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;button_url&#8221; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-6923f909-25e5-4c77-be27-cbebb4bb1b7c%22:%91%22button_bg_color%22,%22button_border_color%22%93}&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>In May 2023, the PDA Society ran a survey of PDA adults and their families, as well as parents of PDA children. We had 921 responses and the results were clear; autistic-PDA people are experiencing a mental health crisis.There are very few professionals who have access to adequate training, resources or specialists to advise on support approaches that are helpful for PDA people. That\u2019s why we are calling for wider recognition of less common presentations of autism, including PDA, and for all providers to follow a needs-based support approach with autistic adults and children. The statistics in this report are from a survey the PDA Society undertook in Spring 2023. Quotes from this report have been anonymised, and came from survey responses, facilitated sessions with community members and written submissions from PDA people and family members.The research findings on mental health can be found in full here.There\u2019s always more to learn about PDA &#8211; and it can be hard to keep up. Our newsletter brings updates, ideas and support straight to your inbox. It\u2019s free, and easy to join.<\/p>\n","protected":false},"author":19,"featured_media":0,"parent":11495,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"course_tag":[],"class_list":["post-10088","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages\/10088","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/users\/19"}],"replies":[{"embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/comments?post=10088"}],"version-history":[{"count":0,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages\/10088\/revisions"}],"up":[{"embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages\/11495"}],"wp:attachment":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/media?parent=10088"}],"wp:term":[{"taxonomy":"course_tag","embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/course_tag?post=10088"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}