{"id":14878,"date":"2025-06-15T11:50:20","date_gmt":"2025-06-15T10:50:20","guid":{"rendered":"https:\/\/www.pdasociety.org.uk\/?page_id=14878"},"modified":"2026-02-04T17:37:25","modified_gmt":"2026-02-04T17:37:25","slug":"healthcare-pda-service-design","status":"publish","type":"page","link":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/research-professional-practice\/health-and-social-care\/healthcare-pda-service-design\/","title":{"rendered":"Healthcare \u2013 PDA &amp; service design"},"content":{"rendered":"\n[et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;healthcare-specific-adjustments-service-design&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-d4d84b5e-d061-48e7-894c-a52b4e3d47de&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-d4d84b5e-d061-48e7-894c-a52b4e3d47de%22:%91%22background_color%22%93}&#8221;][et_pb_row column_structure=&#8221;3_5,2_5&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||24px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;3_5&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Healthcare specific adjustments \u2013 service design&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_text_align=&#8221;left&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; hover_enabled=&#8221;0&#8243; title_text_align_tablet=&#8221;left&#8221; title_text_align_phone=&#8221;left&#8221; title_text_align_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;][\/et_pb_heading][\/et_pb_column][et_pb_column type=&#8221;2_5&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-content\/uploads\/2025\/05\/4.-Research-and-professional-practice-landing-page-2.png&#8221; title_text=&#8221;4. Research and professional practice landing page 2&#8243; align=&#8221;center&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; width=&#8221;80%&#8221; border_radii=&#8221;on|24px|24px|24px|24px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;First contact with healthcare settings&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; title_text_align=&#8221;left&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; title_text_align_tablet=&#8221;left&#8221; title_text_align_phone=&#8221;left&#8221; title_text_align_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]In their 2019 study Cage and Troxell-Whitman 2019 found several factors deter autistic people from seeking or continuing care.  These include inflexible booking systems, hurried instructions, and ambiguous administrative procedures.\n\nOften a PDAers first contact with a healthcare provider is either through using a booking system or receiving a letter about an appointment. Unfortunately, these systems can set up an unhelpful dynamic from the start. In this section we cover what barriers can be created, and actions you, or your organisation can take to make things easier.\n\n Barriers to appointment booking:[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; height=&#8221;100%&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_css_free_form=&#8221;selector ul li strong {|| font-weight: 900;||}||selector ul li {|| font-weight: 400 !important;|| position: relative;|| padding-left: 37px;|| margin-bottom: 15px;||}||||selector ul {|| list-style-type: none;|| padding: 0 !important;||}||selector ul li::before{|| content: %22%22;|| position: absolute;|| width: 24px;|| height: 24px;|| background-image: url(%22data:image\/svg+xml;base64,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%22);|| background-size: contain;|| background-repeat: no-repeat;|| top: 4px;|| left: 0;||}||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<ul>\n\t<li>Inflexible booking systems: Many GP surgeries and social care services require calling first thing in the morning for limited appointment slots. A person with PDA may find multiple attempts, busy lines, and time-pressured decisions incredibly stressful. If no \u201cemergency\u201d slots are left, they might be told to call back the next day, compounding the anxiety of repeated demands.<\/li>\n<\/ul>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]It is helpful to consider:[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; height=&#8221;100%&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_css_free_form=&#8221;selector ul li strong {|| font-weight: 900;||}||selector ul li {|| font-weight: 400 !important;|| position: relative;|| padding-left: 37px;|| margin-bottom: 15px;||}||||selector ul {|| list-style-type: none;|| padding: 0 !important;||}||selector ul li::before{|| content: %22%22;|| position: absolute;|| width: 24px;|| height: 24px;|| background-image: url(%22data:image\/svg+xml;base64,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%22);|| background-size: contain;|| background-repeat: no-repeat;|| top: 4px;|| left: 0;||}||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<ul>\n\t<li>Offering a variety of ways to book an appointment: offering email, text messaging, or an online booking system as well as phone options will be<\/li>\n\t<li>Even for urgent matters, providing a direct email address or secure chat can ease anxiety.<\/li>\n<\/ul>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]Demanding or authoritative letters; letters that contain controlling text such as \u201cIf you don\u2019t confirm within 48 hours, your appointment will be cancelled\u201d-can intensify the sense of threat. The threat of negative consequences (e.g. referral back to a GP or social worker, or case closure if the patient fails to act) may in some cases make it harder for PDAers to undertake the actions asked of them. This authoritative tone can escalate demand avoidance and lead to missed appointments (Cage &#038; Troxell-Whitman, 2019).\n\nIt is helpful to consider:[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; height=&#8221;100%&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_css_free_form=&#8221;selector ul li strong {|| font-weight: 900;||}||selector ul li {|| font-weight: 400 !important;|| position: relative;|| padding-left: 37px;|| margin-bottom: 15px;||}||||selector ul {|| list-style-type: none;|| padding: 0 !important;||}||selector ul li::before{|| content: %22%22;|| position: absolute;|| width: 24px;|| height: 24px;|| background-image: url(%22data:image\/svg+xml;base64,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%22);|| background-size: contain;|| background-repeat: no-repeat;|| top: 4px;|| left: 0;||}||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<ul>\n\t<li>Rewriting standard letters to sound collaborative rather than authoritarian. For instance: \u201cWe understand making or changing appointments can sometimes be stressful. Please let us know if you need extra time or alternative ways to confirm.\u201d<\/li>\n\t<li>Replacing \u201cYou must do X within Y days\u201d with invitations to contact the service if they need changes, plus a clear explanation of why deadlines exist.<\/li>\n<\/ul>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]Unclear or inflexible processes: Some booking pathways assume everyone can comfortably handle phone calls, fill out online forms, or attend at set times. Interactions with frontline staff (receptionists for example) can be experienced as inflexible, controlling or authoritative. For a PDAer who has an anxiety response to demands, each extra step can raise the internal resistance to engaging.\n\nIt is helpful to consider:[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; height=&#8221;100%&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_css_free_form=&#8221;selector ul li strong {|| font-weight: 900;||}||selector ul li {|| font-weight: 400 !important;|| position: relative;|| padding-left: 37px;|| margin-bottom: 15px;||}||||selector ul {|| list-style-type: none;|| padding: 0 !important;||}||selector ul li::before{|| content: %22%22;|| position: absolute;|| width: 24px;|| height: 24px;|| background-image: url(%22data:image\/svg+xml;base64,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%22);|| background-size: contain;|| background-repeat: no-repeat;|| top: 4px;|| left: 0;||}||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<ul>\n\t<li>Training frontline staff-receptionists, admin teams, or duty social workers-to adopt a respectful, friendly tone that doesn\u2019t assume power over the person.<\/li>\n\t<li>Simple phrasing like, \u201cLet\u2019s see how we can make this easier,\u201d rather than \u201cYou must attend on this date,\u201d can reduce perceived demands.<\/li>\n<\/ul>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]Sometimes adaptations can\u2019t be made and, quick appointments or deadlines are inevitable. When this happens explaining why helps people understand that this is driven by necessity, not by arbitrary rules.[\/et_pb_text][et_pb_heading title=&#8221;First appointments\/ meetings&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; title_text_align=&#8221;left&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; title_text_align_tablet=&#8221;left&#8221; title_text_align_phone=&#8221;left&#8221; title_text_align_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]Setting up a first appointment well-whether in health or social care-can ease anxiety, build trust, and encourage continued engagement. Research shows that providing clear information about roles, processes, and options helps autistic individuals have better experiences (Cage &#038; Troxell-Whitman, 2019; Kildahl et al., 2021). Below are ways to offer a safer, less demanding introduction.\n\nBefore the appointment consider:[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; height=&#8221;100%&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_css_free_form=&#8221;selector ul li strong {|| font-weight: 900;||}||selector ul li {|| font-weight: 400 !important;|| position: relative;|| padding-left: 37px;|| margin-bottom: 15px;||}||||selector ul {|| list-style-type: none;|| padding: 0 !important;||}||selector ul li::before{|| content: %22%22;|| position: absolute;|| width: 24px;|| height: 24px;|| background-image: url(%22data:image\/svg+xml;base64,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%22);|| background-size: contain;|| background-repeat: no-repeat;|| top: 4px;|| left: 0;||}||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<ul>\n\t<li>Who will be there \u2013 Giving names, job titles, and why each person is attending. For example, \u201cThis is Sarah, your social worker, who will help check your current support plan.\u201d<\/li>\n\t<li>Purpose of the meeting &#8211; Sharing the main goal in simple terms. For instance, \u201cWe\u2019re meeting to see how well your treatment plan is working,\u201d or \u201cIt would be helpful to talk about how best to help with day-to-day tasks.\u201d<\/li>\n\t<li>Location and layout \u2013 Providing details on getting there, which entrance to use, and whether there\u2019s a waiting room. Offering a map if it\u2019s a large building. This can lower anxiety.<\/li>\n\t<li>Wait times \u2013 If there is a waiting area, say how long the wait might be. If a quieter space is available, let them know.<\/li>\n\t<li>Paperwork and expectations &#8211; Mentioning any forms they might have to complete. If possible, offering the option to fill them out online or in advance.<\/li>\n\t<li>Appointment structure &#8211; Explaining if shorter or split appointments are possible. Confirm whether they can bring someone they trust.<\/li>\n\t<li>Decision points &#8211; Noting any important choices they might face, like changes to a care plan. Explaining how they can share their views.<\/li>\n<\/ul>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]You might also take the opportunity to ask if there are ways to make things easier for them. You can do this by:[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; height=&#8221;100%&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_css_free_form=&#8221;selector ul li strong {|| font-weight: 900;||}||selector ul li {|| font-weight: 400 !important;|| position: relative;|| padding-left: 37px;|| margin-bottom: 15px;||}||||selector ul {|| list-style-type: none;|| padding: 0 !important;||}||selector ul li::before{|| content: %22%22;|| position: absolute;|| width: 24px;|| height: 24px;|| background-image: url(%22data:image\/svg+xml;base64,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%22);|| background-size: contain;|| background-repeat: no-repeat;|| top: 4px;|| left: 0;||}||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<ul>\n\t<li>Asking open questions such as, \u201cIs there anything we can do to make this appointment easier?\u201d and providing some suggestions.<\/li>\n\t<li>Being honest about what you can and cannot change: \u201cWe can rearrange seating or find a quieter time, but we can\u2019t change the building\u2019s opening hours.\u201d<\/li>\n\t<li>Letting them know if you can adjust start times or break the session into parts.<\/li>\n<\/ul>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]It can be useful to remember that:[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; height=&#8221;100%&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_css_free_form=&#8221;selector ul li strong {|| font-weight: 900;||}||selector ul li {|| font-weight: 400 !important;|| position: relative;|| padding-left: 37px;|| margin-bottom: 15px;||}||||selector ul {|| list-style-type: none;|| padding: 0 !important;||}||selector ul li::before{|| content: %22%22;|| position: absolute;|| width: 24px;|| height: 24px;|| background-image: url(%22data:image\/svg+xml;base64,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%22);|| background-size: contain;|| background-repeat: no-repeat;|| top: 4px;|| left: 0;||}||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<ul>\n\t<li>Clarity lowers anxiety \u2013 Studies show that autistic adults do better when they get clear, detailed information before an appointment (Cage &#038; Troxell-Whitman, 2019).<\/li>\n\t<li>Collaboration builds trust \u2013 In mental health and disability services, planning together or co-creating schedules helps reduce fears about the unknown (Kildahl et al., 2021).<\/li>\n<\/ul>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]Providing thorough pre-appointment information, offering possible adjustments, and framing demands as joint efforts-rather than fixed instructions-helps PDAers feel informed and in control. Even small steps, like emailing the name and photo of the attending professional or offering an online map, show respect for the person\u2019s needs. These steps can lead to more positive sessions and better long-term engagement.[\/et_pb_text][et_pb_heading title=&#8221;Making adjustments to a physical environment&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; title_text_align=&#8221;left&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; title_text_align_tablet=&#8221;left&#8221; title_text_align_phone=&#8221;left&#8221; title_text_align_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]Luke Beardon highlights what he calls the \u201cgolden equation,\u201d stating that \u201cautism plus environment equals outcome.\u201d In Avoiding Anxiety in Autistic Children, he challenges many standard assumptions and underscores how the physical and social environment can profoundly affect anxiety levels and behaviour. For PDAers-where heightened anxiety around demands is the core difficulty-attention to the environmental setup can be critical.\n\nHealthcare clinics, social work offices, and other professional environments often unintentionally impose demands through their design or signage. Reviewing the following points can help ensure that spaces feel less restrictive or confrontational for PDAers:[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; height=&#8221;100%&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_css_free_form=&#8221;selector ul li strong {|| font-weight: 900;||}||selector ul li {|| font-weight: 400 !important;|| position: relative;|| padding-left: 37px;|| margin-bottom: 15px;||}||||selector ul {|| list-style-type: none;|| padding: 0 !important;||}||selector ul li::before{|| content: %22%22;|| position: absolute;|| width: 24px;|| height: 24px;|| background-image: url(%22data:image\/svg+xml;base64,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%22);|| background-size: contain;|| background-repeat: no-repeat;|| top: 4px;|| left: 0;||}||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]1. Choice of seating\n<ul>\n\t<li>Providing more than one chair in a consulting room helps avoid the sense of a single \u201ccorrect\u201d seat.<\/li>\n\t<li>Avoid setting up the room so that there is exactly one seat per person, or so that only the clinician has multiple seating options.<\/li>\n<\/ul>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; height=&#8221;100%&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_css_free_form=&#8221;selector ul li strong {|| font-weight: 900;||}||selector ul li {|| font-weight: 400 !important;|| position: relative;|| padding-left: 37px;|| margin-bottom: 15px;||}||||selector ul {|| list-style-type: none;|| padding: 0 !important;||}||selector ul li::before{|| content: %22%22;|| position: absolute;|| width: 24px;|| height: 24px;|| background-image: url(%22data:image\/svg+xml;base64,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%22);|| background-size: contain;|| background-repeat: no-repeat;|| top: 4px;|| left: 0;||}||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]2. Avoiding hierarchies\n<ul>\n\t<li>Setting up spaces so clinicians can sit alongside, rather than opposite, can reduce the power imbalance often signalled by a desk or formal barrier.<\/li>\n\t<li>Rearranging furniture to create a collaborative or open layout can subtly lessen perceived demands.<\/li>\n<\/ul>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; height=&#8221;100%&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_css_free_form=&#8221;selector ul li strong {|| font-weight: 900;||}||selector ul li {|| font-weight: 400 !important;|| position: relative;|| padding-left: 37px;|| margin-bottom: 15px;||}||||selector ul {|| list-style-type: none;|| padding: 0 !important;||}||selector ul li::before{|| content: %22%22;|| position: absolute;|| width: 24px;|| height: 24px;|| background-image: url(%22data:image\/svg+xml;base64,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%22);|| background-size: contain;|| background-repeat: no-repeat;|| top: 4px;|| left: 0;||}||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]3. Reviewing signage and language\n<ul>\n\t<li>Check whether signs in waiting rooms or corridors inadvertently reinforce rigidity (e.g., \u201cNo Eating,\u201d \u201cNo Headphones\u201d).<\/li>\n\t<li>Where possible, substitute with inclusive language such as \u201cPlease be considerate of others\u201d or \u201cFeel free to enjoy snacks or music quietly.\u201d<\/li>\n<\/ul>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; height=&#8221;100%&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_css_free_form=&#8221;selector ul li strong {|| font-weight: 900;||}||selector ul li {|| font-weight: 400 !important;|| position: relative;|| padding-left: 37px;|| margin-bottom: 15px;||}||||selector ul {|| list-style-type: none;|| padding: 0 !important;||}||selector ul li::before{|| content: %22%22;|| position: absolute;|| width: 24px;|| height: 24px;|| background-image: url(%22data:image\/svg+xml;base64,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%22);|| background-size: contain;|| background-repeat: no-repeat;|| top: 4px;|| left: 0;||}||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]4. Hospital or office policies\n<ul>\n\t<li>Rules and guidelines can be reframed to encourage mutual respect rather than impose absolute authority.<\/li>\n\t<li>For instance, clarify that the aim is to ensure comfort for everyone rather than to restrict certain actions altogether.<\/li>\n<\/ul>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]By considering how physical layouts and institutional language may be perceived as demands, healthcare and social care professionals can mitigate some of the anxiety that underpins PDA.[\/et_pb_text][et_pb_heading title=&#8221;Care coordination and consistency&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; title_text_align=&#8221;left&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; title_text_align_tablet=&#8221;left&#8221; title_text_align_phone=&#8221;left&#8221; title_text_align_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]Supporting autistic people with a PDA profile often requires teamwork between professionals, services, and settings. Studies show that consistent communication and shared strategies help prevent misunderstandings, reduce stress for the person, and improve overall outcomes (Cage &#038; Troxell-Whitman, 2019; Kildahl et al., 2021). This section outlines how care coordination and consistency can be approached at various levels-from the single healthcare worker to the entire trust.\n\n1. Clear centralised documentation\n\nWhen one professional discovers an effective approach-such as using email instead of phone calls or avoiding direct instructions-that is helpful information for everyone working with a person. Sharing it can spare the individual from having to explain themselves repeatedly, which can increase anxiety. You might want to use your shared electronic platform to highlight known triggers, coping strategies, and communication preferences.\n\n2. Maintaining consistency\n\nPDAers often react strongly to abrupt changes in communication style or to conflicting instructions from different professionals. Consistent approaches help them trust the system and reduce the drive to avoid or resist care (Kildahl et al., 2021). It\u2019s helpful at team meetings or handovers, to make sure staff are updated on the agreed-upon communication preferences, boundaries, and successful strategies. You might agree to as a matter of policy for everyone to avoid using authoritative language (\u201cYou must\u2026\u201d) and opt instead for collaborative phrasing (\u201cWould it help if we\u2026?\u201d).\nSupporting autistic people with a PDA profile often requires teamwork between professionals, services, and settings. Studies show that consistent communication and shared strategies help prevent misunderstandings, reduce stress for the person, and improve overall outcomes (Cage &#038; Troxell-Whitman, 2019; Kildahl et al., 2021). This section outlines how care coordination and consistency can be approached at various levels-from the single healthcare worker to the entire trust.\n\n1. Clear centralised documentation\n\nWhen one professional discovers an effective approach-such as using email instead of phone calls or avoiding direct instructions-that is helpful information for everyone working with a person. Sharing it can spare the individual from having to explain themselves repeatedly, which can increase anxiety. You might want to use your shared electronic platform to highlight known triggers, coping strategies, and communication preferences.\n\n2. Maintaining consistency\n\nPDAers often react strongly to abrupt changes in communication style or to conflicting instructions from different professionals. Consistent approaches help them trust the system and reduce the drive to avoid or resist care (Kildahl et al., 2021). It\u2019s helpful at team meetings or handovers, to make sure staff are updated on the agreed-upon communication preferences, boundaries, and successful strategies. You might agree to as a matter of policy for everyone to avoid using authoritative language (\u201cYou must\u2026\u201d) and opt instead for collaborative phrasing (\u201cWould it help if we\u2026?\u201d).\n\n3. Respecting boundaries:\n\nIn some trusts, professionals create a \u201cconsistency statement\u201d in the person\u2019s file. This lists the main do\u2019s and don\u2019ts for that person so new staff quickly understand that persons boundaries. If the person has asked for email contact only, for example, it is important all staff abide by this, instead of calling or dropping by unannounced.\n\nBy creating clear records, agreeing on consistent approaches, and respecting PDAers preferences, staff can reduce anxiety triggers and foster a sense of safety. Even in busy or pressured environments, these steps help build trust over time, making a real difference to PDAers navigating multiple services.\n3. Respecting boundaries:\n\nIn some trusts, professionals create a \u201cconsistency statement\u201d in the person\u2019s file. This lists the main do\u2019s and don\u2019ts for that person so new staff quickly understand that persons boundaries. If the person has asked for email contact only, for example, it is important all staff abide by this, instead of calling or dropping by unannounced.\n\nBy creating clear records, agreeing on consistent approaches, and respecting PDAers preferences, staff can reduce anxiety triggers and foster a sense of safety. Even in busy or pressured environments, these steps help build trust over time, making a real difference to PDAers navigating multiple services.[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]\n","protected":false},"excerpt":{"rendered":"<p>In their 2019 study Cage and Troxell-Whitman 2019 found several factors deter autistic people from seeking or continuing care. These include inflexible booking systems, hurried instructions, and ambiguous administrative procedures. Often a PDAers first contact with a healthcare provider is either through using a booking system or receiving a letter about an appointment. Unfortunately, these systems can set up an unhelpful dynamic from the start. In this section we cover what barriers can be created, and actions you, or your organisation can take to make things easier. Barriers to appointment booking: Inflexible booking systems: Many GP surgeries and social care services require calling first thing in the morning for limited appointment slots. A person with PDA may find multiple attempts, busy lines, and time-pressured decisions incredibly stressful. If no \u201cemergency\u201d slots are left, they might be told to call back the next day, compounding the anxiety of repeated demands. It is helpful to consider: Offering a variety of ways to book an appointment: offering email, text messaging, or an online booking system as well as phone options will be Even for urgent matters, providing a direct email address or secure chat can ease anxiety. Demanding or authoritative letters; letters that [&hellip;]<\/p>\n","protected":false},"author":19,"featured_media":0,"parent":11126,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<!-- wp:divi\/placeholder \/-->","_et_gb_content_width":"","footnotes":""},"course_tag":[352,356,355],"class_list":["post-14878","page","type-page","status-publish","hentry","course_tag-cpd-for-professionals","course_tag-healthcare","course_tag-healthcare-professionals"],"_links":{"self":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages\/14878","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/users\/19"}],"replies":[{"embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/comments?post=14878"}],"version-history":[{"count":0,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages\/14878\/revisions"}],"up":[{"embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages\/11126"}],"wp:attachment":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/media?parent=14878"}],"wp:term":[{"taxonomy":"course_tag","embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/course_tag?post=14878"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}