{"id":16078,"date":"2025-12-11T17:18:45","date_gmt":"2025-12-11T17:18:45","guid":{"rendered":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/?page_id=16078"},"modified":"2026-03-04T13:56:06","modified_gmt":"2026-03-04T13:56:06","slug":"influencing-and-advocacy","status":"publish","type":"page","link":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/getting-involved\/influencing-and-advocacy\/","title":{"rendered":"Influencing and advocacy"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-9868c831-dc08-4be7-96b8-e0cb537cb9dc&#8221; custom_padding_tablet=&#8221;80px||80px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-9868c831-dc08-4be7-96b8-e0cb537cb9dc%22:%91%22background_color%22%93}&#8221;][et_pb_row column_structure=&#8221;3_5,2_5&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;4&#8243; make_equal=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;3_5&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_css_main_element=&#8221;margin: auto;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Influencing and advocacy&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_font=&#8221;&#8211;et_global_heading_font|800|||||||&#8221; title_font_size=&#8221;48px&#8221; custom_margin=&#8221;0px|-21px|0px||false|false&#8221; custom_padding=&#8221;0px||32px||false|false&#8221; title_font_size_tablet=&#8221;44px&#8221; title_font_size_phone=&#8221;26px&#8221; title_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px|150px|16px||false|false&#8221; custom_padding_tablet=&#8221;32px|0px|15px||false|false&#8221; custom_padding_phone=&#8221;15px|0px|||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>On this page you will see opportunities to get involved in consultations which are shaping policy reforms which affect our PDA community, as well as ways in which you can advocate for your child or yourself.<\/p>\n<h2 style=\"position: absolute; width: 1px; height: 1px; margin: -1px; padding: 0; overflow: hidden; clip: rect(0 0 0 0); white-space: nowrap; border: 0;\">Organizations we partner with<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;2_5&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-content\/uploads\/2025\/04\/1c.-Our-partnerships.png&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;||||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; border_radii=&#8221;on|24px|24px|24px|24px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-d4d84b5e-d061-48e7-894c-a52b4e3d47de&#8221; custom_padding_tablet=&#8221;80px||80px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-d4d84b5e-d061-48e7-894c-a52b4e3d47de%22:%91%22background_color%22%93}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; use_custom_gutter=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Parents SEND reform briefing&#8221; url=&#8221;https:\/\/www.pdasociety.org.uk\/pda2025staging\/what-is-pda\/parents-send-reform-briefing\/&#8221; url_new_window=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; title_font=&#8221;||||on||||&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;24px||16px||false|false&#8221; custom_padding_tablet=&#8221;0px||24px||false|false&#8221; custom_padding_phone=&#8221;10px||10px||false|false&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span data-contrast=\"auto\" xml:lang=\"EN-GB\" lang=\"EN-GB\" class=\"TextRun SCXW46581722 BCX8\"><span class=\"NormalTextRun SCXW46581722 BCX8\">This page has been created to help you use your experiences to build<\/span><span class=\"NormalTextRun SCXW46581722 BCX8\"> an<\/span><span class=\"NormalTextRun SCXW46581722 BCX8\"> understanding of PDA in decision makers, and to develop trusting relationships so you can help them ensure that any new legislation around SEND considers and makes best efforts to meet the needs of our children.\u00a0<\/span><\/span><span class=\"EOP SCXW46581722 BCX8\" data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559740&quot;:300}\">\u00a0<\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Defending your Right to Choose diagnosis&#8221; url=&#8221;https:\/\/www.pdasociety.org.uk\/pda2025staging\/getting-involved\/defending-your-right-to-choose-diagnosis\/&#8221; url_new_window=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; title_font=&#8221;||||on||||&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;24px||16px||false|false&#8221; custom_padding_tablet=&#8221;0px||24px||false|false&#8221; custom_padding_phone=&#8221;10px||10px||false|false&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span data-olk-copy-source=\"MessageBody\">Families have told us they\u2019re being told that a diagnosis received through a Right to Choose provider won\u2019t be accepted by the NHS.\u00a0 Right to Choose providers are commissioned by the NHS, and the assessments they deliver are NHS-funded and NHS-approved.<\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-9868c831-dc08-4be7-96b8-e0cb537cb9dc&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-9868c831-dc08-4be7-96b8-e0cb537cb9dc%22:%91%22background_color%22%93}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Addressing the removal of a diagnosis&#8221; url=&#8221;https:\/\/www.pdasociety.org.uk\/getting-involved\/addressing-the-removal-of-a-diagnosis\/&#8221; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Individuals and families are reporting that their diagnosis is being replaced on their records with something different. This page looks at this issue and offers self-advocacy guidance if you are facing the same situation.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-9868c831-dc08-4be7-96b8-e0cb537cb9dc&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-9868c831-dc08-4be7-96b8-e0cb537cb9dc%22:%91%22background_color%22%93}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-d4d84b5e-d061-48e7-894c-a52b4e3d47de&#8221; custom_padding=&#8221;40px|40px|40px|40px|false|false&#8221; border_radii=&#8221;on|24px|24px|24px|24px&#8221; global_colors_info=&#8221;{%22gcid-d4d84b5e-d061-48e7-894c-a52b4e3d47de%22:%91%22background_color%22%93}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Do you want to stay up to date?&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h2&#8243; title_text_align=&#8221;center&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\"><span>There\u2019s always more to learn about PDA and it can be hard to keep up. Our newsletter brings updates, ideas and support straight to your inbox. It\u2019s free, and easy to join.<\/span><\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjgwMjgifX0=@&#8221; button_text=&#8221;Sign up&#8221; button_alignment=&#8221;center&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;button_url&#8221; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-6923f909-25e5-4c77-be27-cbebb4bb1b7c%22:%91%22button_bg_color%22,%22button_border_color%22%93}&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>On this page you will see opportunities to get involved in consultations which are shaping policy reforms which affect our PDA community, as well as ways in which you can advocate for your child or yourself. Organizations we partner withThis page has been created to help you use your experiences to build an understanding of PDA in decision makers, and to develop trusting relationships so you can help them ensure that any new legislation around SEND considers and makes best efforts to meet the needs of our children.\u00a0\u00a0Families have told us they\u2019re being told that a diagnosis received through a Right to Choose provider won\u2019t be accepted by the NHS.\u00a0 Right to Choose providers are commissioned by the NHS, and the assessments they deliver are NHS-funded and NHS-approved.Individuals and families are reporting that their diagnosis is being replaced on their records with something different. This page looks at this issue and offers self-advocacy guidance if you are facing the same situation.There\u2019s always more to learn about PDA and it can be hard to keep up. Our newsletter brings updates, ideas and support straight to your inbox. It\u2019s free, and easy to join.<\/p>\n","protected":false},"author":26,"featured_media":0,"parent":7729,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"course_tag":[],"class_list":["post-16078","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages\/16078","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/users\/26"}],"replies":[{"embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/comments?post=16078"}],"version-history":[{"count":0,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages\/16078\/revisions"}],"up":[{"embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages\/7729"}],"wp:attachment":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/media?parent=16078"}],"wp:term":[{"taxonomy":"course_tag","embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/course_tag?post=16078"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}