{"id":9535,"date":"2025-04-21T12:52:29","date_gmt":"2025-04-21T11:52:29","guid":{"rendered":"https:\/\/www.pdasociety.org.uk\/?page_id=9535"},"modified":"2026-02-22T14:33:59","modified_gmt":"2026-02-22T14:33:59","slug":"being-heard-a-guide-for-adult-pdaers-seeking-mental-health","status":"publish","type":"page","link":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/what-helps-guides\/being-heard-a-guide-for-adult-pdaers-seeking-mental-health\/","title":{"rendered":"Being Heard A Guide for Adult PDAers Seeking Mental Health"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; custom_padding=&#8221;80px||80px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Getting support for your mental health&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_font=&#8221;&#8211;et_global_heading_font||||||||&#8221; title_text_align=&#8221;center&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; title_text_align_tablet=&#8221;center&#8221; title_text_align_phone=&#8221;left&#8221; title_text_align_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-9868c831-dc08-4be7-96b8-e0cb537cb9dc&#8221; custom_padding=&#8221;||||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-9868c831-dc08-4be7-96b8-e0cb537cb9dc%22:%91%22background_color%22%93}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding_phone=&#8221;||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Many of us experience mental health struggles at different points in our lives. But if you have a PDA profile, getting the right support can be especially tough. Long waiting times, inaccessible systems and professionals who don\u2019t understand PDA are just some of the barriers that can leave people feeling exhausted, excluded or misunderstood.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-d4d84b5e-d061-48e7-894c-a52b4e3d47de&#8221; custom_padding=&#8221;||||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-d4d84b5e-d061-48e7-894c-a52b4e3d47de%22:%91%22background_color%22%93}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding_phone=&#8221;||24px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Why it\u2019s so hard to get help&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h2&#8243; title_text_align=&#8221;left&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; title_text_align_tablet=&#8221;left&#8221; title_text_align_phone=&#8221;left&#8221; title_text_align_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Some professionals may wrongly assume that your mental health challenges are \u201cjust part of being autistic\u201d. But that\u2019s not true \u2013 and it\u2019s not OK.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Mental health struggles can affect anyone. The <a href=\"https:\/\/www.ambitiousaboutautism.org.uk\/what-we-do\/services\/i-am-an-autistic-young-person\/wellbeing-toolkits\/know-your-normal\" target=\"_blank\" rel=\"noopener noreferrer nofollow\"><em>Know Your Normal<\/em><\/a> research by Ambitious About Autism shows that autistic people, including PDAers, experience mental health difficulties that are just as valid \u2013 and just as important to treat \u2013 as anyone else\u2019s. Often, these difficulties are made worse by things like unmet needs, sensory overwhelm and a lack of the right support.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||0px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>PDAers may experience especially high levels of anxiety, particularly when demands are involved. But this doesn\u2019t make your experience less real or less deserving of care.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||0px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>You might recognise some of these barriers:<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||0px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<ul>\n<li>Appointment systems that are hard to access (like needing to call at a set time).<\/li>\n<li>Long waiting times for services.<\/li>\n<li>A lack of understanding about how autism and PDA affect mental health.<\/li>\n<li>Difficult environments like noisy, busy waiting rooms.<\/li>\n<li>Feeling dismissed or not taken seriously when you do ask for help.<\/li>\n<\/ul>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-9868c831-dc08-4be7-96b8-e0cb537cb9dc&#8221; custom_padding=&#8221;||||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-9868c831-dc08-4be7-96b8-e0cb537cb9dc%22:%91%22background_color%22%93}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding_phone=&#8221;||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;What can help&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h2&#8243; title_text_align=&#8221;left&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; title_text_align_tablet=&#8221;left&#8221; title_text_align_phone=&#8221;left&#8221; title_text_align_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>There\u2019s no easy fix \u2013 but these steps might make it a bit easier to advocate for your needs and get the support you deserve:<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<ul>\n<li>Ask for reasonable adjustments<\/li>\n<\/ul>\n<p>If something isn\u2019t working for you, it\u2019s OK to say so. For example: \u201cI find this system inaccessible. Are there any reasonable adjustments that could help me access support?\u201d<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Using the term reasonable adjustments can help professionals understand their responsibilities under the Equality Act \u2013 and prompt a more thoughtful response.<\/p>\n<ul>\n<li><strong>Be clear about what helps<\/strong><\/li>\n<\/ul>\n<p>You don\u2019t need to share everything. But giving a few specific examples can make it easier for people to support you. For instance:<\/p>\n<p>\u201cThe waiting room is too overwhelming. Could I wait somewhere quieter or arrive at a less busy time?<\/p>\n<p>\u201cI find verbal instructions difficult to process. It helps if things are written down.\u201d<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|16px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>These kinds of requests help people understand your sensory profile and processing needs \u2013 and how to adapt their approach in ways that work better for you.<\/p>\n<ul>\n<li><strong>Explain what\u2019s changed<\/strong><\/li>\n<\/ul>\n<p>It\u2019s common for professionals to ask \u201chow are you feeling?\u201d \u2013 but that\u2019s not always an easy question to answer.<\/p>\n<p>Where you can, it helps to describe specific changes. For example:<\/p>\n<p>\u201cI\u2019m having four panic attacks a week now \u2013 I\u2019d usually only have one.\u201d<\/p>\n<p>\u201cI haven\u2019t been eating properly for over a week, which is unusual for me.\u201d<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding_tablet=&#8221;32px|0px||0px|false|false&#8221; custom_padding_phone=&#8221;0px||0px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_orientation_tablet=&#8221;&#8221; text_orientation_phone=&#8221;left&#8221; text_orientation_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>This gives professionals a clearer picture of what\u2019s going on and helps them respond to your personal experience, rather than relying on assumptions.<\/p>\n<p>You might find the <a href=\"https:\/\/www.ambitiousaboutautism.org.uk\/what-we-do\/services\/i-am-an-autistic-young-person\/wellbeing-toolkits\/know-your-normal\" target=\"_blank\" rel=\"noopener noreferrer nofollow\">Know Your Normal Toolkit<\/a> helpful for tracking your wellbeing and sharing this with professionals.<\/p>\n<ul>\n<li><strong>Ask someone you trust for support<\/strong><\/li>\n<\/ul>\n<p>If you\u2019re not being heard, it\u2019s OK to ask for help. You might want to speak to someone you trust or get support from a health advocate.<\/p>\n<p>They can help you:<\/p>\n<ul>\n<li>Make a complaint.<\/li>\n<li>Contact your local integrated care board (ICB).<\/li>\n<li>Record what support you\u2019ve asked for and what\u2019s happened so far.<\/li>\n<\/ul>\n<p>Sometimes just having someone in your corner can make all the difference.<\/p>\n<p>Having a PDA profile can make it harder to access mental health support \u2013 but it doesn\u2019t mean you have to go through it alone. You have the right to feel safe, supported and understood. And it\u2019s OK to ask for help in a way that works for you.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Many of us experience mental health struggles at different points in our lives. But if you have a PDA profile, getting the right support can be especially tough. Long waiting times, inaccessible systems and professionals who don\u2019t understand PDA are just some of the barriers that can leave people feeling exhausted, excluded or misunderstood.Some professionals may wrongly assume that your mental health challenges are \u201cjust part of being autistic\u201d. But that\u2019s not true \u2013 and it\u2019s not OK.Mental health struggles can affect anyone. The Know Your Normal research by Ambitious About Autism shows that autistic people, including PDAers, experience mental health difficulties that are just as valid \u2013 and just as important to treat \u2013 as anyone else\u2019s. Often, these difficulties are made worse by things like unmet needs, sensory overwhelm and a lack of the right support.PDAers may experience especially high levels of anxiety, particularly when demands are involved. But this doesn\u2019t make your experience less real or less deserving of care.You might recognise some of these barriers: Appointment systems that are hard to access (like needing to call at a set time). Long waiting times for services. A lack of understanding about how autism and PDA affect mental [&hellip;]<\/p>\n","protected":false},"author":19,"featured_media":0,"parent":8181,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"course_tag":[371,348],"class_list":["post-9535","page","type-page","status-publish","hentry","course_tag-peer-support","course_tag-safer-practice"],"_links":{"self":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages\/9535","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/users\/19"}],"replies":[{"embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/comments?post=9535"}],"version-history":[{"count":0,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages\/9535\/revisions"}],"up":[{"embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/pages\/8181"}],"wp:attachment":[{"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/media?parent=9535"}],"wp:term":[{"taxonomy":"course_tag","embeddable":true,"href":"https:\/\/www.pdasociety.org.uk\/pda2025staging\/wp-json\/wp\/v2\/course_tag?post=9535"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}