PDA Stories - A series of case studies

PDA is a relatively unusual form of ASD and so professionals generally haven't seen very many cases. Parents also often don't meet very many others who have children with the same issues. This series of individual stories is intended to highlight a range of experiences and illustrate what has been particularly helpful or unhelpful for families.

While every case is different, a key theme is the way in which adopting the right strategies can have such a dramatic impact on the well-being and behaviour of these young people. There is a common problem of initial diagnoses being either too general or insufficiently accurate and the pressures on parents when the problems are misunderstood are enormous. It is hoped these examples will help schools and professionals undertaking assessments to have a better understanding of this form of Autism and how the correct management can help.

Please use these case studies and share them with others. This resource will continue to be developed over time, and is intended to help raise awareness so that diagnoses and strategies are put into effect more quickly than has been the case for some of these children.

Read our stories...

1. Younger Children

2. Older Children

3. Adults
4. Education
With huge thanks to all the families involved, and to writer Vikki Threlfall

About the case studies

These case studies were developed in response to our survey of professionals (2016) which highlighted the fact that many have little personal experience of working with individuals with PDA. Members of the PDA Society were invited to describe their experiences and parents were interviewed over the phone, their stories were written up and approved by the parent. Some names have been changed. We do hope to add more case studies over time, so please do visit again to check for updates. 

'This is Our PDA Story' - A series of blog articles 

Steph Curtis has featured a series of articles with real life stories of people living with PDA on her blog 'Stephs Two Girls'. This series include contributions from parents and carers, and people with PDA.  To read these please visit Steph's blog using the link here