Mapping Experiences of Pathological Demand Avoidance in Ireland, Executive Summary
Doyle and Kenny 2020
This initial summary reports the findings of the study funded by the Irish Research Council, and conducted by researchers from Dublin City University, Institute of Education, Neil Kenny and Siobhan McNally, and Alison Doyle of Caerus Education.
The aims were to:
- Determine levels of knowledge, recognition, and understanding of PDA in Ireland. Explore current pathways to assessment and diagnosis of PDA in Ireland.
- Capture experiences of access to education and healthcare services as described by families supporting individuals living with PDA in Ireland, viewpoints of professionals in health and education settings, and adults identifying as PDA.
- Determine impact on families and individuals across the lifespan.
- Identify key areas of concern for these stakeholder groups which can inform strategies for supporting individuals presenting a PDA profile in Ireland, and act as a focus for further research.
The report has a significant level of detail and highlights the need for an individualised approach and considers diagnosis, education and healthcare services.
The recommendations led to the production of a series of evidence-based practice sheets.
Authors: Dr Alison Doyle, Caerus Education, Dr Neil Kenny, Dublin City University, Dr Sinead McNally, Dublin City University
Funded by: Irish Research Council