PDA profile

Found 27 listings

Being Misunderstood – 2018 Survey

Experiences of the PDA Profile of ASD Education, health and social care services are designed to be 'needs-based' and 'outcomes-focused'. While the intention is clear, there is a group of autistic people whose needs are frequently not identified in detail, not understood in practice and not fully communicated between professionals. As [...]

Pathological Demand Avoidance: summary sheet

A one-page explanation of the PDA profile, produced by the PDA Development Group and published in June 2016. It describes the main features and the key approaches to supporting a PDA person. The PDA Development Group comprises a group of clinical and professional experts, and includes representation from the NAS [...]

Collaborative Approaches to Learning for Pupils with PDA

This book distils expert advice on implementing collaborative approaches to learning for supporting pupils with Pathological Demand Avoidance Syndrome (PDA) at school. Explaining why this approach is so beneficial, it presents key information, advice and resources to help education professionals best support pupils with PDA, and also school staff.   .fusion-button.button-6 [...]

Me and My PDA

Me and My PDA: A Guide to Pathological Demand Avoidance for Young People This beautifully illustrated guide helps young people with Pathological Demand Avoidance (PDA) to understand their diagnosis, develop self-awareness and implement their own personalised problem-solving strategies. Written in consultation with young people with PDA and their families, this [...]

Understanding Pathological Demand Avoidance Syndrome in Children

The first book ever written about PDA - it gives a comprehensive overview for everyone with an interest in the subject. It was written collaboratively by professionals and parents. This straightforward guide offers a complete overview of Pathological Demand Avoidance Syndrome (PDA) and gives practical advice for overcoming the difficulties [...]

PDA Reference Booklet for Health, Education and Social Care Practitioners

This booklet was initially produced and printed in 2014 as part of our 'Awareness Matters' campaign and revised in 2016. The booklet will be useful to Health, Education and Social Care Practitioners. This is a free electronic resource. Distribution is positively encouraged.  In addition, the PDA Society can supply hard copies [...]

PDA… the story so far

The following is a summary of Phil Christie's talk “PDA... the story so far” at the PDA Society Conference in Birmingham on 18th April 2018 Personal journey Phil first paid tribute to Professor Elizabeth Newson’s pioneering work around PDA, saying “possibly without Elizabeth we wouldn’t be gathered here today”. Phil reflected on [...]

PDA Behavioural Features: poster presentation

Extreme/ ‘Pathological’ Demand Avoidance: An Examination of the Behavioural Features Using a Semi-Structured Interview This poster summarises a paper which examines the behavioural features associated with extreme/’pathological’ demand avoidance. Parents of children with an ASD diagnosis who displayed features of extreme /’pathological’ demand avoidance, were questioned using a semi-structured interview model. [...]

Need for distinguishing PDA

Pathological demand avoidance syndrome: a necessary distinction within the pervasive developmental disorders The aim of this paper was to gain recognition for pathological demand avoidance (PDA) as a separate entity within the Pervasive Developmental Disorders (PDDs) (now termed Autism Spectrum Disorders, ASD). Elizabeth Newson and colleagues had recognised a group [...]

AET National Autism Standards

This extensive paper entitled 'The Distinctive Clinical and Educational Needs of Children with Pathological Demand Avoidance Syndrome: Guidelines for Good Practice' was written by Phil Christie and originally published in the Good Autism Practice Journal. It is reprinted by the Autism Education Trust (AET) to accompany their National Autism [...]

PDA behavioural profile

Pathological demand avoidance: Exploring the behavioural profile The aim of this paper was to report the profiles of children diagnosed with Pathological Demand Avoidance (PDA) compared to children with Autism Spectrum Disorders (ASD), Conduct Problems (CPs) and Callous Un-emotional Traits (CUs).  The study addressed some of the controversy surrounding the [...]

Reflections on 2014 paper by O’Nions et al

Commentary: PDA – public display of affection or pathological demand avoidance? – reflections on O'Nions et al. (2014) This commentary piece contains a succinct summary of the history of Pathological Demand Avoidance (PDA). It is an interesting read for professionals and parents as it raises points for discussion regarding the incidence, [...]

Prevalence Study

Extreme (“pathological”) demand avoidance in autism: a general population study in the Faroe Islands A study was carried out to determine the frequency of Pathological Demand Avoidance (PDA) within a group of individuals identified as having met the diagnostic criteria for Autism Spectrum Disorder (ASD). This is a thought-provoking read [...]

Identifying features of ‘PDA’ using the Diagnostic Interview (DISCO)

Identifying features of ‘pathological demand avoidance’ using the Diagnostic Interview for Social and Communication Disorders (DISCO) This paper discusses the Diagnostic Interview for Social and Communication Disorders (DISCO) and existing items within the model which are more specific to PDA when compared to the rest of the autism spectrum. It [...]

Dimensions of difficulty

Dimensions of difficulty in children reported to have an autism spectrum diagnosis and features of extreme pathological demand avoidance A subset of individuals with autism spectrum disorder (ASD) resemble descriptions of extreme/‘pathological’ demand avoidance, displaying obsessive avoidance of everyday demands and requests, strategic or ‘socially manipulative’ behaviour and sudden changes [...]

Tool to support diagnosis of ASD / PDA / Attachment disorders

Modification of the Coventry Grid Interview to include the Pathological Demand Avoidant profile The Coventry Grid Interview was designed to be used by clinicians as part of a comprehensive assessment process and not as a stand-alone diagnostic tool. There is often diagnostic confusion over the differences between children presenting with autism [...]

Keys to care

A single page help sheet for managing and helping someone with a PDA profile. Ideal for those working with individuals whose care-needs have been identified as relating to demand avoidance. Useful as a grab-sheet for members of staff - a regular reminder of what can help. Also helpful for family [...]