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Need an adult diagnosis
  • Posts: 0
    Hi there,
    I hope you can help me. I'm a 28 year old guy and I'm quite sure I have PDA but I need a formal diagnosis. I found some information on Asperger syndrome online about 3 years ago and noticed a lot of similarities. I got referred to a psychiatrist by my GP but he treated me like a time waster. Obviously that was because of the inconsistencies with PDA but he didn't even consider the possibility of atypical Asperger syndrome. Probably saving the NHS some money, they're up to their necks in debt in this area. I don't want to be treated like that again. I would rather be diagnosed by one of the specialists in Nottingham who work with children with PDA because I don't trust anyone from this area after last time. Can anyone offer any advice please?

    I remember my Mum always told me how I was such a quiet baby. Also they told me that friends and relatives were shocked when they gave me one of my favourite books and asked me to read it that i could read fluently so young - only just after learning to speak. They were even more surprised when my parents pointed out that I hadn't turned the pages at all and sometimes the book was upside down and they realised I memorised it word for word. At play school apparently I was separated from the rest of the group and gradually introduced to larger groups of kids. My parents never explained the reason for this properly though. At school kids started name calling and generally making my life hell because the knew it was easy to get me to overreact and become violent. That was more likely the reason I was separated from the rest of the group in play school. I was never into sport and role play type games were one of the few things I played at as a kid. As far as work was concerned my first few years at school were a breeze. The attempts at making the work more fun along with the fact I found it so easy meant i never saw it as a demand. In fact there were few demands at all in my early life really, although if I didn't get my way over something I could cause a hell of a fuss. I enjoyed having something I could do so easily that could get a positive response from adults. Of course after first school work got harder but I was still doing OK until the gradual introduction of homework started really killing it for me. I couldn't really be bothered with homework, my class work was slow, teachers observed that I spent too much time staring out of the window and absorbed in fantasy and that I could do better if I paid attention. I spent most of the time daydreaming when teachers were explaining things but what they didn't realise was that a secondary part of my brain was also listening and taking in most of it in without disturbing my daydream, whatever it happened to be. I just asked other kids or the teacher when I came up against things I had apparently missed. My predicted grades weren't good, but with a fairly mininal amount of last minute revision I beat nearly all of them, getting B and C grades for all except two subjects. IT was assignment based and I slacked off and didn't do it until the last minute and in music I was just terrible at music history and didn't really revise it in favour of revising more important stuff. While I was around middle school and high scool age I used to watch favourite videos frequently. I remember at one point for over a month, perhaps nearer two months I watched Watership Down every day after scool as my way of "winding down". I was always a daydreamer and loved animal cartoons, yet my parents were still surprised when I told them I'm a furry :lol: (if you don't know what that is Google it) Anyway, I also read somewhere that neurological symptoms might include clumsiness, poor handwriting and crawling abnormally as a baby. Although I'm not as clumsy now as I used to be, my handwriting never improved beyond a certain point no matter how much my teachers and parents tried to get me to improve. As for crawling abnormally, my parents described me as crawling sideways "like a crab". Also I think they said I was shy about it and mostly crawled when I thought I wasn't being watched, although that symptom only seems to be mentioned in relation to one other PDA child. When I was about 4 or 5 I remember being fascinated by tubes of buttons in a haberdashery. The tubes were arranged in a display stand so the end of each tube was showing and a different kind of button was on the end of each tube and they were all filled with the same button as was on the lid. One hobby I had was growing plants from seed, and I would arrange the seedlings in rows and columns when planting them up into bigger trays. There was a load of other stuff but that seems enough for now.

    It seems likely to me that PDA/Asperger syndrome but I've lost a bit of confidence in self diagnosis since last time. As the parents of children with PDA, does any of that sound familiar? Bearing in mind of course that I never had the benefit of anyone understanding I was different or anything like that. How should I go about getting diagnosed properly?

  • Amanda
    Posts: 281
    Is getting a diagnosis really important to you?
    Many people I know have spouses who are on the spectrum and I know that doctors say that they often recognise traits in the parents of the children they see. I know that in most cases adults who seek diagnosis tend to go private for assessment but many don't bother and just accept the self diagnosis as they have learned to adapt and function effectively around their condition.

    You asked about PDA. PDA is very complex and personally after reading what you have written I would doubt whether you have PDA, only because there are key things that I would expect to come screaming out of the page from someone with this condition...Words like anger, fear, agression, anxiety and of course control.
    You asked for an our opinion, that's mine but please remember that that is all it is, a personal opinion.

    There is a forum for ASD that you might find useful....Heres the link...

    I wish you luck in your search for answers.
  • Just Dandy
    Posts: 19
    I agree with Amanda and did not feel that what you were describing was Pda. The anxieties our children feel can be from such trivial routines /activities. My son is well behind in all subjects at school due to the demand avoidance. He is very capable though. I'm not saying that this is the rule but again my personal opinion is that you don't have PDA
    Good Luck
  • MHO
    Posts: 111
    Hi Wolfy,

    I agree with Amanda and Donna that, judging from what what you have written, you do not appear to have PDA. Are you sure that you were not a gifted child whose abilities were not recognised? If you have read up on PDA, I should be interested to know which particular features of PDA you felt described you. As for getting a diagnosis, I wonder why you feel it's important to you. Most parents of children with PDA, as far as I can gather from the various postings, set out not wanting their children to be "labelled" but change their minds when they realise that a diagnosis is usually esential as a means of getting access to appropriate educational services.
  • Maryann
    Posts: 53
    im in a similar boat, for a number of years i have been told when family see my childs difficulties, you was like that when you was younger. there is a number of people on both sides of my family that have mental disabilities, and has made me feel for a long time i may have had the same problem. i always thought about seeing if i can get a diagnosis for myself but since i have alot of time devoted to my daughter and other things ive not really had much time to think it over anymore. i can understand why you would want a diagnosis though, as when you have had a problem childhood and people are constantly reminding how difficult you are, just like we want for our children, you want a reason for behaviours.
    when we have our children diagnosed everything changes, we can now tell the people when they give us dirty looks, that our child is behaving like that for a reason, why would an adult that feels they was looked upon negatively or something else that was a problem not want to put a reason to behaviours that they had. i know when im constantly reminded how i was i would love to say well i did that for a reason, or i behaved like that for a reason.

    although i do agree with the rest, it doesnt sound to me like pda, but more like a gifted child that wasnt getting the right stimulation and therefore was acting different. i have an ex boyfriend that is mensa type intellegent and as normal with high intellegence, he has very little common sense and lack of emotional sensitivity, and have a huge need for control as like with most gifted children he was driven to by parents and teachers to do better and was pushed into doing music and more work because he was capable of doing so well, this then turned him into a very sheltered adult that rebeled and strived control and has no idea what he does affects other people. a number of times i felt he had the same condition as my daughter as they are so similar (except she has global delay) but i feel his problems are down to his childhood.
  • steve
    Posts: 7
    Hi Wolfy
    our son is 23 and diagnosed with PDA (last year) by a carer who went to a lecture in US and became interested as he was struggling to deal with A's behaviour. He suggested it to the consultant Psychiatrist who agreed and we have based our care strategy on that which is working so far.
  • mango69
    Posts: 967
    Hi Wolfy,
    Welcome to the forum and I hope you are finding some answers. It might be helpful to think about how your behaviour now compares to when you were younger as PDA persists into adulthood. It may also be helpful to read the paper PDA what is the outlook? by Elizabeth Newson - available at a small charge from the centre. The main and persisting and most prominent feature is the avoidance of everyday demands to a pathological degree. Do your parents recall this? Usually they are at their wits end with the amount of avoidance strategies you would have been displaying. It sounds as though school was not too much trouble for you which is a feature which strongly goes against the diagnosis as most of these children need one to one support throughout their school lives and beyond into further education - does that sound like you? I have to agree on reading your story I feel that neither PDA nor Aspergers are typical of what you recount, however many men show autistic features and some people actually believe autism is extreme maleness!! You were obviously very gifted and that can be frustrating if not nurtured. I wish you well in your quest for a diagnosis.
  • mango69
    Posts: 967
    Just realised how long ago this was posted! I guess you've perhaps found some answers already.
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