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Sensory problems
  • mango69
    Posts: 967
    What sensory problems does your child have? Mine has a hatred of labels, detests farmyard and fridge smells, can't abide loud noises, and loves the feel of fur, cannot have any strong tastes, especially minty, fizzy or spicy things, and if you touch his head - beware! I recently bought him a t-shirt which says "You can kiss me, you can hold me, but if you touch my hair - I will kill you!" He thought it was BRILLIANT.
  • dirtmother
    Posts: 898
    I'm not entirely sure whether I'd say that ours were problems as such, although loud noises of some sorts (he hates me singing), dense darkness and strong smells might upset him - and his likes can be a bit embarassing eg the whole licking mirrors and parked cars thing, and liking to touch things generally, making strange noises. HIs response to things can be very variable eg in Scotland recently one day snow was a total pain for him, the next day he wanted to roll in it and eat it constantly. I've noticed that he likes to have full ventral contact with surfaces - there's some very interesting research about newborn behaviour and the way in which most young mammals feed best in positions which provide full ventral contact with a surface (mother or ground) and it is as though he hasn't lost that So he'll lie down, most often on his front, in unusual situations.

    I think of it more as him being a sensual child, issues, more intensity if you like rather than problems. There seem to be so many 'normal' people who have sensory foibles and it just gets accepted as a feature of their personality, unless they have another diagnosis. He is perhaps less inhibited about expressing his feelings about things and acting on them though.

    He probably sees it as an artistic temperament!
  • webbwebb
    Posts: 2,582
    Hi Margo

    Matthew and Jonathan both have sensory problems (sensory dysfunction was the term used by the assessment team!)

    Matthew - Massive problems with touch, especially his head - we shave his hair "crew cut" so we don't have to touch it! He physically heaves at lots of smells like perfume, soap, plastic, rubber etc. We have to do sensory modulation exercises with him everyday, given to us by the OT. He hates loud and sudden noises and also bright lights - we live with the curtains shut all day! He is getting better with tastes but still has a re-stricted diet due to refusing most foods.

    Jonathan hates touch the most - we don't touch/kiss/hug him any more because he has always become aggresive. On average I think he touches my shoulder about once a month.
    This is not age related (17) he has always been this way.
    His other main problem is taste. He really does live on cereal, chips, cheddar's and biscuits. Once a week I make him eat chicken and carrots. He has seen the dietician on a couple of occassions but he can not alter his taste buds without a transplant!

    So I could say my boys definately have huge sensory profiles.

    Does anyones child not have sensory problems with their PDA? I would be very interested!

    Paula
  • angel child
    Posts: 215
    Hi My son has sensory difficulties too, also described as sensory dysfunction with a tendancy of sensory seeking behaviour....... We seen a psychiatrist who spun my son in a chair around his office and then told us this although other professionals had saiud before had had sensory difficulties and would get a sensory high which was why he couldn't calm down after a meltdown.

    He barely walk anywhere, runs and jumps constantly, does very wreckless dangerous behaviours like throwing himself of the top of the stairs (luckily with quilts on the bottom to act as a cushion) sensory specilaist has said this is very good as he needs the sensory input!!

    He does like to be hugged but it has to be on his terms if suddenly approached for hug or pat on head he may tell you where to go-this has taken some explaining in the past!!

    He has issues with food likes food either really sugary or really spicey, which ever way food has to be it has to be able to be tasted, however when he was much younger he prefered bland foods, he hates lumps in foods.

    As for clothes he will only wear trackie bottoms and t-shirts, hates wearing coats, a dislike to labels although this has got better as he has got older. He's 9 now and will still refuse to wear jeans and combats and we have so many new clothes which he has never worn because they do not feel right.

    He doesn't care about getting his hands dirty but refuses to brush teeth, wash etc, he does love baths but it's more to play. When he was much younger he would sniff most things but that has pretty much stopped now, occasionaly he will sniff his cutlery!! He has a tendancy to need to smell things and now we need to hide most cleaning sprays out of his way because he loves the smell- I am very concerend that he could be a solvent user when older as he shows this behaviour now.

    He dislikes loud unexpected noises for example a dog barking, although when we was washing some stones the other day he tried to explain to me how he hears softer noises more than louder noises and it hurts his ears, he hates me and his sister singing, lol but prefers to make alot of his own noise but I think this is too cut out other sounds and partly habit, he gets very annoyed at my neighbours music banging through his wall.

    On the whole I think his sensory issues have got better with age or maybe I'm just more tolerant now but we have had some great advice from senosry specialist who has advised the school of a program stating that he needs 2 lots of 45 min activity in school and I also need to do one lot at home, so 3x45 daily sensory stuff plus breaks in between throughout the day where he gets a chance to burn off energy etc but because of his avoidance he will not do the sensoy exercises, arghhhhhh

    On the whole at home we have a big trampoline which is great, his weighted blanket has meant we have been able to cut right back on the melatonin with success, he has tubing to chew from the OT and thera bands but he won' take them to school as he doesn't want to seen to be different and having something that the other children do not have.

    For us it's easier to know now that he has sensory dysfunction as it means we understand him better now :lol:
  • dirtmother
    Posts: 898
    You know I said I felt our son didn't have problems with being very sensory. Well I spoke too soon - I got a call from my husband to collect him from cub camp as he had stuck his tongue and lips to a freezer. I guess his sensory curiosity does get him into problems! Looks pretty gruesome, I thought for a while that he'd be happy to stay (supplied with pain relief, comforters, hugs, got Daddy there) but he was a bit fragile so eventually I've brought him home. Poor Cub Leader was doing an exam.
  • J (7) has sensory differences but I think many of them contribute to his endearing side.
    He loves cuddles from me (mum) but on his terms. He gets very cross if I stroke his hair. He likes his back to be tickled/stroked but tags and seams in clothing irritate and cause him to scratch and wound himself.
    He's always been very oral and there's often inappropriate licking, sniffing and even sucking of things, particularly if they're new.
    I'd say he's slightly more sensitive to sound than normal but it's not a huge problem.
    He can sometimes calm himself by smelling at me. He told me that when he's big he'll bottle my scent 'cos he loves it so much! Very flattering but a but embarrassing.
    In terms of my sensitivity, the older he gets, the thicker my skin gets. I still think I need a few more centimetres though
  • anoushja
    Posts: 8
    Dan eats from choice with his fingers, only eats food groups separately e.g. all the carrots first, likes spicy, strong tasting foods but has an intense dislike for mince (and most other meats), doesn't like shouting or loud noises (but he will make an incredible amount of noise to drown out the world when he's stressed), he hates to have his hair touched, prefers heavy touches to gentle stroking touches. He also likes the noise of glass smashing and eggs splatting against the floor/walls. He is sensitive to the body smells of others, has a preference for t-shirt and fleece fabrics (but not to the exclusion of others - he will change into pj's if he's had a very stressful day). He has become fussy about having clean clothes, but not change his socks?!

    Now I understand the sensory aspect so many of his more irritating and odd behaviours make alot more sense.

    Anne
  • Lixina
    Posts: 289
    I answered for myself.
    I have unusually acute hearing - I can hear my brother whisper across a room if it's otherwise fairly quiet.
    I am bothered by bright lights, I really like shiny things and I either hate or like movement in my peripheral vision, depending on whether it's me or someone else moving.
    I can't wear jeans or rough or scratchy cloth, too-tight clothes, or with seams in the wrong places. I love to stroke soft things like velvet or my hair.
    I am a very picky eater, and crave spicy, sugary or vinegar-covered food. As a baby, I would eat olives and lemons happily. I love many kinds of meat but hate many grains (including bread) and most vegetables are barely tolerable at best.
    I don't tend to notice smells other people do, but I love to smell sage and burnt marshmellow.
    I have a poor sense of balance, poor depth perception, and poor hand-eye coordination, but am very flexible.
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