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New PDA Parent Group Being Set Up (South Coast)
  • http://educatedjustice.wixsite.com/brightonhovepdaforum

    No members yet, so meetings will be arranged once there are people interested!
  • Holly59
    Posts: 2,561
    That looks fantastic. It's surprising how quickly it will expand, one group,started with a few mums and now it has over 50 parents .
    Sadly you need groups like this because there is so little real support out there. That's the theme coming up time after time in our Petition. Accessing any support is difficult with your children ruling their lives and yours.
    It might be a welcoming break for those who home school. Just having a change of walls and having another understanding Adult to talk to.

    Good Luck .xx

  • I think parents need to gather together to discuss various issues, diagnostic, support, behavioural and maybe to swap notes about where to get diagnosed! I think groups like this help spread the word about PDA as well.
  • Holly59
    Posts: 2,561

    PlanetAutism said:

    I think parents need to gather together to discuss various issues, diagnostic, support, behavioural and maybe to swap notes about where to get diagnosed! I think groups like this help spread the word about PDA as well.



    Talk about their experiences with CAMHS !! It's been certainly interesting what CAMHS have come up with as a Diagnosis talking to parents over the past few weeks. Most common is PTSD or attachment disorder.

    You need to find somewhere who consistently gets the diagnosis CORRECT first time round.

    We desperately need a specialist PDA support group,in the Scottish Borders. Working on that soon.

    Pat xx

  • CHUMS is enough to give any child PTSD!!!

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