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BLOG FOR PDA'ERS
  • Hi guys, I'm 16 years old and I live with PDA. I'm currently doing a levels - English lit, psychology and history. And I've set up a blog which helps me mentally and also educationally by helping me with my English lit and expressing my stories I guess. I'd be very grateful if you could check it out and send it to anyone who would get help from it. Done from my teenage perspective but hope it helps caters and even adults with pda as your help would also mean a lot. Please just check it out and maybe let me know what I can post about.

    You, Me and Life dealing with the triple A's – please feel free to email me abbibh101@gmail.com
    https://teenagestressesblog.wordpress.com/

    Thank you
    Abbi x
  • Sounds like an excellent idea. I am not PDA myself but have a husband who's undiagnosed. It's a lot more challenging to get the right help when the individual is an adult and even more so when they themselves believe there is no problem. So I commend your bravery and honesty and being so young and wanting to create a platform for others. Well done. I will be visiting your blog from time to time and hope to get as much advise and techniques of coping as possible and hopefully some day my husband will visit the blog and see how it can in any way help him.

    All the best with it and all your studies.
  • Hi abbibh25 have you had issues with extreme behaviour with your PDA? If so, have you written any posts about that? Some of the behaviours I mean are described here: http://www.pdasociety.org.uk/forum#/discussion/5295/a-dark-side-to-pda

  • MummyDon said:

    Sounds like an excellent idea. I am not PDA myself but have a husband who's undiagnosed. It's a lot more challenging to get the right help when the individual is an adult and even more so when they themselves believe there is no problem. So I commend your bravery and honesty and being so young and wanting to create a platform for others. Well done. I will be visiting your blog from time to time and hope to get as much advise and techniques of coping as possible and hopefully some day my husband will visit the blog and see how it can in any way help him.

    All the best with it and all your studies.



    Hi.
    I can imagine the struggle you, yourself and your husband have with not being diagnosed. A lot of those with PDA and just autism in general like to hide the fact they have it, at the end of the day we all long to be 'normal' I guess. Thank you very much! It's not about being brave I just want to help anyone I can and if I help you and your husband that will be a job complete.
    I shall be posting more to help with coping ideas so please regularly check it out.
    Thank you for your kind comments.
    Abbi x


  • PlanetAutism said:

    Hi abbibh25 have you had issues with extreme behaviour with your PDA? If so, have you written any posts about that? Some of the behaviours I mean are described here: http://www.pdasociety.org.uk/forum#/discussion/5295/a-dark-side-to-pda



    Hi.
    Reading that post there is definitely some aspects that I can see my younger self in so clearly. I haven't as of yet posted about that but I will be soon so please keep checking. Although interesting to see different ways children cope with their PDA sometimes you just wish people would realise that you're the one living with it, don't you?
    If there's anything I can do, my email is on my blog - abbibh101@gmail.com - if you'd like to talk privately and directly I'm only an email away. However as I say I shall be posting an update on my blog about this soon as asked.
    Thank you
    Abbi x

  • Thanks Abbi.
  • https://teenagestressesblog.wordpress.com/2016/09/14/i-got-myself-a-job/

    "Another major thing that I’ve recently heard, unsure if it’s rumours but it was done by a specialist so unsure if it would be?! They’re trying to stop the diagnosis of PDA."



    Very, very concerning - where did this come from? Sad thing is, it wouldn't surprise me.
  • Holly59
    Posts: 2,586

    PlanetAutism said:

    https://teenagestressesblog.wordpress.com/2016/09/14/i-got-myself-a-job/

    "Another major thing that I’ve recently heard, unsure if it’s rumours but it was done by a specialist so unsure if it would be?! They’re trying to stop the diagnosis of PDA."



    Very, very concerning - where did this come from? Sad thing is, it wouldn't surprise me.




    I still say PDA is massively undiagnosed or wrongly diagnosed. Remember the Clinicians Survey last Year and the appaling views of so many so called Professionals .

    It will be recognised if Mary and I convince the Scottish Parliament to " Listen to the Parents " instead of these so called Professionals . As you have often stated PlanetAutism because a person has a few letters after their name it does not mean they understand Autism Spectrum, far from it . What's the word most often used on this site " Clueless".

    Have you seen the growing list of requests for support groups posted this evening on the PDA FB page.Brilliant news.about the new groups emerging.

    Pat xx
  • I can't find the article on it now but there was a brief (of course why would they do a long story on something as wacky as autism?!) about it on the news. And my psychologist also alarmed my mum of it. It's appalling it doesn't make it go away if you stop diagnosing it.

    Yes I completely agree, I hope they do listen to the parents. There's not much more we can give when all the professionals keep taking. Many think all diagnosis under the specutrum are the same but as you know that's far from the case.

    Yes I'm in some of them myself and the numbers are increasing which is always a positive.

    Abbi xx

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