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Requesting support for a new study (Cambridge University, Austim Research Centre)
  • webbwebb
    Posts: 2,551
    The PDA Society have been contacted by Cambridge University who would like us to advertise their latest study.
    Please read below the email we received from them and then consider if you can help with this study.
    Thank you



    Cambridge Ultrasound Sibling and Parent Study (CUSP)

    Are you a pregnant mum with an autism spectrum condition or have a child with a diagnosis (autism for short) who is happy to have an extra 3D ultrasound scan around 26-30 weeks of pregnancy?

    This study is observing the early development of the baby in pregnancies where the mother has autism, compared to pregnancies where the mother has no diagnosis of autism.

    The prevalence of autism is about 1% in the general population, and we know that having an older sibling with autism increases the likelihood of autism in a new pregnancy nearly 20fold. This means that if you are a mother with autism, or if you are a mother with an older child with autism, your new baby may also be at increased genetic likelihood of developing autism too. The aim of this research is to see if there are any physical characteristics in pregnancy that might be related to later autistic traits in childhood. The overall aim is to help support children who might be later diagnosed with ASC and their families from as early as possible

    If you would like to participate, you will be invited for an ultrasound scan at the Rosie Maternity Hospital in Cambridge. This scan will last approximately 45 minutes and is similar to the scan you’ve had at 12- and 20-weeks. There will be two follow up visits at 18months (post/online questionnaires only) and an in-person visit to the Autism Research Centre, Cambridge when your child is 24 months old. We will reimburse all travel expenses and hotel accommodation, and you will receive an additional £20/visit for the follow-up visits. A cheque will be sent to you after each visit. Additionally, we will provide pictures of your baby from your ultrasound scan

    If you are interested in finding out more about this study or would like to take part, please contact Ezra Aydin, by email (ea420@medschl.cam.ac.uk) or by telephone 0044 1223 746051
  • PDA_ASD_Parent
    Posts: 4,188
    I had 3D scans with both mine and with us all being autistic they didn't notice anything different.

    What they are relying on is that they will see differences in the womb. They might in some cases of autism, because there are different types of autism and the causes vary. So they might pick up differences in syndromic cases for instance that may have morphological features. (e.g. Williams, Angelman, Prader Willi) but not others. Bearing in mind autism is epigenetic, but not necessarily within the womb, but post-birth, unless they are also looking at all environmental factors (including vaccines and including vaccines given to the pregnant mother) they will not get the full picture.

    A scan might tell you something is different, but it often won't tell you why.

    Speaking of which, if anyone wants to see "The Truth About Vaccines" docu-series all episodes to date are on my FB page: https://www.facebook.com/pg/PlanetOughtism/ over the last few days.

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