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URGENT REQUEST ! Survey Sheffield PDA Support Group / PDA Society. Closing date lunchtime12.10.2017.
  • Holly59
    Posts: 2,586
    https://www.surveymonkey.co.uk/r/WCY5QBH

    URGENT CALL for SHEFFIELD parents/carers of children/young people with PDA or suspected PDA ...
    The Sheffield PDA Support Group and the PDA Society have been invited to attend a meeting with the Head of SEN and professionals from Sheffield LEA and CAMHS. We will be discussing PDA in detail and how the condition impacts our children and family lives. Particular focus will be given to their educational experiences and how best they can be supported in their learning and provision.
    To enable us to represent parents' views, please answer our survey about your experiences of Sheffield LA services (Health, Education and Social Care). It is open for a limited period only. The closing date is Thursday 12th October 2017 at Midday.
    Please follow link below to the survey. If you have any difficulties, please email: tracy.rose@pdasociety.org.uk or brigittegriffiths10@gmail.com
    THANK YOU FOR MAKING A DIFFERENCE!

    If only all LA would follow this lead . Amazing .
  • Let's see what the outcome is if Sheffield don't recognise PDA as a diagnosis. As it's all about money, any excuse to refuse to add PDA educational support into EHCPs will be seized upon. So no diagnosis will clearly be the first thing. It's only people power that can fight this so they need as many as possible. Maybe this can be an exemplar for other areas.
  • Holly59
    Posts: 2,586

    Let's see what the outcome is if Sheffield don't recognise PDA as a diagnosis. As it's all about money, any excuse to refuse to add PDA educational support into EHCPs will be seized upon. So no diagnosis will clearly be the first thing. It's only people power that can fight this so they need as many as possible. Maybe this can be an exemplar for other areas.



    Let's hope so !

    http://www.middletonpsychology.co.uk/

    This guy was mentioned on the FB page as diagnosing privatly PDA for years in the South Yorkshire area .

    Tracy Rose is amazing , met her at the Barrhead Training Day , she had such a fantastic knowledge and understanding of PDA . Learnt so much that day .

    Wonder if any representatives of the NAS will be there since they recognise PDA as being on the Spectrum ?

    I think this is a wonderful achievement to get all concerned to a meeting like this . So much can be learnt . Let's hope for all concerned this is just the start of accepting PDA on the Autistic Spectrum .


  • Wonder if any representatives of the NAS will be there since they recognise PDA as being on the Spectrum?



    The NAS absolutely should be speaking out about this issue. We know they won't though.
  • Holly59
    Posts: 2,586
    https://www.family-action.org.uk/content/uploads/2014/12/Sheffield-TaMHS-toolkit.pdf

    I hope this group from Sheffield would be able to add from their experience and knowledge . Offer training in ASD-PDA to schools .

    Page 98.

    Our training experience has allowed us to develop a range of training packages stretching from introductory training providing insight into factors impacting on emotional health and wellbeing as well as capacity to learn (covering topics such as brain development, basic attachment and the impact of poor early life experiences) through to more specialised training that develops knowledge and awareness of ADHD, Bereavement, Pathological Demand Avoidance (PDA), Depression and Attachment amongst others. In addition to increasing awareness, the training seeks to include strategies and suggestions for ways of addressing or responding to these areas of need.

    Pat xx

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