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Someone's PDA Petition to UK Government
  • "Raise awareness and understanding of PDA among health care professionals"

    https://petition.parliament.uk/petitions/202680

    All sign and share widely!
  • Holly59
    Posts: 2,578

    "Raise awareness and understanding of PDA among health care professionals"

    https://petition.parliament.uk/petitions/202680

    All sign and share widely!



    https://petition.parliament.uk/petitions/202680

    Wow it's over 1,000 signatures in two days . The Petition is on the PDA Society FB and Twitter Pages to share

    .http://www.parliament.scot/GettingInvolved/Petitions/PE01625

    Scotland made it to Parliament first . Our system is different and anyone in the World can sign .

    Brilliant everyone is working together to get the awareness and recognition out there.

    Thank you PDA Society xx

    Pat xx
  • There was an older one to Parliament in 2014: https://petition.parliament.uk/archived/petitions/57807 which got 2,248 signatures. Hence we need to ensure current petitions get a massive amount more signatures so as not to close down without action. All those signatures are for nothing otherwise! So share, share and share this one as they don't consider it without a minimum (high) amount of signatures (the Scottish system is at least fairer that way).
  • https://petition.parliament.uk/help

    How petitions work

    You create a petition. Only British citizens and UK residents can create or sign a petition.
    You get 5 people to support your petition. We’ll tell you how to do this when you’ve created your petition.
    We check your petition, then publish it. We only reject petitions that don’t meet the standards for petitions.
    The Petitions Committee reviews all petitions we publish. They select petitions of interest to find out more about the issues raised. They have the power to press for action from government or Parliament.
    At 10,000 signatures you get a response from the government.
    At 100,000 signatures your petition will be considered for a debate in Parliament.



    You can see what a massive mountain people have to climb to even get a response, letalone a debate. Ridiculous system. Marginalised groups lose out because of this.
  • Holly59
    Posts: 2,578

    There was an older one to Parliament in 2014: https://petition.parliament.uk/archived/petitions/57807 which got 2,248 signatures. Hence we need to ensure current petitions get a massive amount more signatures so as not to close down without action. All those signatures are for nothing otherwise! So share, share and share this one as they don't consider it without a minimum (high) amount of signatures (the Scottish system is at least fairer that way).



    Agree it's fairer signatures wise but the responses to our submissions by many has been extremly poor and extremely frustrating . LA where PDA is recognised have not responded . We are aware of LA who have said they don't recognise yet children have had a diagnosis !

    It would be interesting where the higher signatures are , is PDA not recognised there . Hopefully all the support groups will ask their members to sign .

    Three votes from the Hebrides ! The awareness is definatly spreading . Hopefully more votes from Scotland soon .



    Pat xx

  • People are so loathe to stand out from the crowd aren't they. And because this is about access to diagnoses and there are costs attached, most of the professionals stick together sitting on the fence or opposing it. Shocking.
  • Holly59
    Posts: 2,578

    People are so loathe to stand out from the crowd aren't they. And because this is about access to diagnoses and there are costs attached, most of the professionals stick together sitting on the fence or opposing it. Shocking.



    People could always Petition the UK Government to make it fairer for the lesser know issues like PDA using the Scottish Government System as an example. Just don't mention that dire naff website to make your submission . Demand avoidant isn't the word . It was a total embarrassment .

    Snag to that is that more chance of issues being exposed .Cant have that can we.

    I am going back to Petition the Scottish Government in the near future on a specific subject to do with our Petition .

    They thought they had silenced me . They have just given me all the evidence I needed .

    It's like the "A" Team , " I love a plan when it comes together " .

    Pat xx
  • Demand avoidant isn't the word. It was a total embarrassment.



    The same with ASD generally isn't it. They say autistics are rigid and stuck on a topic, but the rigidity of professionals who won't deviate from their topic of denial and tick-box responses and opinions, beggars belief. Talk about unable to think outside the box. The world could use many more autistics for that reason!
  • Holly59
    Posts: 2,578

    "Raise awareness and understanding of PDA among health care professionals"

    https://petition.parliament.uk/petitions/202680

    http://petitionmap.unboxedconsulting.com/?petition=202680

    Shows the signatures for each area .

    All sign and share widely!



    The Petition has reached 1750 signatures . Please keep spreading the word . It's an opportunity to get ASD-PDA discussed at Westminster .

    Thank you to all those who have signed .xx

    PS

    There are TWO. signatures where I live . Hmmmm strange that in my town alone there are EIGHT cases of ASD -PDA , one with a formal diagnosis .

    Most days I feel as though I am batting my head against a brick wall. Sighs .

    It's the days when people DO listen that makes this journey worth it .

    Pat xx





  • gerry
    Posts: 46
    I've signed the Petition and hope it is as successful as the Scottish Petition in raising awareness, acceptance and understanding of PDA.

    Best wishes to everyone

    Geraldine
  • Holly59
    Posts: 2,578

    gerry said:

    I've signed the Petition and hope it is as successful as the Scottish Petition in raising awareness, acceptance and understanding of PDA.

    Best wishes to everyone

    Geraldine



    Thank you !

    Knew we could count on your vote and support as always.

    Pat xx

  • Holly59
    Posts: 2,578

    gerry said:

    I've signed the Petition and hope it is as successful as the Scottish Petition in raising awareness, acceptance and understanding of PDA.

    Best wishes to everyone

    Geraldine



    http://www.pdaanz.com/

    Did you think all those years ago with a handful of members and a few lines on the internet ASD-PDA would reach this stage !!

    Might eventually sink in Worldwide PDA does exist .

    Thank you Gerry , will never forget your amazing support with our Petition .

    I think I would be pushing my luck asking could I attend a training day in Australia . If someone offered you a free airline ticket you could always give a lecture on your experiences over the years .

    Pat xx

  • gerry
    Posts: 46
    Thanks Pat.

    I know, sometimes I just can't believe how far we've come since those early days. Although the first conference in London was sold out and that was such an amazing day, as Elizabeth, Lorna Wing and Phil were all there.

    I am extremely proud to have played a small part in helping to progress awareness of PDA and I sometimes pinch myself when I see how far things have progressed. It really hit home when you attended a PDA training day in Barrhead, just a few miles from where I live. It made me think back to the day we all attended the ENC to have Cara's diagnosis confirmed by the expert herself, Elizabeth Newson and she became the first child in Scotland to receive a PDA diagnosis.

    My school motto was "mighty oaks from small acorns grow" and I think that's such an appropriate saying in relation to how far PDA awareness and understanding has grown. And also in relation to what a fantastic resource the website has become, changed days since i sit up the yahoo group and sent postage stamps to Jan Seabounre to help with distributing the first newsletters for the PDA Contact Group.

    I send my warmest best wishes to each and everyone of the parents involved today and to each and every parent who will be involved in the future, when it comes time for others to take up the mantle

    Geraldine Xx







  • Holly59
    Posts: 2,578
    https://petition.parliament.uk/petitions/202680

    It's now up to 2,300 signatures . Keep signing and sharing please .

    Thank you to all who have signed so far .

    http://petitionmap.unboxedconsulting.com/?petition=202680

    Each LA is listed .

    Pat xx
  • Just to reiterate to keep this thread bumped up, that it needs 10k signatures just to get a response - it's vital that the petition keeps being shared and people encouraged to sign.
  • Holly59
    Posts: 2,578

    Just to reiterate to keep this thread bumped up, that it needs 10k signatures just to get a response - it's vital that the petition keeps being shared and people encouraged to sign.


    How true and welcome back !!

    https://lovepda.wordpress.com/2017/10/27/snap-shot-of-pathological-demand-avoidance-syndrome/

    This article has just been posted on the FB page . Another example of how difficult life can be .

    Pat xx
  • :-*

    I did of course walk in the door to a barrage of drama as expected. Tears, yelling, complaining etc. Back to real life eh.

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