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National campaign to get PDA recognised
  • Hello, I'm posting on behalf of the national campaign to get PDA recognised by health care professionals. We are working alongside the PDA Society and have the support of Phil Christie.

    We only need 1700 signatures to ensure that a government response . is received. Please sign rhe petition today as the.deadline is approaching.
    https://petition.parliament.uk/petitions/202680

    We are also looking to contact as many Mps as possible to request them to proactively challenge their local clinical commissioning group to direct and support local clinicians on understanding, supporting and diagnosing ASD/PDA

    Please comment with your area and MP name if you are willing to support the campaign and submit for your local constituency.

    Thanks

    Alison
  • RhanHRhanH
    Posts: 646
    Hi Alison, Thanks for posting on the Forum. I think it's fantastic how much support you have been able to generate already and I hope we can continue to help you here.

    I've already been to talk to my MP, Dame Cheryl Gillan, who as I'm sure you know is the current chair of APPGA! I'll also be contacting her again.


    For anyone who has not yet signed this petition please do make the effort, it really doesn't take long and your support could help reach 10,000 signatures. Please also remember to ask your family and friends for support. Thank you!

  • Holly59
    Posts: 2,381

    Hello, I'm posting on behalf of the national campaign to get PDA recognised by health care professionals. We are working alongside the PDA Society and have the support of Phil Christie.

    We only need 1700 signatures to ensure that a government response . is received. Please sign rhe petition today as the.deadline is approaching.
    https://petition.parliament.uk/petitions/202680

    We are also looking to contact as many Mps as possible to request them to proactively challenge their local clinical commissioning group to direct and support local clinicians on understanding, supporting and diagnosing ASD/PDA

    Please comment with your area and MP name if you are willing to support the campaign and submit for your local constituency.

    Thanks

    Alison



    Hi Alison ,

    http://www.parliament.scot/GettingInvolved/Petitions/PE01625

    Can I just emphasise in Scotland a formal diagnosis of ASD -PDA is NOT required it’s needs based . We are waiting for the follow up report from Ministers .

    If you are told a formal diagnosis is required , teachers are in breech of the Additional Support for Learning Act . GIRFEC and the Wellbeing Wheel .

    If any parent requires further information please contact Enquire .

    http://enquire.org.uk/

    I doubt my present MP will be helpful, it’s was thanks to his appaling behaviour on a number of occasions that I landed up Petitioning the Scottish Parliament .

    Pat xx
  • Holly59
    Posts: 2,381
    https://en.m.wikipedia.org/wiki/Homosexuality_in_DSM

    I attended Ruth Fidlers PDA Education Seminar yesterday . I never knew this fact .

    How many years before ASD-PDA is added formally to the DSM.!!!

    Please sign the UK Petition to help families throughout the World .

    Scotland has started the ball rolling let others follow our example .

    Pat xx
  • PDA_ASD_Parent
    Posts: 4,015
    And grief is in the ICD: http://www.icd10data.com/ICD10CM/Codes/Z00-Z99/Z55-Z65/Z63-/Z63.4 "Disappearance and death of family member" (you couldn't make it up)

    Also gaming addiction (!!!): http://www.techaddiction.ca/internet-gaming-disorder-dsm-5.html is being put in the DSM.

    And yet both are behavioural of temporary nature. Yet a specific lifelong neurodevelopmental disorder doesn't get a look-in. Yes, I know they can use the current variety of diagnostic codes in the ICD (or the DSM ASD code) to diagnose PDA as it stands, but the lack of any description of it as a subtype is causing no end of trouble for families where lack of specific recognition of the subtype in manuals is preventing recognition letalone diagnosis.
  • RhanHRhanH
    Posts: 646
    The petition is at 8835. Please keep sharing and don’t forget to sign if you haven’t already!

    https://petition.parliament.uk/petitions/202680

  • Also this one which is specifically about diagnosis, not just recognition:

    "Commission PDA at CAMHS"

    https://you.38degrees.org.uk/petitions/commission-p-d-a-at-c-a-h-m-s

    And yet amazingly only has 628 signatures. Diagnosis is the most important thing!
  • Holly59
    Posts: 2,381
    The UK Petition is now at 9009!

    http://www.parliament.scot/GettingInvolved/Petitions/PE01625

    This is the Statemennt from the Scottish Petitions Committee . A report will follow .

    9 November 2017: The Committee agreed to close the petition under Rule 15.7 of Standing Orders on the basis that the Scottish Government is clear in its view that PDA is covered within ASD diagnosis; this position is in line with the international standards of best practice as established in ICD-10 and DSM-5, and is reflected in its national guidance SIGN 145 which has been developed by a multidisciplinary working group which has taken account of the scientific literature and evidence; work is also ongoing in relation to the Scottish Strategy for Autism, and NES has provided additional resources and support tools for the health and social care workforce. In closing the petition, the Committee agreed to write to the Scottish Government to indicate that PDA awareness should be included in the ongoing work on the Scottish Strategy for Autism. Link to Official Report 9 November 2017

    You can watch this on YouTube .

    The SCOTTISH GOVERNMENT is clear in its view that PDA is covered within ASD diagnosis . What the Scottish Government are going to do is to follow up with a report ( no timeline ) , and be included in the ongoing work on the Scottish Autism Strategy .

    The Additional Support for Learning Act 2004 states “ A Formal diagnosis is NOT required,, it’s needs based .

    As long as a Parent recognises that their child has PDA that’s all you need otherwise teachers are breaking Education Laws in Scotland .including the Wellbeing Wheel and GIRFEC ..

    During my research I found evidence of PDA being discussed in the Scottish Parliament since 2006. It’s linked to the PDA Society in the Autism Toolbox for Teachers . The first case recognised in Scotland was diagnosed by Prof Newson at Nottingham in 1998.

    Long term it’s beneficial for lots of reasons to get a formal diagnosis if that’s possible .

    https://www.pdasociety.org.uk/families

    https://www.pdasociety.org.uk/education

    https://www.pdasociety.org.uk/resources

    https://www.pdasociety.org.uk/adult-life

    These are just a few of the links available under the Menu Link .

    fisheralison2018 if you contact me I will help you with information , I have PM you my details .

    Unless you add the Scottish Petition you will get the same “drivel “, it’s not in the Manuals it dosernt exist “ , we received from Ministers at the start of the Scottish Petition . Our Petition is crucial to your evidence .

    Teachers using PDA Stratagies and seeing the results for themselves will add vital evidence to those Clinicians who disagree with PDA .

    https://www.pdasociety.org.uk/professionals/survey-of-professionals

    The PDA survey shows the dreadful lack of understanding throughout the system . Don’t forget most of the Ministers making these decisions have no understanding of ASD whatsoever .

    Pat xx

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