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Not yet formally diagnosed
  • It is strongly suspected by healthcare professionals that my son has PDA, to get him to go and see any professional has been very difficult due to refusal and running away. We really want to get him formally diagnosed which we can do privately (no NHS suport appears to be an option for us ! ) but we cant get our son to go for an assessment - anyone else had this problem ? And if so what did you do ? He has GCSE’s in 2 years and school is a real problem for him, so I worry for his future ! we are lucky that the school does listen and supports the best they can, but we do appreciate there is only so much they can do with put a formal diagnosis. Any advice would be appreciated.
  • Holly59
    Posts: 2,586

    It is strongly suspected by healthcare professionals that my son has PDA, to get him to go and see any professional has been very difficult due to refusal and running away. We really want to get him formally diagnosed which we can do privately (no NHS suport appears to be an option for us ! ) but we cant get our son to go for an assessment - anyone else had this problem ? And if so what did you do ? He has GCSE’s in 2 years and school is a real problem for him, so I worry for his future ! we are lucky that the school does listen and supports the best they can, but we do appreciate there is only so much they can do with put a formal diagnosis. Any advice would be appreciated.



    Hi,
    The short answer is “ Yes “ .

    There are professionals willing to travel to home addresses , Help4Psychology I believe travel but within a limited area .

    CAMHS should make adjustments and come to the home address if necessary.

    There is also a Map which is quite useful . If you look on the top right hand side there is a tiny arrow , click that and a list comes up . Search through those and some of the Clinicians listed do travel within the UK . Check with the PDA Society first before you book anything as they only recommend 4 Centres

    These are listed on Pg 36 of the Clinicians Guide .

    .https://www.zeemaps.com/map?group=1558150

    You could always try for an out of area referral on the NHS

    Laura Kerbey from PAST also works from Skype and email and is really helpful.

    https://www.positiveautismsupportandtraining.co.uk/laura-kerbey

    https://www.pdasociety.org.uk/families

    I presume you are in England , Scotland you do not need a formal diagnosis , our Education Laws are different .

    Look for your local support group too .

    https://www.pdasociety.org.uk/resources

    Good Luck

    Pat xx



  • webbwebb
    Posts: 2,566
    Hi and welcome to the forum

    The only place I know for sure that will travel to your home to do the assessment is The Lorna Wing Centre, Bromley, Kent but it is very expensive. You would need to phone and ask for costs and waiting times etc.

    There are other diagnostic centres you can contact to ask if they will come to your home see this link (about half way down)

    https://www.pdasociety.org.uk/families/diagnosing-pda


    Some parents have to 'dangle the big carrot' in order to get their child to go to a diagnostic centre or to comply with an assessment at home.
    What would your son like at the moment? A bike, a PlayStation, a trip to London - there must be something he wants that you can promise to give him if he complies with an assessment.

    Have you tried to ask him why he doesn't want to have an assessment. Have you explained what would be involved?`

    Please keep posting so we can give you more support.
    Paula
  • Holly59
    Posts: 2,586
    http://www.spectrum-psychology.co.uk/clinical-diagnostic-services.html

    Although not on the recommended list by the PDA Society , reading the information on his website this guy travels to clients houses . As Webb has said it will be expensive .

    I call this method “ enhanced encouragement “. Only to be used if all else fails .

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