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Help needed pls
  • Ocean
    Posts: 2
    Hi,
    I'm new here, not introduced myself as low on spoons and need specific help.

    Son 6. I've started down the route of diagnosis - encouraged by his school who were struggling with his behaviour.
    Hit an immediate dead end and need some advice as to what to do now.

    Specialist Registrar with community child health dept, Somerset saw us for about 3 mins. Based on a discrepancy between the communication checklist at home and school she decided son doesn't meet criteria for ASC. (I think this is nonsense). She went on to say she would support a diagnosis of PDA but it is not one she can give.
    Further letter from the department said PDA is not recognised in Somerset and therefor he is discharged from the service.

    PDA is part of ASC, so this makes no sense. Also the ASC assessment didn't even get off the ground - just dismissed on the grounds of my son being very articulate with teachers he's spent 2 yrs building a relationship with in an environment that is very familiar and structured!

    Where do i go from here?
  • webbwebb
    Posts: 2,557
    Hi, welcome to the forum.

    Just wondered whether you have seen this excellent section on the website. It is great at showing a parent how to gather evidence before you go to the GP/Paediatrician. Although you have been referred once, it sounds like you will definitely be referred again in the future by school (or yourself) -

    https://www.pdasociety.org.uk/families/diagnosing-pda

    (half way done the page - Collating your evidence!)

    There are a few other ways to look at obtaining a diagnosis -
    If it is the school who are experiencing difficulty with your son's behaviour, the school should definitely refer your son to the Educational Psychology Service (LA) or the Autism Outreach Team (if school feel he is on the Autism Spectrum). There is also the SENCO - Special Educational Needs Coordinator at your childs school who could help you to pin point your childs SEN difficulties and give you a report to take (with your own evidence) back to the GP to be referred again!


    So, turn the problem back on the school and ask them to help you/refer your son for help from Ed Psyc (SEN Dept) or back to Health Dept ie GP.


    It could take quite a while to gather your evidence from scholl, yourself and any other professionals, so by the time you have gather all info it may be 6-12 months before you ask the GP to refer you again to Community Paediatrician.


  • Thank you :)

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