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Autism and PDA
  • mac
    Posts: 4
    Hello all,
    New to this site so please bare with me!

    I have a 9 year old son, his diagnosis is Severley Autistic with hyperactivity. However, his need to control resulting in violence has led to School expulsion. The "Symptoms" for PDA are him to a tee, that is, when he is at School (Or should i say, was!)

    Although he tries to control his environment at home, he is not violent with it and takes instruction.

    I am aware of the argument that many Autistic Children have PDA tendencies and that it is not a seperate issue, i cant work out if he is trying to control because his anxiety levels are so high (Thus if he controls he can feal secure) or whether he is naturally controlling and when he cant it results in violence (That is, the PDA is in charge).

    He has just been to an assesment at an autistic School which he failed as they say that the PDA in him makes him unsuitable in their environment. (he trashed the School, the staff and the School cat as well)

    I am now looking at PDA based teaching for an Autistic Child as i believe that if we can in some way get around his controlled tactics then we might be able to teach him.

    Has anybody else got any experiences of this?

    Does anybody know of any good PDA based teaching within 50 miles of Coventry?

    Thanks for your time
  • mango69
    Posts: 967
    Hi there mac and welcome to the site,
    I don't know specifically of anywhere in Coventry that is 'good' with PDA - its hit and miss all over the country. It might be worth telephoning the Elizabeth Newson Centre for advice as they may be able to help. I think the best thing you could do is an internet search on all the special schools in that area and ring them up yourself, asking them if they have any experience of PDA. Have the autism school suggested anywhere else? You are now a parent member so have a look at all the forums in the parents section - especially regarding PDA and autism.
    Please let us know if you find anywhere suitable and I hope you find the site useful.
    Margo
  • mac
    Posts: 4
    Hello Margo,

    Thanks for that. The one i went to was the Higashi approach to Autism, based on the Boston School. The physical activity and tight structure at the School would have suited him, however the tight discipline and having to following instructions in a Military style, wouldnt!.

    I am looking at two in the next couple of weeks in the Burton area, i'll let you know how i get on.

    All the best

    Mac
  • Hope
    Posts: 23
    Hi Mac,
    I have a book of schools all over England but haven't found one that specifies PDA. You could try the couple in East Midlands on the web site www.specialneedsuk.org
    who cater for Autism etc. Ask by telephone as they probably have individual programmes and would cater for the child's particular needs in a small school if given the right info. about the complex issues. All the best
    Hope
  • Amanda
    Posts: 281
    In our experience parents are told not to mention PDA when looking at schools because when they do the schools then do their utmost to put them off or build a case as to why the school isn't suitable for the child. Its a horrid situation and one which drives me mad but it is a reality it seems. The school that my son is at has a good understanding of PDA, its a special school for children with Autism, but I'm not sure even they would want it advertised that they have experience handling PDA kids either and I'm sure they would NOT see it as within their remit to accept a child whos diagnosis is just PDA.
  • webbwebb
    Posts: 2,566
    Hi mac

    Really pleased you found this forum, welcome to the site. I hope you find lots of support and info here.
    I would also suggest you look for a school that is for children with Autism as where there are Autistic children there are bound to be children with PDA/PDA traits.

    My son was diagnosed Autistic at 4, he went to an MLD special school, they couldn't cope with him so he was transferred to a school for Autistic children when he was 9. The school for Autism then told me my son definately had PDA, they have been happy to educate him(no exclusions etc.) and he is very violent to staff and children.

    Keep looking at schools for Autism, show them his Statement, describe your child but I'm not sure if you should mention PDA before he starts.
    I did mention that I thought my son had PDA and Autism at our 1st visit and they still took him!

    What kind of school expelled him?
    None of us know of a school for PDA children in the UK, if we did we would have our children there tomorrow!

    Have a good search around for Autism specific schools and ask the school lots of questions.

    Paula
  • Mac
    Sorry no specific advice about schools with PDA experience but wanted to say hello and welcome to the forum!
  • mac
    Posts: 4
    Thank you very much for your replies, it has been a help.

    There is no provision for Autism in warwickshire so he will be going out of County, not bad going from the LEA of one of the richest Counties!

    He has been in an SLD School since he started, The staff were really good in the original school. It then amalgamated with an MLD School. He was always controlling, but manageable. The School was predominately MLD and things went from bad to worse. The result was that he was permanantly excluded as soon as the Headmistress realised the LEA would fund an external placement.

    She even sent his things back via the post, how is that for a compassionate and caring outllook. I will make sure that will come back to haunt her.

    So the fight is on, i have identified three possibles, just a matter of wether there are places and wether he gets through the assesments.

    Although SLD and severly Autistic, he has good skills that equate to his age range, that is what makes it so difficult. If i can find someone who can teach him through the control he needs to have, i will be on to a winner!

    My head hurts, i need a good night out!
  • Amanda
    Posts: 281

    Although SLD and severly Autistic, he has good skills that equate to his age range, that is what makes it so difficult. If i can find someone who can teach him through the control he needs to have, i will be on to a winner!

    My head hurts, i need a good night out!



    I wish you luck, wish we were closer I'd join you! :D
  • dirtmother
    Posts: 897
    This is very interesting since we are looking likely to opt for Warwickshire LEA rather than our home LEA for our children's secondary education! (Because of individual schools and transport rather than any other reason) I understand that there are nine children diagnosed with PDA there, so it is at least acknowledged. A good autism service isn't necessarily a good PDA service either.

    However, we are only looking at mainstream placement as his learning difficulties are specific rather than MLD or SLD - and we do need to check out funding as he will need support (I'm not sure whether you are saying that your son actually does have SLD or MLD if his skills are age appropriate, but the overarching disorder means that mainstream can't accommodate him well???).
  • There currently are several students at Bladon hOuse School with PDA - all seem to be doing OK! (location - near Burton on Trent)
  • Hi everyone,
    have posted an intro into the intro's thread, but a quick re-cap - my daughter is just 15 and has had her previous diagnosis of Asperger's changed to PDA in the last month, following her permanent exclusion from a specialist residential school in Somerset, that specialised in Asperger's (allegedly - I thought it was rubbish after the first month for everything!)

    We live in Warwickshire, and the provision is horrendous, the education department is inclusion obsessed and seem to think that if they make things difficult enough that parents will just put up and shut up (sorry if this sounds a bit bitter - after 6 years of fighting I am a bit!)

    This is from the National Autistic Society's 'Make School Make Sense' Campaign and this is Warwickshire's response to the question:Do you provide a range of provision which reflects the diversity of needs of children with autism in our area?

    The principle defined by The National Autistic Society that every child with autism should have access to a diverse range of educational provision aligns closely with Local Authority aspirations. It is Warwickshire's policy that pupils with autism, wherever possible, access a placement at their local community school and any additional support is determined by need. The well-equipped array of special schools offer an alternative choice to those families who feel their child's needs would be best accommodated in more specialised environs.

    This is not my experience, but my daughter is superficially very able, which is why she was diagnosed so late.

    I myself am almost considering moving out of Warwickshire so I don't have to fight the same people all over again! If I didn't have a younger daughter who is happy and settled at her secondary school(she doesn't have any SEN, well very mild dyslexia) I'd be off like a shot!

    Karen
  • jelv
    Posts: 185

    GreenAmber said:


    have posted an intro into the intro's thread, but a quick re-cap - my daughter is just 15 and has had her previous diagnosis of Asperger's changed to PDA in the last month, following her permanent exclusion from a specialist residential school in Somerset, that speicalised in Asperger's (allegedly - I thought it was rubbish after the first month for everything!)



    Farleigh College or another one of the Priory group?

    If so, you're the second person this week I heard having problems with them - and I'm aware of several others in the past.
  • Farleigh!

    The head teacher left suddenly a couple of months ago, and before dd was excluded 5 other pupils had been excluded within a term. It was their favourite method of discipline!

    Hey ho - better not say any more in case I get in trouble - I've got enough of that already!! :roll:

    Am looking at Forum, a Cambian school - any inside information on that one at all?? Please??

    Karen -x-
  • jelv
    Posts: 185
    Our daughter is at Grately House (another Cambian school), very happy and doing very well. Have you been in touch with OAASIS (the helpline run by the Cambian group)?

    http://www.oaasis.co.uk/

    01590 622880 - 10am - 4:30pm Monday to Friday
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