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Scottish Borders Mental Health Stratagy .
  • Holly59
    Posts: 2,586
    https://www.scotborders.gov.uk/news/article/2198/scottish_borders_mental_health_strategy_is_published

    Start recognising ASD - PDA throughout all sections of Scottish Borders . All staff to be properly trained in ASD .

    The understanding of ASD in the Borders is shocking. .

    They are right about a “ Vision “.

    ASD is a neurodevelopment disorder . The correct diagnosis and treatment prevents mental health issues .
  • A positive step one hopes. Here is the actual strategy document:

    http://www.nhsborders.scot.nhs.uk/media/521799/mentalhealthstrategy17.pdf

    There are other related areas which currently have strategies which take account of mental health including children & young people, early years, autism and dementia, as such, these areas of work will not be within the scope of the mental health strategy but will be cross referenced where relevant.

    P4

    Improve treatment for people with mental illness and co-occurring issues e.g. addictions, learning disabilities, autism, criminal justice

    P17

    Improve services for people in groups of unmet need e.g. trauma, autism, ARBD

    P17

    The Scottish Strategy for Autism 2011

    P25

    Autism Strategy

    P26

    They're not quite getting it are they. The above is the sum total of every single mention of autism in the document and the last two are names of policies referenced. I searched on ASD, autistic and autism. I also searched on PDA and pathological and neither were mentioned anywhere.

    Considering that 1 in 10 users of CAMHS are autistic, it's not good enough even if it's a start.
  • And nothing about diagnosing ASDs.
  • Holly59
    Posts: 2,586
    The interesting thing is until September last year as far as we are aware we had not heard of an ASD-PDA case diagnosed within the Borders by the NHS . Folks were travelling to the likes of Help4Psychology for a private diagnosis if they could find the funding .

    I know of one place in Fife who will give an ASD-PDA diagnosis but generally it’s not recognised . Issues in Dundee too .

    My youngest had ADHD when he was young that was not recognised by CAMHS . No evidence . It’s was blatent !

    Adult Services diagnosed within a few weeks .

    If the correct diagnosis , techniques and support were in place the reliance to medicate would substantially be reduced in my opinion.
  • Holly59
    Posts: 2,586
    https://www.medscape.com/viewarticle/726850

    This needs massive research too .

    We are now aware that women taking antidepressants during pregnancy are at a higher risk of having an Autistic Child .

    https://www.pdasociety.org.uk/forum#/discussion/6042/scottish-petition-at-parliament-antidepressants

    The whole drug situation needs a massive research programme . It’s terrifying that unlicensed drugs are being prescribed to children without any real idea of long term side effects .
  • It makes it all the worse when parents are being blamed, for things that are caused by the system, such as vaccine injury, pharmacological side-effects and injury.

    Can't see why those in power can't get it that early recognition and intervention is key, they cause the whole escalation of peoples' problems and it's far more expensive the way they are currently doing things.
  • Holly59
    Posts: 2,586

    It makes it all the worse when parents are being blamed, for things that are caused by the system, such as vaccine injury, pharmacological side-effects and injury.

    Can't see why those in power can't get it that early recognition and intervention is key, they cause the whole escalation of peoples' problems and it's far more expensive the way they are currently doing things.



    How very true , early intervention is the answer . We have heard time after time but we know ourselves from experience that’s just not happening .

    http://www.bbc.co.uk/news/uk-scotland-south-scotland-41667572

    This is the latest press article . Never changes .
  • Holly59
    Posts: 2,586

    It makes it all the worse when parents are being blamed, for things that are caused by the system, such as vaccine injury, pharmacological side-effects and injury.

    Can't see why those in power can't get it that early recognition and intervention is key, they cause the whole escalation of peoples' problems and it's far more expensive the way they are currently doing things.



    https://www.thesouthernreporter.co.uk/news/council-says-sorry-for-failings-in-probe-into-bullying-at-borders-school-1-4136384
  • Holly59
    Posts: 2,586

    It makes it all the worse when parents are being blamed, for things that are caused by the system, such as vaccine injury, pharmacological side-effects and injury.

    Can't see why those in power can't get it that early recognition and intervention is key, they cause the whole escalation of peoples' problems and it's far more expensive the way they are currently doing things.



    http://www.bbc.co.uk/news/uk-scotland-42917452

    Pat xx
  • It's a sticking plaster isn't it and one with side-effects. Get to the root, ensure people are correctly diagnosed in the first place, not just doling out tablets.
  • Holly59
    Posts: 2,586

    Hello, I'm posting on behalf of the national campaign to get PDA recognised by health care professionals. We are working alongside the PDA Society and have the support of Phil Christie.

    We only need 1700 signatures to ensure that a government response . is received. Please sign rhe petition today as the.deadline is approaching.
    https://petition.parliament.uk/petitions/202680

    We are also looking to contact as many Mps as possible to request them to proactively challenge their local clinical commissioning group to direct and support local clinicians on understanding, supporting and diagnosing ASD/PDA

    Please comment with your area and MP name if you are willing to support the campaign and submit for your local constituency.

    Thanks

    Alison



    Hi,
    Welcome to the Forum ,

    http://www.parliament.scot/msps/constituency-maps.aspx

    This will give you a start as to MP . MSP in Scotland .

    I was the main Petitioner for the Scottish Petition .

    Our Education Laws are different here . In Scotland a formal diagnosis of ASD - PDA is NOT required under the Additional Support for Learning Act, it’s needs based . GIRFEC means exactly that , Get it right for every child , and the Wellbeing Wheel means a child should feel nurtured and well respected . They also have a duty to protect a child’s mental health . That’s means using PDA Stratagies .

    This is how our Petition started , I was told since S2 that I needed a diagnosis to get any support , found out too late I didn’t need a diagnosis . It took me nearly three years to get to the Petition Stage , the Education Laws sitiation has never been addressed to this day . What started as one complaint after reading Mary’s article in the Press about PDA , that’s how she became involved . I researched PDA and it was a lightbulb moment .

    There were numerous Laws broken in my case including illegal Exclusions for months without any paperwork for both boys and they had a legal duty to refer.

    It does not matter if CAMHS don’t recognise PDA , if a teacher does not use PDA Stratagies they are in breech of these Education Laws . You do not need a diagnosis for a CSP either . Neither do you need one for DLA or PIP but I would t try applying without support .

    There is a lot of work going on behind the scenes which I don’t believe you are aware of .

    If you listen to the final outcome of the Petition there will be a follow up report and PDA information will be spread through this report to Education and Social Care etc .

    The information you had on the list on the pdaawarenessscotland site as to which areas would recognise PDA was inaccurate in some instances .

    We now have the situation in the Borders where Adult Services LD Mental Health Team have given a ASD-PDA Diagnosis last September but as far as we are aware CAMHS and Adult Services have not given a diagnosis . This is also happening in other areas , even within a CAMHS , one Clinician will say yes it exists others say it doesn’t .

    My youngest son is at College , it’s me a mum who recognised the PDA , the College are using PDA Stratagies . If they didn’t they would be in breech of these Laws .

    The Education Laws in Northern Ireland are similar .

    Unfortunately this “ No diagnosis “ is being used as a double edged sword because Parents are not finding out the extent of their child’s issues.

    Will PM you .

    Pat xx
  • Holly59
    Posts: 2,586
    Hi Alison ,

    The best place to get information about ASD - PDA is on this Website and Forum , there is a weath of information .

    https://www.pdasociety.org.uk/forum#/discussion/5598/stop-press-nhs-clinician-in-scotland-diagnoses-and-adult-with-pda-presentation

    This is just one of the Glasgow Clinicians who will diagnose PDA . There are others who will diagnose . Some give a EDA Diagnosis .

    https://www.autismac.com/

    This is a new very proactive player in the ASD - PDA World . They will give a private ASD -PDA diagnosis . They are not one of the four recommended by the PDA Society at this stage but are gaining an excellent reputation within the ASD field both in research and fighting the cause .

    https://www.pdasociety.org.uk/families

    If members ask on the Pdaawarenessscotland site they will be sent a list of what they are entitled to Education wise in Scotland .

    This is why the PDA Society could not keep track of who would give a diagnosis . Clinicians move , as I said earlier even within a CAMHS Clinicians can disagree .

    There is a specialist unit in Newcastle upon Tyne who will recognise and diagnose . As for your list I know somewhere in Fife who will recognise and diagnose .

    There are also a number of Petitions relevant to PDA going through the Scottish Parliament at present too .

    I hope this clarifies the situation . In Scotland a formal diagnosis is NOT required .

    Pat xx
  • Holly59
    Posts: 2,586
    http://enquire.org.uk/parents/assessment/

    If any parent is told otherwise I strongly suggest they contact Enquire .

    LEADScotland are brilliant . They have a mass of information available . Over 16s . The do not offer an Advocacy Service .

    https://www.facebook.com/likeleadscotland/

    Pat xx
  • Just to clarify in the rest of the UK a formal diagnosis is not required for EHCPs either, but despite all the "Every Child Matters" malarkey no school will follow strategies without a diagnosis in most instances, even though laws on SENs mean that schools have to support children's SENs.

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