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In this Discussion
- Holly59 March 2018
- PDA_ASD_Parent March 2018
- RhanH March 2018
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Can PDA Society do a Web Page on False Accusations Against PDA Parents?
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By the PDA child as a result of their condition or professionals as a result of misrepresentation or misunderstanding of PDA (or indeed to block access to resources, retribution etc.)? There is plenty of information out there about this going on and I refer to this article as part of that:
"Are Thousands of Children with Autism in Care for Erroneous Reasons? Quite Probably…"
https://www.pdasociety.org.uk/forum#/discussion/6093/are-thousands-of-children-with-autism-in-care-for-erroneous-reasons-quite-probably -
https://www.pdasociety.org.uk/forum#/discussion/6076/petition-stop-all-professionals-using-false-accusations-of-emotional-harm-msbpfii-on-sen-parents
This petition is now on 663 signatures (only started 6 days ago!) and is indicative that official pages regarding this issue are required. -
We agree that this is an important issue for many and would like to take this opportunity to remind everyone that there is information and links available about Health & Social Care via our support and advice pages:
https://www.pdasociety.org.uk/resources/Support-and-advice
We are continually reviewing the content of our website and thank you for raising this matter for our future consideration. -
Thanks RhanH, but having investigated your link all it has that is relevant is this:
"Family Rights Group – We provide advice to parents, grandparents other relatives and friends about their rights and options when social workers or courts make decisions about their children’s welfare.
Child Protection Procedures - A helpful factsheet from the Family Rights Group
Complaints about health and social care
The National Autistic Society - Complaints about health or Social Care provision and letter templates for contacting Local Authorities and the Department of Work and Pensions."
And none of that says anything about false accusations. Not only is it an intrinsic part of the condition as official research shows, for PDA children to falsely accuse their parents but there have been several desperate parents posting here about it. Not only that, but webb previously posted on one of the threads that there are calls on the PDA Society helpline about this issue.
Knowing there are many autism parents and autistic parents being falsely accused by professionals also, with all the serious consequences that flow from that, there is a dire need for information to appear on your website.
I can post things on the forum but the thread would soon slip down. I am not a moderator or trustee nor do I wish the responsibility (I don't have time for one) to constantly update a thread with information. Even if I did put up such a thread, it wouldn't be in an official capacity.
I believe the PDA Society has to provide families information on this very serious issue, to help raise awareness and provide an ongoing page where people can seek advice, but also make it clear that when false accusations come from a PDA child, this needs to be a vital part of any consideration by all professionals. Families are being torn apart in some cases.
It's too important to ignore. Please could the trustees make such a page as a matter of priority. -
"daughter making false allegations to police and SW"
https://www.pdasociety.org.uk/forum#/discussion/5385/daughter-making-false-allegations-to-police-and-sw -
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"Help please we need resources for our meeting"
https://www.pdasociety.org.uk/forum#/discussion/comment/32912 -
"Perhaps it wasn't CP!"
https://www.pdasociety.org.uk/forum#/discussion/comment/30185
(unwarranted child protection procedures due to ASD-PDA ignorance) -
"Help needed. Seeking contact order for granddaughter whose mother we believe has PDA""We tried writing to our daughter to resolve things, mediation services but she refused to communicate with us. We then went to the next stage and applied for a contact order. At the first stage in court we were handed papers from her alleging we had physically and emotionally abused her since she was young, all totally false. We were in total shock."
https://www.pdasociety.org.uk/forum#/discussion/5683 -
"Another Autism Family Targeted by the LA!"
https://www.change.org/p/robert-goodwill-mp-make-brighton-hove-city-council-and-all-las-cease-unlawful-section-47-ss-investigations/u/21565699 -
http://www.thepdaresource.com/files/An examination of the behavioural features associated with PDA using a semi-structured interview - Dr E O'Nions.pdf
One failed to appreciate why she couldn’t steal. Many tried to pass on the blame for their own bad behaviour to others, or denied things even when caught red handed. Several made false accusations (“She will make things up and tell tales to get her brother into trouble, and then wants me to tell him off in front of her”).
There is a wealth of evidence out there to make it highly justifiable and with plenty of information to include. -
EDS UK has a web page about false accusations of abuse because of the condition:
“Ehlers-Danlos syndrome - Child Safeguarding – Non- Accidental Injury (NAI) – F11/Munchausen by Proxy”
http://www.ehlers-danlos.org/patient-support/your-child-and-eds/child-protection-and-ehlers-danlos-syndrome/eds-child-safeguarding-non-accidental-injury-nai-f11-munchausen-by-proxy/ -
So does Tymes Trust (ME/CSF charity): http://www.tymestrust.org/pdfs/falseallegations.pdf
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Institute of Attachment and Child Development:
"WHEN A CHILD MAKES FALSE ALLEGATIONS (A SYMPTOM OF ATTACHMENT DISORDER)"
http://instituteforattachment.ong/when-a-child-makes-false-allegations-a-symptom-of-attachment-disorder/
(aside from AD being a condition resulting in this behaviour, ASD including PDA are all too often misdiagnosed as AD) -
Mumsnet thread about false accusations against parents in connection with child's condition:
https://www.mumsnet.com/Talk/special_needs/1263774-Stop-false-accusations-of-bad-parenting -
https://www.researchgate.net/publication/224764355_False_confessions_to_police_and_their_relationship_with_conduct_disorder_ADHD_and_life_adversity
(PDA is often diagnosed as a conduct disorder). -
"Teens Who Make False Claims That the Parent is Abusive"
http://www.onlineparentingcoach.com/2008/05/my-out-of-control-teen-has-set-of.html -
http://www.parliament.scot/GettingInvolved/Petitions/PE01673
Ongoing theme in this Scottish Petition .
There are numerous issues within this one topic . Bottom line is education of so many professionals who deal with people on the Spectrum .
There have been and still are some harrowing cases on the Forum . Training by the likes of Dr Judy Eaton to Judges , Police and many others is absolutly essential .
Pat xx
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The Trustees acknowledge that there is a need for information on this issue, but that it would need to be fully researched and written carefully.
The PDA Society is run on a purely voluntary basis by a few dedicated trustees supported by a group of hardworking volunteers. They are all parents to children or adults with PDA and thus have challenging home lives and other commitments in addition to their roles with the PDA Society. Due to these constraints, the trustees have had to make the decision to focus efforts on the PDA Society’s core activities (supporting those living and working with PDA, running our enquiry line, maintaining our website, training and fundraising) and on preparing for the Society’s conference in April 2018, and will be only able to consider your request/suggestion from May onwards.
Please be assured that we will add this issue to our list of items to be looked into after May 2018. -
The PDA Society is run on a purely voluntary basis by a few dedicated trustees supported by a group of hardworking volunteers. They are all parents to children or adults with PDA and thus have challenging home lives and other commitments in addition to their roles with the PDA Society.
All of that also applies to myself (twice over in the case of children with PDA). But on my own steam I set up and run a FB community and website with information and fact sheets as well as provide advice to ASD families, plus campaigning. I am also disabled several times over and autistic. I never blow my own trumpet so it takes a lot for me to say any of this. But this issue is extremely important. We cannot afford for anyone to sit on the fence about it.
As the PDA Society advice line takes calls from parents about this issue, I would have thought it also in the Society's own interests to have information and advice online. As one of PDA Society's core activities is training, this comes under that. Professionals need urgent training to avoid misunderstanding PDA and falsely accusing parents. Children with PDA suffer too when their parents are falsely accused.
I hope it's extremely soon that this issue is covered on the PDA Society website. -
This discussion has been closed until further notice, we apologise for any inconvenience this may cause.
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