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Her head is scrambled
  • So for the last 3 weeks things have intensified and my little lady who's 13 is not coping, episode of screaming saying her head is going to explode, lots of self stimmimg and clicking to try and self regulate. Where had 3 major melt downs and 2 have resulted in needed police support to keep her and us safe. She is having episode of being none verbal and its heart breaking to see her struggle so much, School are witnessing it all to and are as worried as we are. The triggers seen to be hormonal and the bombing of Siria the other week, war is her worst fear. We're waiting the introduction of a disability social worker were all banking on doors but at the moment everyone has a waiting time. She is on a knife edge please any ideas are gratefully received. Next appointment with the physiatrist is the 15th of May.
  • Holly59
    Posts: 2,586

    So for the last 3 weeks things have intensified and my little lady who's 13 is not coping, episode of screaming saying her head is going to explode, lots of self stimmimg and clicking to try and self regulate. Where had 3 major melt downs and 2 have resulted in needed police support to keep her and us safe. She is having episode of being none verbal and its heart breaking to see her struggle so much, School are witnessing it all to and are as worried as we are. The triggers seen to be hormonal and the bombing of Siria the other week, war is her worst fear. We're waiting the introduction of a disability social worker were all banking on doors but at the moment everyone has a waiting time. She is on a knife edge please any ideas are gratefully received. Next appointment with the physiatrist is the 15th of May.



    Hi,
    I am so sorry to hear of your very difficult situation .

    https://www.pdasociety.org.uk/families

    There is quite a bit information on here about Stratagies and Meltdowns . Hopefully Webb or RhanH will respond soon and PM you.

    The only other suggestion I have is Laura Kerbey from PAST who works from Skype and email .

    Have you tried your MP to escalate your case . If the Police are involved have you asked them to support you with an urgent referral before this date . If enough folks pressurised CAMHS they might have a Cancellation .

    Pat xx
  • webbwebb
    Posts: 2,582
    Hello, welcome to the PDA Forum

    Sometimes we can see why our children have become more anxious and distressed; sometimes we can't but whatever the reasons for the increased anxiety, overload, meltdowns and distress, your little lady needs some time to process what she is suffering and space to try to regain some control of her emotions/feelings.

    She may need some time and space to 'anxiety detox' ?

    Try to reduce all the requests, demands and expectations you normally make OR if you have reduced them to almost nil already, why not give her some time off school (or any clubs she attends)?

    If you are worried about attendance stats, then you could ask your GP for a sick note to hand to school?
    Mental Health ie anxiety is a very good reason to be ill from school!

    I hope that you can help her to reduce some of her anxiety until you have your apt with the Psychiatrist.
  • Thanks they have been reducing demands at school and at home we've been trying to let her have control where possible to help her feel more in control of things. We have a CETR meeting on Wednesday to try an keep her from a their 4 admission. Does anyone have any experience of CETRs and teir 4
    thanks
    Debbie

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