About Us

The organisation was first established in 1997 by parents of children with Pathological Demand Avoidance (PDA), a profile on the autism spectrum. The PDA Society became a registered charity in January 2016, and is run by a small board of trustees who are all parents of children with PDA.  We provide information, support and training for parents, carers, teachers and individuals with PDA.

The PDA Society in numbers

  • 18,500 social media followers
  • Over 20,000 website visitors per month
  • We’ve trained over 1,500 people across the UK
  • 1,050 people from around the world registered for our inaugural webinar
  • We support around 125 parents, adults and health/education professionals a month by email and phone
  • We’ve distributed booklets to 5,000 practitioners and 15,000 leaflets for parents & teachers in the last year alone

Our current activities include

  • Supporting discussions around people’s experiences of living with PDA
  • Providing support to those living and working with PDA
  • Campaigning for greater recognition of the PDA profile
  • Providing training to different audiences
  • Sharing good practice and supportive ideas
  • Developing new materials and tools which can aid understanding
  • Collaborating with medical professionals as part of the PDA Development Group
  • Organising an annual PDA day and biennial conference

Our future aims include

  • Working in partnership with other organisations, providing PDA expertise, in order to improve services
  • Helping to increase understanding through research

 Our ambassador

We use our giant panda ambassador to explain that individuals with PDA need very specific support (different from others with autism) in order to thrive and without it may have an increased likelihood of poor outcomes.

Further reading and information about PDA

Further information about PDA can be found in the following areas of our website

The National Autistic Society also provide an increasing amount of information about PDA.

Please note that the PDA Society are not making any recommendations nor is responsible for the content of sites and links that are external to the PDA Society.

Please contact us if you discover any broken links.