The PDA Society is the only specialist PDA charity in the UK. We are a small team, and all of us have a personal connection with PDA.
Our goal is to try and make life better for PDA people and their families – we believe that happy, autonomous lives are possible. Our strong commitment to research underpins every step we take towards improving understanding, support and outcomes for PDA people in the future.
We do this by:
- Raising awareness of PDA and providing high quality, trustworthy information.
- Providing training to parents and professionals to help them understand how to support PDA people, and to build safe, supportive connections.
- Offering tailored support to PDA people and their families through our enquiry line service, which is entirely staffed by PDA people or their carers.
- Consulting with and mobilising our community to influence positive change for PDA people.