About autism & PDAPDAadmin2020-07-18T00:38:42+01:00
About autism & PDA
PDA (Pathological Demand Avoidance) is widely understood to be a profile on the autism spectrum, though we are still at an early stage in our understanding and PDA research is in its infancy.
Whilst autism is a widely recognised term, our understanding of the full breadth and complexity of the autism spectrum is still evolving.
The National Autistic Society explains autism as “a lifelong disability which affects how people communicate and interact with the world”. Many autistic advocates embrace the social model of disability and view a range of neurological differences as being part of a natural human variation (neurodiversity).
We know that autism is dimensional – it involves a complex and overlapping pattern of strengths, differences and challenges that present differently from one individual to another and in the same individual over time or in different environments.
A cluster of traits can be called a presentation or a profile – in some cases this can be quite different from what some people think autism ‘looks like’.
This can lead to presentations in some people – including autistic women and girls, and PDA individuals – being missed altogether, misunderstood or misdiagnosed, which can in turn lead to poor outcomes.
All research points to early identification and tailored support being the best predictor of positive long-term outcomes. Recognising these profiles signposts the approaches or support that will be most helpful for each individual.
A PDA profile of autism means that individuals share autistic characteristics …
“persistent difficulties with social communication and social interaction” and “restricted and repetitive patterns of behaviour, activities or interests” present since early childhood to the extent that these “limit and impair everyday functioning” (according to the Diagnostic and Statistical Manual Fifth Edition (DSM-5))
often including a different sensory experience in relation to sight, smell, taste, touch, hearing, vestibular, proprioception and interoception.
… and also:
have a need for control which is often anxiety related
are driven to avoid everyday demands and expectations (including things that they want to do or enjoy) to an extreme extent
tend to use approaches that are ‘social in nature’ in order to avoid demands