About autism & PDA

PDA (Pathological Demand Avoidance) is widely understood to be a profile on the autism spectrum, though we are still at an early stage in our understanding and PDA research is in its infancy.

Whilst autism is a widely recognised term – defined by the National Autistic Society as “a lifelong disability which affects how people communicate and interact with the world” – our understanding of the full breadth and complexity of the autism spectrum is still evolving.

We know that autism is dimensional – it involves a complex and overlapping pattern of strengths, differences and challenges that present differently from one individual to another and in the same individual over time or in different environments.

A cluster of traits can be called a presentation or a profile – in some cases this can be quite different from what some people think autism ‘looks like’.

This can lead to people – including autistic women and girls, and PDA individuals – being missed, misunderstood and misdiagnosed, which can in turn lead to poor outcomes.

All research points to early identification and tailored support being the best predictor of positive long-term outcomes. Recognising these profiles signposts the approaches or support that will be most helpful for each individual.

A PDA profile of autism means that individuals share autistic characteristics …

  • “persistent difficulties with social communication and social interaction” and “restricted and repetitive patterns of behaviour, activities or interests” present since early childhood to the extent that these “limit and impair everyday functioning” (according to the Diagnostic and Statistical Manual Fifth Edition (DSM-5))
  • often including a different sensory experience in relation to sight, smell, taste, touch, hearing, vestibular, proprioception and interoception.

… and also:

  • have a need for control which is often anxiety related
  • are driven to avoid everyday demands and expectations (including things that they want to do or enjoy) to an extreme extent
  • tend to use approaches that are ‘social in nature’ in order to avoid demands
  • present with many of the ‘key features’ of PDA rather than just one or two
  • tend not to respond to conventional parenting, teaching or support approaches

A PDA profile of autism is normally identified during an ASD assessment undertaken by an experienced multi-disciplinary diagnostic team.