Information for social care professionals
What is PDA?
Pathological Demand Avoidance (PDA) is best understood as a profile on the autism spectrum – for more information please see About autism & PDA.
It is important for social care professionals to have PDA on their radar, because individuals with this profile of autism and their families are particularly vulnerable to being misunderstood. Please see our Information sheet for social care professionals for a summary of how PDA may present in children and adults.
Independent social worker Cathie Long talks about PDA in an article for Community Care. Here, she explains:
Whereas some individuals have an existing diagnosis or multiple diagnoses, in other cases they have no diagnosis at all. Whilst all cases are unique, there’s one thing that all these individuals seem to have in common – traditional parenting or conventional behaviour strategies, even those recommended for autism spectrum disorders, don’t work. Parents often tell me that their local authority has recommended they attend a weekly parenting course so they can learn to set appropriate boundaries and manage their children more effectively. These efforts are sadly often counterproductive and futile. During my involvement with these children and their parents, or these adults and their families, when their needs are re-assessed, their presentations are often found to be best described by a PDA profile of autism.
In my experience, the key to supporting parents who have a child with PDA is for professionals to really start to understand the PDA presentation rather than requiring parents to repeatedly engage in parenting courses to learn and relearn parenting approaches which will not work.
My experience of supporting individuals with a PDA profile of autism has taught me to listen to what people tell me rather than engaging in an assessment of their care and support needs with preconceived ideas about what to expect.
For further information about how PDA may look at school, and about attendance difficulties, please see Information for education professionals.
Some autistic people are very adept at masking, and this is very common with PDA. Masking means that people may be able to hide or ‘hold in’ some of their differences/difficulties in certain environments or with certain people. Significantly, this means that challenges reported in one setting (often home) may not always be seen in others (such as school or other settings). This can and does lead to misunderstandings.
For further information about masking, please see:
Good practice & helpful approaches
Believing, supporting and working closely with individuals and families is key to successful outcomes for people with a PDA profile of autism.
Key to this is a genuine understanding of the helpful approaches for PDA – please see:
Please also see our Information sheet for social care professionals for a summary of good practice and helpful approaches.
In this webinar about PDA for social care professionals, independent social workers Cathie Long, Mary Cartlidge and Rachel Gavin share their knowledge and experience:
Cathie Long’s article also covers the issue of Fabricated or Induced Illness (FII) and how parents of children with an unrecognised PDA profile of autism may be particularly at risk of unfounded concerns – for more information about identifying whether PDA may help to explain otherwise perplexing presentations, please see information for healthcare professionals.
In this Australian Association of Social Workers article, Sharon Morris, gives a brief history of PDA and explains why it’s important for social workers to be aware of, and understand, PDA.
PDA-related suggestions for inclusion in healthcare passports also includes useful information and helpful approaches.
Benefits of understanding the PDA profile
All research points to early understanding of strengths and needs, together with appropriate support, being key to positive long term outcomes.
We were increasingly perplexed by the complex presentation of one of our service users and our team’s inability to meet her needs despite our very best efforts. Whilst Sarah doesn’t have a formal diagnosis, following PDA training we were able to devise some unique approaches that have been highly effective. Using these approaches is the difference between Sarah being able to live in her own home and being held in a secure hospital – Sarah’s social care manager
Please see Benefits of understanding the PDA profile for more information.
Further information & training
For further information please see our Family and Adult Life sections and our Resources directory. Our What is PDA? booklet is a helpful introductory guide to the PDA profile as well. In addition, we’d like to draw your attention to these additional sources of information, topics or fields of study which we feel are helpful in furthering understanding about PDA.
We also offer a range of training courses and a series of pre-recorded free of charge webinars, and can provide information and support relating to specific cases you may be involved with via our enquiry line service.
The PDA Society also offers email updates for professionals. To subscribe to receive updates about the latest news, resources and events relevant to professionals, please click on the button below: