In May 2023, PDA Society ran a survey of PDA adults and their families, as well as parents of PDA children. We had 921 responses and the results were clear; autistic-PDA people are experiencing a mental health crisis.
There are very few professionals who have access to adequate training, resources or specialists to advise on support approaches that are helpful for PDA people. That’s why we are calling for wider recognition of less common presentations of autism, including PDA, and for all providers to follow a needs-based support approach with autistic adults and children.
The statistics in this report are from a survey PDA Society undertook in Spring 2023. Quotes from this report have been anonymised, and came from survey responses, facilitated sessions with community members and written submissions from PDA people and family members.
The research findings on Mental Health can be found in full here.