This study examines parents’ experiences of working with professionals to support children with Pathological Demand Avoidance (PDA). PDA is characterised by an extreme difficulty in tolerating everyday demands, leading to avoidance behaviours often described as ‘socially manipulative.’ Children with PDA also display impulsivity, obsessive behaviours, and difficulties with social identity.
While awareness and research on PDA are gradually increasing, parents report ongoing struggles in getting their children’s needs recognised and properly addressed by health and education services. The study explores what parents value most in professional involvement, highlighting the importance of understanding, flexibility, and tailored support approaches. The findings emphasise the need for improved awareness and training among professionals to ensure families receive appropriate guidance and intervention. This research is particularly relevant for educators, clinicians, and policymakers looking to improve outcomes for children with PDA and their families.