This research, conducted by Amelia Green at the University of Birmingham, explores the challenges faced by school-aged children with Pathological Demand Avoidance (PDA). Based on input from over 1,000 parents and young people, the study highlights key issues affecting PDA children and their families.
Findings reveal significant struggles with school attendance, high exclusion rates, and a widespread lack of appropriate support. The study emphasises the need for Education, Health, and Care Plans (EHCPs) that accurately reflect a child’s specific needs. Additionally, it discusses the value of a formal PDA diagnosis in securing the right educational and therapeutic support. The research calls for urgent changes in how PDA is understood and managed within the education system, advocating for better recognition and tailored interventions to help children with PDA thrive.