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About demand avoidance

The most well-known feature of PDA is an extreme avoidance of “everyday” demands caused by anxiety. Although the term “demand avoidance” is widely used, some people feel it doesn’t reflect their experience because it sounds like they’re making a choice to avoid something they don’t want to do.

Stylised illustration of a person with long hair holding up their hand in front of their face, obscuring their features, on a teal background.

We all experience demands in daily life and avoid things we don’t want to do. But for autistic people with a PDA profile, when demand avoidance is triggered, it can become impossible for someone to take action. This experience is often described by PDAers as a feeling of “can’t, not won’t”.

Demands can cause extreme anxiety to the point of panic, which might result in one of the following responses:

  • fight – becoming argumentative, oppositional, or physically resistant.
  • flight – leaving the room, avoiding contact, running away.
  • freeze – staring, zoning out, or becoming non-verbal.
  • fawn – appeasing others, saying what they want to hear, being overly agreeable.
“I think the best way to think about it is if an alien were to land on Earth and he had to play that role. Every single teeny tiny micro instruction you’d have to give them. All of those micro instructions are stressful demands.”
Harrison*
“Being at school is hard, and my level of tolderance often decreases throughout the day which can escalate until I have meltdowns, without proactive and positive supports.”
Ida*

What are demands?

Demands can include internalised expectations (e.g. “I should brush my teeth”), social norms (e.g. replying to a message), or physical needs (e.g. eating or sleeping). Some things that don’t seem like demands on the surface can still be experienced that way, such as dress codes, fixed timetables, or menus with limited options. Anything that restricts someone’s freedom or sense of control can become a demand.

Here’s some examples of how demands can come up in daily life:

  • requests – “Have you packed your bag yet?”.
  • expectations – “She’s looking to see if I’ve packed my bag”.
  • thoughts – “I should pack my bag”. 
  • desires – “I really want to pack my bag”.
  • praise – “You packed your bag brilliantly yesterday”.

The amount someone can manage can change depending on their capacity, and even enjoyable or routine activities can become impossible when they have pressure attached to them.

This means that PDA demand avoidance can seem illogical on the surface and can sometimes be misinterpreted as someone being defiant or intentionally difficult. In reality, many PDAers struggle to do things they want and need to do, and this misunderstanding makes it harder to get support.

“It’s almost impossible for those without lived experience to understand the condition. As the parent of a PDA child, the isolation and other’s lack of comprehension can be the hardest part.”
Liam*

What helps?

 

Finding the right approach can be the difference between being able to manage a situation, or going into meltdown, shutdown or other distressed behaviours. It’s important to also be aware there are many causes of demand avoidance which aren’t related to PDA, which might benefit from different approaches.

With PDA, low arousal strategies which reduce unnecessary demands can prevent the overwhelm caused by cumulative demands. This might mean avoiding known triggers, offering choice, and reducing sensory input. For some people it can be helpful if those around them avoid instructional or directive language, for example, saying “your coat is by the door” instead of asking someone to “put your coat on”.

You can find our more information about PDA approaches in our “What helps? guides.