by Lorna Parle | May 23, 2026
This quantitative study investigated the underlying factors associated with extreme demand avoidance (EDA) behaviours in children and adolescents with and without a Pathological Demand Avoidance (PDA) profile. Using parent-reported data from 795 participants across...
by Lorna Parle | May 23, 2026
This qualitative study explored the lived experiences of autistic individuals with a Pathological Demand Avoidance (AuPDA) profile and professionals working within the UK Criminal Justice System (CJS). Through interviews with AuPDA individuals and family members,...
by Lorna Parle | Dec 19, 2025
In May 2023, the PDA Society launched the ‘Being Understood’ survey to help us gather up to date information about what life is like for the PDA community. PDA people (age 17 years or over) and parents, carers and partners of PDA people were invited to take part and...
by Lorna Parle | Dec 19, 2025
In May 2023, the PDA launched a community survey, to which 921 people responded. The report presents the survey findings focusing on the experiences of three groups of survey respondents-PDA children and young people, PDA adults and parents and carers. The aim of the...
by Lorna Parle | Dec 4, 2025
This qualitative study explored the experiences and support needs of ten mothers of autistic children with a PDA profile. Parents reported limited understanding of PDA among professionals, resulting in misinterpretation, stigma, and inadequate or even harmful support....
