About Us

The organisation was first established in 1997 by parents of children with Pathological Demand Avoidance (PDA), an autism spectrum condition. The PDA Society became a registered charity in January 2016.
We provide information, support and training for parents, carers, teachers and individuals with PDA.

The PDA Society in numbers

  •  6,400 associate members
  • 10,000 social media followers
  • We’ve trained over 1,000 people across the UK
  • 1,050 people from around the world registered for our inaugural webinar
  • We support around 125 parents, adults and health/education professionals a month by email and phone
  • We’ve distributed booklets to 5,000 practitioners and 15,000 leaflets for parents & teachers in the last year alone

Our current activities include

  • Supporting discussions around people’s experiences of living with PDA
  • Providing support to those living and working with PDA
  • Campaigning for greater recognition of the PDA profile
  • Providing training to different audiences
  • Sharing good practice and supportive ideas
  • Developing new materials and tools which can aid understanding
  • Collaborating with medical professionals as part of the PDA Development Group
  • Organising an annual PDA day and biennial conference

Our future aims include

  • Working in partnership with other organisations, providing PDA expertise, in order to improve services
  • Helping to increase understanding through research