About the PDA Society

The PDA Society started out as the PDA Contact Group, set up in 1997 by parents of children with a PDA profile of autism, and became a registered charity in January 2016.

We provide information, support and training for people living and working with PDA.

The PDA Society is led and run by a small volunteer team, all of whom have a direct connection with PDA. We receive no statutory funding and are reliant on donations, income from our training courses and the small profits from sales of our merchandise.

Our activities include …

  • Supporting discussions around people’s experiences of living and working with PDA
  • Providing support to those living and working with PDA
  • Campaigning for greater recognition of the PDA profile of autism
  • Providing training for different audiences
  • Sharing good practice and supportive ideas
  • Developing new resources and tools which can aid understanding
  • Collaborating with professionals as part of the PDA Development Group
  • Organising an annual PDA day and biennial conference
  • Working in partnership with other organisations, providing PDA expertise, in order to improve services
  • Helping to increase understanding through research

The PDA Society is a member of the Embracing Complexity coalition and the Small Charities Coalition.

The PDA Society Team

The PDA Society is led and run on a voluntary basis by 5 trustees who are all parents of children/young adults with a PDA profile of autism, supported by a small team of volunteers who all have a direct connection with PDA.

Our trustees are Sally Russell OBE (Chair, External Affairs/Research Lead), Vikki Threlfall (Vice-Chair, Secretary, Comms Lead), Debra West (Treasurer, Finance Lead), Paula Webb (Enquiry Line/Events/Safeguarding Lead) and Hilary Harvey (Admin/HR/Training/Forum Lead).

Our volunteers offer parent-to-parent support via our enquiry line service, moderate our discussion forum, send out our literature and merchandise and help at our events. We also work with a team of self-employed training facilitators who help deliver our training programmes and have some contracted help for our admin, social media and website. We’ve recently welcomed four voluntary advisers – Dr Judy Eaton, Jilly Davis, Cathie Long and Harry Thompson – who are helping us in their specialist fields, and continue to work with our PDAer panel including Julia Daunt, Sally Cat and Riko Ryuki, who have been helping us for some time. Sally Cat also provides graphic design services on a voluntary basis and Julia Daunt raises funds through her annual Christmas craft auction.

The PDA Society in numbers

Social media followers
Website visitors per month
Number of people we’ve trained
People supported every month