In 2022, we set out to ask the PDA community about their priority questions for research to answer.

Promoting high quality research, informed by what matters most to the PDA community, is one of our 5-year goals.

We know research plays a big role in shaping how we understand the world and therefore how PDA is conceptualised, diagnosed and responded to by wider society.

This means good quality research, that is informed by the PDA community, has the power to influence how PDA people are understood and supported to thrive.

Our survey asked people to share what unanswered questions they had about PDA. Over 500 people completed the survey and around 3,000 unanswered questions were submitted.

Since the survey ended, we’ve used a tested methodology to work through three rounds of sorting, reducing duplicates and pulling similar questions together. Our final analysis has highlighted nine overarching research questions that are important to the PDA community.

We’ve produced a 3 minute animation that explains our main findings or you can read the report in full here.

Since we started this project, we have been contacted by a growing number of academics who are developing research proposals investigating different aspects of PDA. We hope that the priority setting exercise will support their efforts and encourage more to become involved.

Please contact us via if you are involved in research work, we’d love to hear from you.

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