Huge congratulations to Mary Black and Pat Hewitt for making great strides in achieving greater recognition of PDA in Scotland.
Awareness & acceptance
They first lodged a petition calling on the Scottish Parliament to urge the Scottish Government to promote a wider awareness and acceptance of Pathological Demand Avoidance syndrome among health, education and social care and social work practitioners, and, via the appropriate agencies and bodies, to institute and facilitate training in the diagnosis of the condition, to promote the development of therapeutic programmes for those with the syndrome and to provide support for their families and carers.
This was then discussed at the Scottish Parliament’s Public Petitions Committee on 19th January where evidence was taken from Mary, Pat, Heather Fullbrook and Euan Robson (former MSP). Written evidence was also taken from Dr Phil Christie – this underlined the importance of accurate understanding and appropriate support for individuals with PDA and their families:
“It is widely recognised that individuals with PDA and their families are exceptionally vulnerable to being misunderstood, not having their needs met and of experiencing exclusion from educational settings. Wider recognition and assessment that leads to appropriate description and formulation of the child’s difficulties and needs is the starting point for the provision of appropriate support. With this support the lives of individuals and their families can be transformed.”
For further information please see: http://www.parliament.scot/GettingInvolved/Petitions/PE01625
Next steps elsewhere in the UK
If you don’t have time to take all this on, remember that just writing one letter or email can make a difference.