Welcome to PDA Day 2022!

This year our focus is research. Promoting high quality research, informed by what matters most to the PDA community, is one of our 5-year goals.

This short video explains why more research is key to changing policy and practice and reducing the postcode lottery that surrounds PDA today.

Consultation survey

Nothing About Us Without Us. Have a sayPDA research needs to involve the PDA community every step of the way, and identifying the top unanswered questions is the first step. To do this we’ve launched a consultation survey to ask what questions you have about PDA. The results of the survey will help define the top PDA research priorities, informing a national call to action for more high quality PDA research.

The survey is anonymous and open to anyone with an interest in PDA research. To have a say, please submit your questions before midnight on 14th June 2022.

Stepping up for PDA

Good luck and thank you to everyone who is “stepping up for PDA” today. An incredible 8 million steps have been pledged across the month of May to raise funds to help move PDA research forward and move towards better understanding and outcomes for PDA people and their families.

If you’d like to read our fundraisers’ stories or make a donation, please visit our Stepping up for PDA fundraising page. Thank you.


There are lots of free resources about PDA on our website – please feel free to browse, download and share with others to help increase awareness and acceptance. Here’s a roundup of our key resources:

Details of the peer-reviewed PDA research papers and informal studies and commentaries that have been published to date are also available along with a summary of the PDA Society’s research activities.

Please contact us via info@pdasociety.org.uk if you are involved in research, we’d love to hear from you.

Community events

Thank you to everyone who’s marking PDA Day 2022 – here’s a list of community plans & activities happening today:

And a big thank you to all the gamers who have been taking part in our 24 hour gaming marathon with Spectrum Gaming this weekend. If you’d like to show your support you can donate here. The money raised will be split 50:50 between Spectrum Gaming and the PDA Society to help us help others.

Please do tag us on social media and use the hashtag #PDAday if you’re doing anything to raise awareness, increase acceptance or take action about PDA today. We’d also love to see your colourful ‘pandalas’ and PDA Panda ears photos, and we’ve created this PDA Day profile picture for everyone who’d like to show their support on social media (our usual Facebook frame is unfortunately no longer available as Facebook has recently changed who can upload frames).

Happy PDA Day 2022!