Studies & Commentaries

Surveys, essays, and studies which shed light and help explain experiences

Found 15 listings

A critical-insider perspective

A critical-insider perspective on PDA and parenting. Paula Sanchez first presented her perspective to the Participatory Autism Research Collective (PARC) meeting in 2018. Her work goes back to the accounts of Asperger and finds that some of his descriptions includes traits that might be reflected in the PDA profile. She explains: [...]

Differences Between PDA and Non-PDA Autism

A Demonstration of Differences Between PDA and Non-PDA Autism, a transcript of a presentation by Sally Cat at The Autism Show at ExCeL London on 15th June 2019 Sally's introduction explains: "Hello, I’m Sally Cat I am a PDAer This means my neurology fits the Pathological Demand Avoidance profile, which is currently classed as [...]

Being Misunderstood – 2018 Survey

Experiences of the PDA Profile of Autism Education, health and social care services are designed to be 'needs-based' and 'outcomes-focused'. While the intention is clear, there is a group of autistic people whose needs are frequently not identified in detail, not understood in practice and not fully communicated between professionals. As [...]

‘Natures answer to over-conformity’: deconstructing PDA

Abstract Throughout its history autism has been primarily defined in terms of a pathologised deviancy from normative cognitive functionality, despite protestations to the contrary from autistic writers (Sinclair, 1993, Arnold, 2010, Milton, 2011). More recently however, we have witnessed the wider acceptance of a construction concerning a perceived pervasive developmental [...]