Academic paper
Found 28 listings
Mapping experiences of PDA in Ireland
Mapping experiences of pathological demand avoidance in Ireland.
This national study sought to gather the viewpoints of PDA individuals, families, and practitioners, with the intention of determining levels of knowledge, recognition and understanding of PDA; exploring current pathways to assessment and diagnosis; capturing experiences of access to education and healthcare [...]
Extreme Demand Avoidance in Children: Refinement of a Caregiver-Report Measure
Extreme Demand Avoidance in Children with Autism Spectrum Disorder: Refinement of a Caregiver-Report Measure
For anyone involved in either research or in the assessment of neurodevelopmental conditions, this adaptation of the EDA-Q will be of interest. Called the EDA-8, it is a refined and simplified scale that benefits from the [...]
Pathological demand avoidance in children and adolescents: A systematic review
Pathological demand avoidance in children and adolescents: A systematic review
There has been a lack of funding of research into PDA to date and so this timely paper is particularly useful for giving an overview of the research history and looking to the future and what is needed.
With any newly [...]
Individual differences, ADHD, Adult Pathological Demand Avoidance and delinquency
Individual differences, ADHD, Adult Pathological Demand Avoidance and delinquency
In this paper, Egan et al looked at a range of different characteristics of a group of adults to analyse how PDA might fit with other described conditions. They used the EDA-Q developed in their previous work as a self-report tool [...]
The educational experiences of autistic children
The educational experiences of autistic children with and without extreme demand avoidance behaviours
Shining a light on the types of difficulties that all autistic children can experience in school and how it can vary individually. Parent’s views on the key causes of problems provides an insight into what can help [...]
An exploration of the PDA profile in children
An exploration of the Pathological (or Extreme) Demand Avoidant profile in children referred for an autism diagnostic assessment using data from ADOS-2 assessments and their developmental histories
This paper represents the first step in analysing and reporting on data gathered between 2015 and 2017 on 351 children referred to Dr [...]
Extreme/‘pathological’ demand avoidance: an overview
Extreme/‘pathological’ demand avoidance: an overview
In this article, Elizabeth O'Nions and Judy Eaton provide an overview of PDA, discuss the clinical presentation of individuals with a PDA profile, and differences compared to children with documented attachment difficulties. They then discuss empirical work describing how anxiety-driven avoidance of routine demands can [...]
Parenting strategies in ASD
Parenting Strategies Used by Parents of Children with ASD: Differential Links with Child Problem Behaviour
In this paper, Liz O'Nions explores a new scale which is designed to measure strategies for problem behaviour in ASD. The results are especially interesting as more than half of those involved in the study [...]
Role of Intolerance of Uncertainty and Anxiety
Intolerance of uncertainty and anxiety as explanatory frameworks for extreme demand avoidance in children and adolescents
This research was conducted by researchers at the Complex Neurodevelopmental Disorder Service and South Tyneside Community Team, Tyne and Wear NHS Foundation Trust, and School of Psychology, Newcastle University.
The abstract concludes:
"This study represents one [...]
Progressing the research
Research Meeting Report
PDA is currently widely understood as being part of the autism spectrum. However, this area of research is in its infancy, with a range of perspectives currently evident. High quality, robust research is urgently needed to increase our understanding of autism as a whole, and demand avoidance [...]
Summary of Understanding of E/PDA
Extreme /’Pathological’ Demand Avoidance
This article addresses the topics of debate and controversy that exist surrounding the classification of extreme/’pathological’ demand avoidance as a profile of the autism spectrum. A comprehensive overview of the existing and ongoing areas of research is given.
There is discussion of the behavioural traits displayed by [...]
Summary of research developments
This summary was prepared by Dr. Liz O’Nions, Post-doctoral Fellow at the Parenting and Special Education Research Unit, KU Leuven, Belgium. It relates to the work done up until April 2016.
Early research on PDA was carried out by Elizabeth Newson and colleagues and published through conference proceedings and informal [...]
Tool to support diagnosis of ASD / PDA / Attachment disorders
Modification of the Coventry Grid Interview to include the Pathological Demand Avoidant profile
The Coventry Grid Interview was designed to be used by clinicians as part of a comprehensive assessment process and not as a stand-alone diagnostic tool.
There is often diagnostic confusion over the differences between children presenting with autism [...]
Development of the ‘Extreme Demand Avoidance Questionnaire’
Development of the 'Extreme Demand Avoidance Questionnaire' (EDA-Q): Preliminary observations on a trait measure for Pathological Demand Avoidance
This paper provides in-depth information about the development of ‘The Extreme Demand Avoidance Questionnaire’ (EDA-Q). It was published in 2013; a time when the awareness of PDA was increasing amongst professionals.
The purpose [...]
Identifying features of ‘PDA’ using the Diagnostic Interview (DISCO)
Identifying features of ‘pathological demand avoidance’ using the Diagnostic Interview for Social and Communication Disorders (DISCO)
This paper discusses the Diagnostic Interview for Social and Communication Disorders (DISCO) and existing items within the model which are more specific to PDA when compared to the rest of the autism spectrum. It [...]
PDA behavioural profile
Pathological demand avoidance: Exploring the behavioural profile
The aim of this paper was to report the profiles of children diagnosed with Pathological Demand Avoidance (PDA) compared to children with Autism Spectrum Disorders (ASD), Conduct Problems (CPs) and Callous Un-emotional Traits (CUs). The study addressed some of the controversy surrounding the [...]
Disorders in childhood: Overview for paediatricians
Behavioural and emotional disorders in childhood: A brief overview for paediatricians
This is a review of all relevant published literature relating to behavioural, emotional and developmental problems in children and adolescents. It is intended as a guide for clinicians and aims to raise awareness of the importance of recognising and [...]
Dimensions of difficulty
Dimensions of difficulty in children reported to have an autism spectrum diagnosis and features of extreme pathological demand avoidance
Background
A subset of individuals with autism spectrum disorder (ASD) resemble descriptions of extreme/‘pathological’ demand avoidance, displaying obsessive avoidance of everyday demands and requests, strategic or ‘socially manipulative’ behaviour and sudden changes [...]
Measurement of Adult Traits
The Measurement of Adult Pathological Demand Avoidance Traits
This paper reports two studies that were carried out to test the validity of the EDA-QA (Extreme Demand Avoidance Questionnaire for Adults) when screening for PDA in adults. Participants in the study were volunteers recruited from a variety of specialist online forums [...]
Need for distinguishing PDA
Pathological demand avoidance syndrome: a necessary distinction within the pervasive developmental disorders
The aim of this paper was to gain recognition for pathological demand avoidance (PDA) as a separate entity within the Pervasive Developmental Disorders (PDDs) (now termed Autism Spectrum Disorders, ASD). Elizabeth Newson and colleagues had recognised a group [...]
Prevalence Study
Extreme (“pathological”) demand avoidance in autism: a general population study in the Faroe Islands
A study was carried out to determine the frequency of Pathological Demand Avoidance (PDA) within a group of individuals identified as having met the diagnostic criteria for Autism Spectrum Disorder (ASD). This is a thought-provoking read [...]
Mapping educational experiences
Mapping the educational experiences of children with pathological demand avoidance
This paper describes a study carried out to review the educational experiences of children with Pathological Demand Avoidance (PDA). It would be of interest to those who work in the field of education and to parents who are navigating their [...]
Adult diagnosis case study
Adult diagnosis of pathological demand avoidance – subsequent care planning
In this paper, Eaton and Banting report on the diagnosis of a young woman in a low secure hospital, and the subsequent impact on her care. It highlights the need for those in residential and secure settings to be carefully [...]
PDA and epilepsy case studies
Pathological Demand Avoidance in a population-based cohort of children with epilepsy: Four case studies
The case studies described in this paper illustrate the complexity of neuro-developmental conditions, and the way in which multiple diagnoses can be manifest. It highlights the importance of all holistic assessments considering the possibility of demand [...]
A unhelpful label?
Pathological demand avoidance: What and who are being pathologised and in whose interests?
Written from a social science/'critical autism study' perspective, this paper challenges the notion of PDA as a useful label. It suggests those identified may be young people who fail to conform to neuro-typical expectations and norms, and [...]
Preventing School Exclusion
Preventing school exclusion: a case study of a primary aged autistic child with ADHD and a PDA profile
This case study describes the initiatives that were adopted to help ‘Jack’, a 7 year old boy, avoid a third exclusion from school. Jack was diagnosed with autism and ADHD but he [...]
Strategies case study
Helping your child with PDA to play: eight strategies for supporting a child with Pathological Demand Avoidance Syndrome at home
This paper describes a case study of a young boy and the strategies that enabled him to learn skills while playing with others and developing positive relationships.
The eight strategies described [...]
Child Behaviour & Parenting Strategies
The Child Behaviour and Parenting Strategies study was designed to investigate links between child behaviour and parenting strategies, as well as many other factors, with a particular focus on children with developmental disabilities such as autism spectrum disorder (ASD).
This is an update on preliminary findings from the study, which [...]