This national study gathered insights from PDA individuals, their families, and professionals to understand knowledge, diagnosis, and support for PDA. Researchers surveyed 264 parents, 9 life partners, 6 PDA individuals, and 54 practitioners. They also conducted interviews and focus groups. The findings highlight the need for a flexible, informed, and personalised approach to assessing and supporting PDA individuals. Practitioners emphasised the importance of a streamlined, multi-disciplinary system. The study also found a major gap between education and healthcare services, calling for fairer access to support. Addressing these challenges could improve outcomes for individuals and families.
Please also see:
- Mapping Experiences of PDA in Ireland Executive Summary – an initial summary of the findings of this study published in January 2020
- Practice Guidance – Ireland – a series of seven evidence-based practical information sheets for professionals and parents which were developed following the recommendations of this study