'All stars' - most used
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Sources of further understanding
In addition to the information signposted throughout our website, we’d like to draw your attention to these additional sources of information, topics or fields of study which we feel are helpful in furthering understanding about PDA. This is a living list which we'll add to over time - if [...]
Introduction to PDA (2021)
An introductory video about PDA (Pathological Demand Avoidance).
This video is just over 20 minutes long and covers lots of information, including:
What is demand avoidance?
PDA & Autism
Key features of a PDA profile
Research & clinical themes
Why identify PDA?
How PDA can feel
What are demands?
Demand [...]
Home education “hub”
Elective home education - helpful approaches & resources for PDA
This resource consists of helpful approaches and resources to support parents who are home educating PDA children and young people. For general guidance and legislation about elective home education (EHE) in the UK please visit the relevant government website for [...]
EHCP guide
Education, Health and Care Plans to support a PDA profile of autism.
An Education, Health and Care Plan (EHCP) is a document used in England to outline a child or young person’s special educational needs (SEN) and the provision that should be made to meet those needs.
Not every PDA child [...]
What is PDA? booklet
This booklet is designed to be an introductory guide to the Pathological Demand Avoidance profile of autism for individuals, families and professionals.
The booklet covers an overview of PDA, how PDA can feel, an insight into what demands are and how they’re avoided, info about identifying PDA, helpful approaches and [...]
Coronavirus support
We've collated and created specific resources to support the PDA community during the Coronavirus pandemic. They are spread across 5 pages:
Links and tips for the PDA community during the Coronavirus pandemic
Helpful approaches with PDA during the coronavirus outbreak
Accessible information (social stories etc.)
Information about mental health
UK [...]
PDA-related suggestions for healthcare passports
The National Autistic Society has created a health passport template that you can either complete online and print out, or print out and complete by hand, for yourself, your child or someone you care for.
There is also helpful guidance on the National Autistic Society’s website about how to fill [...]
Helpful approaches infographic: PANDA strategies
This infographic illustrates the key strategies which are helpful in working with and understanding someone with a PDA profile of autism.
Conventional support strategies, including those often recommended for ASD, are often ineffective and counter-productive with a PDA profile of autism.
In place of structure, routine, firm boundaries, praise, rewards/consequences, is [...]
Keys to care
A single page information sheet for supporting and helping someone with a PDA profile. Ideal for those working with individuals whose care-needs have been identified as relating to demand avoidance. Useful as a grab-sheet for members of staff - a regular reminder of what can help.
Also helpful for family [...]
AET National Autism Standards
This extensive paper entitled 'The Distinctive Clinical and Educational Needs of Children with Pathological Demand Avoidance Syndrome: Guidelines for Good Practice' was written by Phil Christie and originally published in the Good Autism Practice Journal. It is reprinted by the Autism Education Trust (AET) to accompany their National Autism [...]
Self-help, coping strategies and therapies for adult PDAers
Here we have included a downloadable PDF version of the Self-help, coping strategies and therapies for adult PDAers page, found in the Adult Life section.
It includes suggestions for self-help, coping strategies and therapies which were assembled from a variety of first-hand accounts shared by adults, diagnosed or self-identifying as [...]
PDA Society Support
The PDA Society enquiry line service provides information, advice and support to those living and working with PDA.
In addition, our peer-support website discussion forum is moderated and is an alternative place to ask questions, share experiences and find support.
The Society also provides training for different audiences, and webinars on [...]