Health professional
Found 24 listings
What is PDA? booklet
This booklet is designed to be an introductory guide to the Pathological Demand Avoidance profile of autism for individuals, families and professionals.
The booklet covers an overview of PDA, how PDA can feel, an insight into what demands are and how they’re avoided, info about identifying PDA, helpful approaches and [...]
Identifying features of ‘PDA’ using the Diagnostic Interview (DISCO)
Identifying features of ‘pathological demand avoidance’ using the Diagnostic Interview for Social and Communication Disorders (DISCO)
This paper discusses the Diagnostic Interview for Social and Communication Disorders (DISCO) and existing items within the model which are more specific to PDA when compared to the rest of the autism spectrum. It [...]
Disorders in childhood: Overview for paediatricians
Behavioural and emotional disorders in childhood: A brief overview for paediatricians
This is a review of all relevant published literature relating to behavioural, emotional and developmental problems in children and adolescents. It is intended as a guide for clinicians and aims to raise awareness of the importance of recognising and [...]
National Autistic Society PDA resources
Here are links to the National Autistic Society's PDA resources:
What is pathological demand avoidance (PDA)?
Supporting pupils with a demand avoidant profile
The National Autistic Society provides useful information to help everyone understand anxiety in school and school refusal – though please note that the strategies suggested would [...]
Articles
The most recent PDA articles published in professional publications and on national support websites.
Providing PDA support - Aileen Hosty - nasen Connect www.nasen.org.uk (shared with kind permission) May 2020
Understanding PDA – Ruth Fidler & Libby Hill - The Link (speech and language magazine for schools) January 2020
[...]
Keys to care
A single page help sheet for supporting and helping someone with a PDA profile. Ideal for those working with individuals whose care-needs have been identified as relating to demand avoidance. Useful as a grab-sheet for members of staff - a regular reminder of what can help.
Also helpful for family [...]
Practice Guidance for Professionals – Ireland
The 'Mapping Experiences of PDA in Ireland Study', Doyle and Kenny, was published in 2020.
A report describes the research and findings in detail.
In addition, the study resulted in the development of a series of seven practical and appealing advice sheets for professionals and parents. They have been published by PRISM [...]
Pathological Demand Avoidance: summary sheet
A one-page explanation of the PDA profile, produced by the PDA Development Group and published in June 2016. It describes the main features and the key approaches to supporting a PDA person.
The PDA Development Group comprises a group of clinical and professional experts, and includes representation from the NAS [...]
Good diagnostic assessment – children
This information has been produced by the PDA Development Group, August 2017. The PDA Development Group is an informal group comprised of representatives from the NAS and PDA Society and individual practitioners with an interest in PDA from a range of disciplines (education, paediatrics, psychology, research) working in both [...]
AET National Autism Standards
This extensive paper entitled 'The Distinctive Clinical and Educational Needs of Children with Pathological Demand Avoidance Syndrome: Guidelines for Good Practice' was written by Phil Christie and originally published in the Good Autism Practice Journal. It is reprinted by the Autism Education Trust (AET) to accompany their National Autism [...]
New Approach to FII
The Need for a New Approach to the Identification of Fabricated and Induced Illness
This discussion paper lays out some of the difficulties with the current approach to identifying Fabricated and Induced Illness (FII) and calls upon the Royal College of Paediatrics and Child Health (RCPCH) to review the evidence [...]
PDA in Ireland
Mapping Experiences of Pathological Demand Avoidance in Ireland, Executive Summary
Doyle and Kenny 2020
This initial summary reports the findings of the study funded by the Irish Research Council, and conducted by researchers from Dublin City University, Institute of Education, Neil Kenny and Siobhan McNally, and Alison Doyle of Caerus Education.
The [...]
Being Misunderstood – 2018 Survey
Experiences of the PDA Profile of ASD
Education, health and social care services are designed to be 'needs-based' and 'outcomes-focused'.
While the intention is clear, there is a group of autistic people whose needs are frequently not identified in detail, not understood in practice and not fully communicated between professionals. As [...]
Demand-Anxiety Cycle: resource template
A tool to help young people, parents & professionals understand demand avoidance and talk together.
Tick boxes that apply, write on it, or edit the document….
Whatever works for you.
.fusion-button.button-12 {border-radius:2px;}Download editable copy (docx)
Me and My PDA
Me and My PDA: A Guide to Pathological Demand Avoidance for Young People
This beautifully illustrated guide helps young people with Pathological Demand Avoidance (PDA) to understand their diagnosis, develop self-awareness and implement their own personalised problem-solving strategies. Written in consultation with young people with PDA and their families, this [...]
Understanding Pathological Demand Avoidance Syndrome in Children
A Guide for Parents, Teachers and Other Professionals
The first book ever written about PDA - it gives a comprehensive overview for everyone with an interest in the subject. It was written collaboratively by professionals and parents.
This straightforward guide offers a complete overview of Pathological Demand Avoidance Syndrome (PDA) and [...]
Can I tell you about Pathological Demand Avoidance syndrome?
Can I tell you about Pathological Demand Avoidance syndrome?: A guide for friends, family and professionals
Meet Issy – an 11-year-old girl with pathological demand avoidance syndrome (PDA), a condition on the autism spectrum. Issy invites readers to learn about PDA from her perspective, helping them to understand how simple, [...]
Food Refusal and Avoidant Eating
Food Refusal and Avoidant Eating in Children, including those with Autism Spectrum Conditions
A Practical Guide for Parents and Professionals
Many children with Autism Spectrum Disorder (ASD) have a restricted dietary range, and this book provides parents with advice and training on how to deal with this condition and achieve [...]
The Explosive Child
A New Approach for Understanding and Parenting Easily Frustrated, Chronically Inflexible Children
A groundbreaking approach to understanding and parenting children who frequently exhibit severe fits of temper and other intractable behaviours, from a distinguished clinician and pioneer in this field.
What’s an explosive child? A child who responds to routine problems [...]
The Incredible 5-Point Scale
This much-awaited second edition of the popular Incredible 5-Point Scale is significantly improved and expanded.
Using the same practical and user-friendly format as the first edition, Buron and Curtis let readers benefit from work done with the scales over the past 10 years, to result in refinements to the original [...]
Mental Health Issues in Girls
A Guide to Mental Health Issues in Girls and Young Women on the Autism Spectrum: Diagnosis, Intervention and Family Support
This book addresses the specific mental health needs of girls and young women with autism spectrum disorder (ASD). Looking at the ways autism presents differently in girls than in boys, [...]
Assessing speech & language needs
10 tips for assessing speech & language needs in children with PDA
by Libby Hill, Speech and Language Therapist
Pathological Demand Avoidance (PDA) is a profile on the autism spectrum. As its name suggests, people with a PDA profile avoid demands to an extreme extent. Not in the way that all [...]
Statement about diagnostic terminology
PDA Society Statement, published May 2019
There is confusion for individuals, parents, clinicians and academics about what PDA is or isn’t – this can and does lead to misunderstanding and poor outcomes for many. As part of our PDA Day 2019 suite of resources, we thought it may be helpful [...]
Survey of Professionals
Overview
Awareness of PDA has been growing rapidy in recent years. The National Autistic Society run annual conferences on the subject and research is now being conducted by a number of different institutions, so understanding of the condition is developing apace.
Parents, schools and health and eductional professionals are finding that [...]