Diagnosis

Found 26 listings

Identifying & Assessing a PDA profile – Practice Guidance

Practice guidance collating the professional practice and experience of a multidisciplinary group of professionals working in the NHS and private practice. The goal of this document is to aid assessment of a PDA profile, to distinguish PDA from other presentations of marked demand avoidance, and to signpost appropriate support and [...]

The Amazing Autistic Brain Cards

150 Cards with Strengths and Challenges for Positive Autism Discussions. This deck of cards is a resource to help professionals, parents and anyone working with autistic young people to have discussions about an Autism diagnosis in a personalised, positive and meaningful way. The beautifully designed cards each show a strength - [...]

PDA best practice – the professional voice

PDA best practice - what the professionals would like you to know Professionals from a range of backgrounds explain why they feel it's important to identify PDA and share their tips for best practice. This is one of two resources created for PDA Day 2021 that share best practice about PDA [...]

PDA best practice – the PDA community’s voice

PDA best practice - what the PDA community would like professionals to know This is one of two resources created for PDA Day 2021 that share best practice about PDA for professionals from all sectors – including healthcare, education, social care, the law, therapists, counsellors, advocates and policy makers. This video [...]

Local position statements on PDA

Local authorities, NHS trusts and other bodies are increasingly producing and sharing information about PDA within local areas. This page contains links to such information. Local position statements Some local areas have found it helpful to state their position on the use of terminology around PDA. Examples of formal position statements include: [...]

Summary of Understanding of E/PDA

Extreme /’Pathological’ Demand Avoidance This article addresses the topics of debate and controversy that exist surrounding the classification of extreme/’pathological’ demand avoidance as a profile of the autism spectrum. A comprehensive overview of the existing and ongoing areas of research is given. There is discussion of the behavioural traits displayed by [...]

Identifying features of ‘PDA’ using the Diagnostic Interview (DISCO)

Identifying features of ‘pathological demand avoidance’ using the Diagnostic Interview for Social and Communication Disorders (DISCO) This paper discusses the Diagnostic Interview for Social and Communication Disorders (DISCO) and existing items within the model which are more specific to PDA when compared to the rest of the autism spectrum. It [...]

Measurement of Adult Traits

The Measurement of Adult Pathological Demand Avoidance Traits This paper reports two studies that were carried out to test the validity of the EDA-QA (Extreme Demand Avoidance Questionnaire for Adults) when screening for PDA in adults. Participants in the study were volunteers recruited from a variety of specialist online forums [...]

Need for distinguishing PDA

Pathological demand avoidance syndrome: a necessary distinction within the pervasive developmental disorders The aim of this paper was to gain recognition for pathological demand avoidance (PDA) as a separate entity within the Pervasive Developmental Disorders (PDDs) (now termed Autism Spectrum Disorders, ASD). Elizabeth Newson and colleagues had recognised a group [...]

Being Misunderstood – 2018 Survey

Experiences of the PDA Profile of Autism Education, health and social care services are designed to be 'needs-based' and 'outcomes-focused'. While the intention is clear, there is a group of autistic people whose needs are frequently not identified in detail, not understood in practice and not fully communicated between professionals. As [...]

Understanding Pathological Demand Avoidance Syndrome in Children

A Guide for Parents, Teachers and Other Professionals The first book ever written about PDA - it gives a comprehensive overview for everyone with an interest in the subject. It was written collaboratively by professionals and parents. This straightforward guide offers a complete overview of Pathological Demand Avoidance Syndrome (PDA) and [...]

Statement about diagnostic terminology

PDA Society statement on diagnostic terminology PDA is widely, but not universally, understood to be a profile on the autism spectrum. Understanding of PDA is at an early stage and robust research is urgently needed. There is currently a range of academic and clinical perspectives about PDA. It is important to understand this [...]