Education
Found 55 listings
Max’s story – Why Is He Still Here? book extracts
“Why Is He Still Here?” is a memoir written by Max, a young autistic adult with a PDA profile. It’s a powerful insight into his experiences of the education system and gaming world.
We’re grateful to Max for allowing us to share some extracts from his book to help [...]
Local position statements on PDA
Some local areas have found it helpful to state their position on the use of terminology around PDA.
Two examples are Surrey and Alder Hey Children's NHS Foundation Trust. Both position statements clearly illustrate how it is possible for local authorities, and supporting organisations, to acknowledge and flag up the [...]
The Great Minds Podcast: PDA Society
PDA Society trustees Paula Webb & Vikki Threlfall chat with Emma and Meg from Great Minds Together about lots of topics including terminology around PDA, helpful approaches, differences between ODD & PDA, EHCPs, working with professionals and more.
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Helen’s story – PDA in families and deciding to home educate
Helen self-identifies with a PDA profile and sees the same traits in other family members including her daughter and her Mum, with mutual understanding across the generations having led to an instinctively collaborative and compassionate approach to both parenting and education. Passionately believing that our education system is not [...]
Introduction to PDA (2021)
An introductory video about PDA (Pathological Demand Avoidance).
This video is just over 20 minutes long and covers lots of information, including:
What is demand avoidance?
PDA & Autism
Key features of a PDA profile
Research & clinical themes
Why identify PDA?
How PDA can feel
What are demands?
Demand [...]
Home education “hub”
Elective home education - helpful approaches & resources for PDA
This resource consists of helpful approaches and resources to support parents who are home educating PDA children and young people. For general guidance and legislation about elective home education (EHE) in the UK please visit the relevant government website for [...]
Transition to adulthood
When we think about transitions we naturally think about the big transitions like leaving school or transferring from primary to secondary school. But transitions of any kind, at any time, may be difficult for PDA individuals. Starting a new club or activity, leaving home in the morning to go [...]
What is PDA? video
This short video gives a quick introduction to PDA and was created to help raise awareness of PDA with the general public and convey some essential information about PDA in a quick and easily shareable format.
Voiced by a wonderful group of PDAers and PDA Society team members.
Published by: PDA [...]
EHCP guide
Education, Health and Care Plans to support a PDA profile of autism.
An Education, Health and Care Plan (EHCP) is a document used in England and Wales to outline a child or young person’s special educational needs (SEN) and the provision that should be made to meet those needs.
Not every [...]
What is PDA? booklet
This booklet is designed to be an introductory guide to the Pathological Demand Avoidance profile of autism for individuals, families and professionals.
The booklet covers an overview of PDA, how PDA can feel, an insight into what demands are and how they’re avoided, info about identifying PDA, helpful approaches and [...]
Understand Me
Understand Me: An inspiring journey of a boy with PDA
9 year old Spencer recalls his struggles at mainstream school and takes us on a journey of his experiences whilst going through diagnosis and the EHCP process to a successful specialist placement. Spencer’s feelings of isolation and sadness, and his [...]
Mapping educational experiences
Mapping the educational experiences of children with pathological demand avoidance
This paper describes a study carried out to review the educational experiences of children with Pathological Demand Avoidance (PDA). It would be of interest to those who work in the field of education and to parents who are navigating their [...]
Preventing School Exclusion
Preventing school exclusion: a case study of a primary aged autistic child with ADHD and a PDA profile
This case study describes the initiatives that were adopted to help ‘Jack’, a 7 year old boy, avoid a third exclusion from school. Jack was diagnosed with autism and ADHD but he [...]
Do You Know Me?
The sequel to last year’s bestselling Can You See Me? Co-written by autistic twelve-year-old Libby Scott, with diary entries based on her own experiences of autism with a demand avoidant profile. Great for reading with friends and family and engaging a wide audience, this book sees autistic protagonist Tally [...]
National Autistic Society PDA resources
Here are links to the National Autistic Society's PDA resources:
Pathological Demand Avoidance (PDA)
Network Autism resources
What is Pathological Demand Avoidance? An adult's perspective
Pathological demand avoidance: an interview with Ruth Fidler and Phil Christie
PDA and mental health
Meeting the educational needs of pupils with PDA
Top [...]
PDA tools and resources – tes online
The following PDA-related resources are available to purchase or download for free from www.tes.com ...
Managing Demand Avoidance Toolkit
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The Demand Avoidance Toolkit, is an adapted framework of collaborative approaches used in education to teach pupils with PDA (Pathological Demand Avoidance). This pack works alongside the Zones of Regulation [...]
Articles
The most recent PDA articles published in professional publications and on national support websites.
Providing PDA support - Aileen Hosty - nasen Connect www.nasen.org.uk (shared with kind permission) May 2020
Understanding PDA – Ruth Fidler & Libby Hill - The Link (speech and language magazine for schools) January 2020
[...]
Practice Guidance for Professionals – Ireland
The 'Mapping Experiences of PDA in Ireland Study', Doyle and Kenny, was published in 2020.
A report describes the research and findings in detail.
In addition, the study resulted in the development of a series of seven practical and appealing advice sheets for professionals and parents. They have been published by PRISM [...]
Pathological Demand Avoidance: summary sheet
A one-page explanation of the PDA profile, produced by the PDA Development Group and published in June 2016. It describes the main features and the key approaches to supporting a PDA person.
The PDA Development Group comprises a group of clinical and professional experts, and includes representation from the NAS [...]
AET National Autism Standards
This extensive paper entitled 'The Distinctive Clinical and Educational Needs of Children with Pathological Demand Avoidance Syndrome: Guidelines for Good Practice' was written by Phil Christie and originally published in the Good Autism Practice Journal. It is reprinted by the Autism Education Trust (AET) to accompany their National Autism [...]
Education Provision and Support – Guidance
Children and Young People with PDA: Guidelines for Educational Provision and Support
This guidance was prepared by the PDA Development Group and published in December 2019. It provides and introduction to the topic, describing key principles and how to put the principles into practice.
The PDA Development Group comprises a group [...]
Challenging school exclusions
Children and young people with PDA or other forms of autism, or indeed other special educational needs, can struggle with behaviour which challenges. Our Being Misunderstood survey showed that almost 1 in 10 had experienced permanent exclusion at some stage.
This has been possible because schools have said that the [...]
School refusal guide
This extensive guide was written by a doctoral student and her co-founder of 'Not Fine in School'. There is a summary guide and a guide for schools also available from their website alongside many other sources of information and support.
It describes in detail what parents can do to support [...]
Mind Map for schools
This 'Mind Map' is a useful resource for teachers, and anyone involved in providing support to a young person.
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Good educational practice
Examples of good educational practice for PDA pupils
These extracts showing good practice in education for pupils with a PDA Profile are shared with kind permission from the authors of these two books:
Fidler, R. and Christie, P. (2019) Collaborative Approaches to Learning for Pupils with PDA: Strategies for Education [...]
Super Shamlal – Living and Learning with Pathological Demand Avoidance
This illustrated storybook is aimed at children aged 7-11 to help them recognise the features of PDA, and develop tools to support them. A helpful introduction for parents and carers explains how it feels to live with PDA, and the appendices at the back provide useful strategies to be [...]
Life on an Alien Planet: A PDA boy and his journey through the education system
With useful advice and observations, Katie Stott provides a detailed account of the PDA specific behaviours in her son Fraser and how she learnt to lessen the impact of these by focusing on the cause (anxiety and a need for control), rather than the effect. Katie explains how Fraser’s [...]
PDA in Ireland
Mapping Experiences of Pathological Demand Avoidance in Ireland, Executive Summary
Doyle and Kenny 2020
This initial summary reports the findings of the study funded by the Irish Research Council, and conducted by researchers from Dublin City University, Institute of Education, Neil Kenny and Siobhan McNally, and Alison Doyle of Caerus Education.
The [...]
Reasonable adjustments for schools – editable
Whether at primary school or secondary school, this resource can be re-written to suit your own child. Written by a parent who wanted to share it, it is a detailed example of the types of accommodations a school might make.
It is important to read through and decide which parts [...]
Being Misunderstood – 2018 Survey
Experiences of the PDA Profile of ASD
Education, health and social care services are designed to be 'needs-based' and 'outcomes-focused'.
While the intention is clear, there is a group of autistic people whose needs are frequently not identified in detail, not understood in practice and not fully communicated between professionals. As [...]