Education
Found 63 listings
Declarative Language Handbook
Declarative Language Handbook: Using a Thoughtful Language Style to Help Kids with Social Learning Challenges Feel Competent, Connected, and Understood.
This book was written to teach you how making small shifts in your language and speaking style will produce important results. You will stop telling kids what to do and [...]
PDA & masking with James
In this video 14 year old James kindly shares information about his experience of PDA and masking.
Hi, I'm James and I'm 14 years old. I was diagnosed with PDA at the age of 12 and would like to share some information about masking. A lot of people with PDA [...]
The Teacher’s Introduction to Pathological Demand Avoidance
Essential Strategies for the Classroom.
This essential guide for working with PDA pupils outlines effective and practical ways that teachers and school staff can support these pupils, by endorsing a child-led approach to learning and assessment.
Beginning with an introduction to PDA and how it can affect the education experience, it [...]
Ways to Be Me
From the bestselling author duo behind Can You See Me? comes this exceptional portrayal of autism diagnosis, with diary entries by 12-year-old autistic author Libby Scott based on her own experiences of autism with a demand avoidant profile.
Taking place before Can You See Me? and Do You Know Me? [...]
Online gaming with Max Toper
Max Toper, author of “Why Is He Still Here?” and a young autistic adult with a PDA profile has kindly recorded a three-part series of videos about online gaming for our home education “hub”. He shares insight into his experiences of the gaming world to help parents and carers of [...]
PDA best practice – the professional voice
PDA best practice - what the professionals would like you to know
24 professionals from a range of backgrounds explain why they feel it's important to identify PDA and share their tips for best practice.
This is one of two videos created for PDA Day 2021 that share best practice about [...]
PDA best practice – the PDA community’s voice
PDA best practice - what the PDA community would like professionals to know
This is one of two videos created for PDA Day 2021 that share best practice about PDA for professionals from all sectors – including healthcare, education, social care, the law, therapists, counsellors, advocates and policy makers.
This video [...]
Beth’s story
Beth’s Dad Jeremy tells the devastating and disturbing story (trigger warning: this case study includes details of self-harm, restraint and abuse) of how Beth was ‘failed by the system’. Jeremy covers Beth’s early years, her 19 placements in 6 years, her first section aged 11 and her fateful move [...]
Max’s story – Why Is He Still Here? book extracts
“Why Is He Still Here?” is a memoir written by Max, a young autistic adult with a PDA profile. It’s a powerful insight into his experiences of the education system and gaming world.
We’re grateful to Max for allowing us to share some extracts from his book to help [...]
Local position statements on PDA
Some local areas have found it helpful to state their position on the use of terminology around PDA.
Examples include:
Surrey
East Sussex
Alder Hey Children's NHS Foundation Trust
Central Bedfordshire (further information also available on their Local Offer)
These position statements clearly illustrate how it is possible for local authorities, [...]
The Great Minds Podcast: PDA Society
PDA Society trustees Paula Webb & Vikki Threlfall chat with Emma and Meg from Great Minds Together about lots of topics including terminology around PDA, helpful approaches, differences between ODD & PDA, EHCPs, working with professionals and more.
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Helen’s story – PDA in families and deciding to home educate
Helen self-identifies with a PDA profile and sees the same traits in other family members including her daughter and her Mum, with mutual understanding across the generations having led to an instinctively collaborative and compassionate approach to both parenting and education. Passionately believing that our education system is not [...]
Introduction to PDA (2021)
An introductory video about PDA (Pathological Demand Avoidance).
This video is just over 20 minutes long and covers lots of information, including:
What is demand avoidance?
PDA & Autism
Key features of a PDA profile
Research & clinical themes
Why identify PDA?
How PDA can feel
What are demands?
Demand [...]
Home education “hub”
Elective home education - helpful approaches & resources for PDA
This resource consists of helpful approaches and resources to support parents who are home educating PDA children and young people. For general guidance and legislation about elective home education (EHE) in the UK please visit the relevant government website for [...]
Transition to adulthood
When we think about transitions we naturally think about the big transitions like leaving school or transferring from primary to secondary school. But transitions of any kind, at any time, may be difficult for PDA individuals. Starting a new club or activity, leaving home in the morning to go [...]
What is PDA? video
This short video gives a quick introduction to PDA and was created to help raise awareness of PDA with the general public and convey some essential information about PDA in a quick and easily shareable format.
Voiced by a wonderful group of PDAers and PDA Society team members.
Published by: PDA [...]
EHCP guide
Education, Health and Care Plans to support a PDA profile of autism.
An Education, Health and Care Plan (EHCP) is a document used in England to outline a child or young person’s special educational needs (SEN) and the provision that should be made to meet those needs.
Not every PDA child [...]
What is PDA? booklet
This booklet is designed to be an introductory guide to the Pathological Demand Avoidance profile of autism for individuals, families and professionals.
The booklet covers an overview of PDA, how PDA can feel, an insight into what demands are and how they’re avoided, info about identifying PDA, helpful approaches and [...]
Understand Me
Understand Me: An inspiring journey of a boy with PDA
9 year old Spencer recalls his struggles at mainstream school and takes us on a journey of his experiences whilst going through diagnosis and the EHCP process to a successful specialist placement. Spencer’s feelings of isolation and sadness, and his [...]
Mapping educational experiences
Mapping the educational experiences of children with pathological demand avoidance
This paper describes a study carried out to review the educational experiences of children with Pathological Demand Avoidance (PDA). It would be of interest to those who work in the field of education and to parents who are navigating their [...]
Preventing School Exclusion
Preventing school exclusion: a case study of a primary aged autistic child with ADHD and a PDA profile
This case study describes the initiatives that were adopted to help ‘Jack’, a 7 year old boy, avoid a third exclusion from school. Jack was diagnosed with autism and ADHD but he [...]
Do You Know Me?
The sequel to last year’s bestselling Can You See Me? Co-written by autistic twelve-year-old Libby Scott, with diary entries based on her own experiences of autism with a demand avoidant profile. Great for reading with friends and family and engaging a wide audience, this book sees autistic protagonist Tally [...]
National Autistic Society PDA resources
Here are links to the National Autistic Society's PDA resources:
Pathological Demand Avoidance (PDA)
Network Autism resources
What is Pathological Demand Avoidance? An adult's perspective
Pathological demand avoidance: an interview with Ruth Fidler and Phil Christie
PDA and mental health
Meeting the educational needs of pupils with PDA
Top [...]
PDA tools and resources – tes online
The following PDA-related resources are available to purchase or download for free from www.tes.com ...
Managing Demand Avoidance Toolkit
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The Demand Avoidance Toolkit, is an adapted framework of collaborative approaches used in education to teach pupils with PDA (Pathological Demand Avoidance). This pack works alongside the Zones of Regulation [...]
Articles
The most recent PDA articles published in professional publications and on national support websites.
Providing PDA support - Aileen Hosty - nasen Connect www.nasen.org.uk (shared with kind permission) May 2020
Understanding PDA – Ruth Fidler & Libby Hill - The Link (speech and language magazine for schools) January 2020
[...]
Practice Guidance for Professionals – Ireland
The 'Mapping Experiences of PDA in Ireland Study', Doyle and Kenny, was published in 2020.
A report describes the research and findings in detail.
In addition, the study resulted in the development of a series of seven practical and appealing advice sheets for professionals and parents. They have been published by PRISM [...]
Pathological Demand Avoidance: summary sheet
A one-page explanation of the PDA profile, produced by the PDA Development Group and published in June 2016. It describes the main features and the key approaches to supporting a PDA person.
The PDA Development Group comprises a group of clinical and professional experts, and includes representation from the NAS [...]
AET National Autism Standards
This extensive paper entitled 'The Distinctive Clinical and Educational Needs of Children with Pathological Demand Avoidance Syndrome: Guidelines for Good Practice' was written by Phil Christie and originally published in the Good Autism Practice Journal. It is reprinted by the Autism Education Trust (AET) to accompany their National Autism [...]
Education Provision and Support – Guidance
Children and Young People with PDA: Guidelines for Educational Provision and Support
This guidance was prepared by the PDA Development Group and published in December 2019. It provides and introduction to the topic, describing key principles and how to put the principles into practice.
The PDA Development Group comprises a group [...]
Challenging school exclusions
Children and young people with PDA or other forms of autism, or indeed other special educational needs, can struggle with behaviour which challenges. Our Being Misunderstood survey showed that almost 1 in 10 had experienced permanent exclusion at some stage.
This has been possible because schools have said that the [...]