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Letter/email template: Identifying & Assessing PDA Practice Guidance

In 2022 the PDA Society collated the professional practice and experience of a multidisciplinary group of professionals and published ‘Identifying & Assessing a PDA profile – Practice Guidance’ for clinical practitioners and other professionals who are involved in neurodevelopmental assessments. Here’s a letter/email template which can be personalised and used to inform anyone involved in neurodevelopmental assessments about this practice guidance. Who should I send it to? It would be helpful if everyone could send this to their local autism assessment centres, clinical practitioners and autism teams so the guidance is distributed as widely as possible. You could also use the template to inform clinicians about the practice guidance when requesting a referral or support. This flyer can also be attached to your email or printed and enclosed with your letter to draw the recipient’s attention to essential information about the practice guidance at a glance. How do I use the Template? To use the template, please copy and paste the text below into an email or word/google document. The template can then be personalised by editing or replacing the [bold text in square brackets] with your own details and experiences. We’ve included a link to the practice guidance on our website or you can [...]

Email template for informing others about PDA

Here’s an email template which can be used to inform the people and professionals in your life about PDA and the approaches that help. We hope this will help everyone to be better understood and supported. This information sheet can also be downloaded and attached to the email and we’ve included some links to our website where the recipient(s) can find out more about PDA - feel free to add any other links or attachments that would benefit your situation. To use the template, please copy and paste the text below into an email. The template can then be personalised by editing or replacing the [bold text in square brackets] with your own details and experiences. You could send one email to multiple people or adapt and personalise the text for each person you send it to – whatever works best for you. Dear [Name of the person/people you are writing to] I’m writing to share some information with you about PDA (Pathological Demand Avoidance) to help you to understand [me/my child/name of PDA person] and to give us the best chance of building a positive relationship and succeeding together. PDA has a significant daily impact on [my/my child’s/name’s] life. [Tell them a little bit about this [...]

EHCP guide

Education, Health and Care Plans to support a PDA profile of autism. An Education, Health and Care Plan (EHCP) is a document used in England to outline a child or young person’s special educational needs (SEN) and the provision that should be made to meet those needs. Not every PDA child or young person will have, or need, an EHCP but for those who do, these examples of good practice will hopefully provide a starting point for families and professionals. In addition, you would not expect an EHCP to cover all the areas identified here; just those which would be of most help for each individual child/young person. This resource intends to provide you with a ‘database’ of possibilities. This resource has been compiled from suggestions from both families and education professionals supporting PDA children and young people and in consultation with our PDA adult panel. Many of these suggestions are useful for anyone who would benefit from an EHCP and some relate more specifically to demand avoidance.   Published by: PDA Society First version: January 2021 Second version: July 2021 View guide  

PDA-related suggestions for healthcare passports

The National Autistic Society has created a health passport template that you can either complete online and print out, or print out and complete by hand, for yourself, your child or someone you care for. There is also helpful guidance on the National Autistic Society’s website about how to fill in the template. We've put together some suggestions that may be helpful to include in relation to a PDA profile of autism which are designed to be used in addition to, and should be read in conjunction with, the National Autistic Society’s guidance. You can pick and choose from the suggestions to just include the points that are relevant for you. There’s also this quick ‘COVID-19 Grab and Go’ version (and accompanying guidance) you could use.   View suggestions   Further information Keys to care - one page information sheet about PDA and helpful approaches What is PDA? booklet

Workplace adjustments: employers’ guide

Businesses and employers are increasingly recognising the benefits of employing autistic people, but much more still needs to be done. The Chief Executive of the National Autistic Society recently said “most autistic people who want to work aren’t able to work” because conventional roles and workplaces can present many challenges. The PDA Society offers some suggestions about reasonable adjustments to workplaces and work patterns to accommodate a PDA profile of autism in the Adult Life section. There is also a 2-page guide available.   Download the guide

Reasonable adjustments for schools – editable

Whether at primary school or secondary school, this resource can be re-written to suit your own child. Written by a parent who wanted to share it, it is a detailed example of the types of accommodations a school might make. It is important to read through and decide which parts apply to your child, and take out or re-write those that don't. It describes a child's and parent's point of view, describes core adjustments before giving an illustration of a child's difficulties and needs. It includes a list of the ways in which a child may be helped, and finishes with some general information from the PDA Society. Author: Anonymous   Download document (docx)   Related resources Strategies and Support for School (Letter Template) - pdaparents.com (US)

Child Profiles

Child profiles or ‘one-page profiles’ have been developed as a useful tool particularly for SENCos to use in schools in order to share information about the needs and capabilities of a range of pupils with additional needs across the staff. This can help staff to ensure their practice is in line with consistent approaches for the child in a setting. Children interact with numerous adults during the course of a day and there needs to be a shared understanding across the staff. Child profiles are best when based on person-centred planning approaches. This is a way of capturing a child holistically. How can we begin to understand what helps a child if we only ever know what things they can’t do? So a child profile will cover what we appreciate about the child, what they can do, what they find difficult, what works, what doesn’t work, how we can help and what outcomes we are working for. These profiles are best when the child, the parent and the school (this could be more than one member of staff) have all contributed ideas so we are all working together to ensure vital information can be shared about effective strategies.   Download editable child [...]

Demand-Anxiety Cycle: resource template

A tool to help young people, parents & professionals understand demand avoidance and talk together. Tick boxes that apply, write on it, or edit the document…. Whatever works for you.   Download editable template   A third party German translation of this document (by a German parent of a PDA child) is also available here. Please note: the PDA Society is not able to verify the accuracy of translations listed on our website.  

What PDA means to me – editable resource

This resource was created to help a child going from being home-schooled into a special school, but could be used in many other situations. It lists traits like high anxiety, impulsivity and demand avoidance that made life difficult, with specific examples and thoughts on what helps. It also has space for including information about strengths, interests and so on. Created as a template to be adapted in whatever way you choose.   Completed example (pdf)   Editable version (docx)