Resources

Support - Local groups

This is a list of the local groups we’re aware of (please note that these local PDA support groups are independent and external to the PDA Society). Some are online-only Facebook groups, some are local support groups and some do both.

If you run a local PDA support group and wish to have your details added please email us with the name of your group, location, details about when and where you meet up, contact details and links to any website or Facebook page.

If you’re interested in setting up a local PDA support group, please note that there isn’t a formal programme for this but we can support anyone who wants to set up their own local group by providing guidance, leaflets and a platform for promoting the group. Hilary Harvey who set up The South Bucks PDA Support Group has put together a helpful guide for us called ‘Setting up a PDA Support Group’ which can be found in the ‘Get Involved’ menu.

Found 72 listings

East London PDA Parent/Carers WhatsApp Group

Friendly supportive WhatsApp group for Autistic PDA families. Hackney based but all welcome. Neurodiverse positive, good vibes only. WhatsApp group link .fusion-button.button-1 {border-radius:2px;}Join WhatsApp group

SEN parent and carer support group Maidstone

Private Facebook group for parents and carers of children with SEN, specifically Autism and PDA. I also share about raising my son and want others to be able to share, this group is for support and somewhere to talk in private. .fusion-button.button-2 {border-radius:2px;}Join Facebook group

Facebook Group

PDA Together, Cornwall & Devon

This group has been set up for parents and individuals to support and inform each other within the world of Pathological Demand Avoidance. Zoom support group and private Facebook group. Please only ask to join if you live in Cornwall or Devon. Requests from other localities will be declined. .fusion-button.button-3 {border-radius:2px;}Join Facebook [...]

South West Support - Local groups

Facebook Group Meet-up group

Flipside

Flip side is a small North Lanarkshire volunteer group who aim to provide things to do for 18-30 year olds who have a range of support needs, including PDA. This age is just a guide we would never turn anyone away if they were older. Activities include: exercise classes, arts [...]

Scotland Support - Local groups

Meet-up group

Spectrum Life Scotland

Additional Support Needs online support group including, ASD, ADHD, ODD, PDA, Dyslexia, SPD, Anxiety... Many parent carers feel that their children don't fit neatly into that diagnostic criteria! The Spectrum of conditions are so varied, every child is different. Your child may have been diagnosed with a few conditions, or with [...]

Scotland Support - Local groups

Positive About PDA Cardiff

Facebook page for Positive about PDA events held in Cardiff. Theses events will be aimed at professionals and families. .fusion-button.button-7 {border-radius:2px;}Visit Facebook page

Support - Local groups Wales

Conference Facebook Group

PDA Suffolk Support

This group is for parents/carers/family of people either diagnosed or suspected of having PDA. Suffolk has been quiet in terms of PDA but it needs a louder voice - let's start by supporting one another here and meeting up to discuss campaigns, strategies and be friends to one another [...]

Eastern Support - Local groups

Facebook Group Meet-up group

Kirklees PDA Support Group

Please email Aileen.Hosty@southgateschool.co.uk for group information and meet-up details.

Support - Local groups Yorkshire - Humberside

Meet-up group

Warwickshire PDA Support Group

Please email pda.warwickshire@gmail.com for group information and meet-up details.

Support - Local groups West Midlands

Meet-up group

Telford PDA Support Group

Please email pda.telford@gmail.com for group information and meet-up details.

Support - Local groups West Midlands

Meet-up group

Dunstable, Bedfordshire Area Support Group

Please contact Sarah on 07568 341100 for group information and meet-up details.

Eastern Support - Local groups

Meet-up group

Kingston Upon Thames Support Group

PDA Support Group for parents/carers of young people with PDA. Meets: at Express offices, 452 Ewell Road, Surbiton KT6 7EL, 12:30pm - 2pm on the third Monday of the month, term time (please visit website for upcoming dates). Pop in or for more information email info@expresscic.org.uk .fusion-button.button-9 {border-radius:2px;}Visit website

London and South East Support - Local groups

Meet-up group

Reading Support Group

Monthly meetings at alternating locations in central Reading and Tilehurst. Contact: pdagroupreading@gmail.com

London and South East Support - Local groups

Meet-up group

Wolverhampton Support Group

Please contact pda.wolverhampton@gmail.com for group info.

Support - Local groups West Midlands

Meet-up group

PDA Sutton, Surrey Carers Support Group

Facebook group and monthly meet up on a Thursday or Friday for parents/carers. Covering Sutton, Wallington, Carshalton, Banstead, Cheam, Epsom, Ewell, Merton areas. .fusion-button.button-10 {border-radius:2px;}Visit Facebook group

London and South East Support - Local groups

Facebook Group Meet-up group

Borders Additional Needs Group (BANG)

BANG (Borders Additional Needs Group) is an outreach service for parents, young carers and disabled children with rare, complex and additional needs. Meetings and activities are for the whole family; children, parents, carers, siblings, and grandparents. A special need has an impact on the whole family and our support, advice and [...]

Scotland Support - Local groups

Meet-up group

PRISM Dlr Ireland

PRISM is a peer led support service for families affected by conditions on the autism spectrum including PDA in Dun Laoghaire Rathdown. PRISM Dlr became a registered charity (Registered Charity No. 20142711) in January 2018. Services include: Peer support meetings Self-care for carers Specialised talks and workshops Confidential phone line Advice and [...]

International Other locations Support - Local groups

Meet-up group

The PDA Elephant in the Room – Hertfordshire

A support group for parents and carers of children with PDA. We run a support group in Sandridge where parents and carers can meet to discuss and support each other through the ups and downs of life with PDA. Meetings: 3rd Tuesday of every month from 7pm to 9pm at [...]

Eastern Support - Local groups

Facebook Group Meet-up group

PDA Awareness & Support Group – North Lanarkshire

PDA Awareness & Support Group, North Lanarkshire, Scotland. Meets: Daytime Group - 1st Thursday of each month in HOPE for Autism, Chapel Street, Airdrie from 9.30am-11.30am. Evening Group - 2nd Monday of each month in Forgewood Community Centre, Motherwell from 6.30pm-8.00pm. .fusion-button.button-14 {border-radius:2px;}Visit Facebook group .fusion-button.button-15 {border-radius:2px;}Visit Twitter page

Scotland Support - Local groups

Facebook Group Meet-up group

Autism & PDA Support Fife

This closed group is for Parents and Carers to obtain help and support, Share stories and wisdom. We all have our own experiences and by sharing things that work for us we may be able to help someone else. .fusion-button.button-16 {border-radius:2px;}Join facebook group

Scotland Support - Local groups

Facebook Group

Tyneside Durham and Cleveland PDA Support Group

Public PDA support group for Tyneside, Durham and Cleveland area. It is our intention to spread the awareness of Pathological Demand Avoidance and signpost to relevant information for both Parent Carers and Professionals. .fusion-button.button-17 {border-radius:2px;}Visit facebook page

North East Support - Local groups

Facebook Group

Owl Blue West Cumbria

Owl Blue offers fortnightly autism & PDA advice days in Workington, West Cumbria with a local fully qualified professional. Contact: Telephone: 0800 755 5432 or email: Info@owlblue.org .fusion-button.button-18 {border-radius:2px;}Visit Facebook page

North West Support - Local groups

Facebook Group Meet-up group

Fighting for Real Support in North Lanarkshire for ASD and PDA Families

Closed Facebook group for North Lanarkshire. We are a very friendly group of Parents supporting each other through every day challenges. .fusion-button.button-19 {border-radius:2px;}Join facebook group

Scotland Support - Local groups

Facebook Group

Glasgow PDA awareness/support group

PDA awareness/support group for Glasgow. .fusion-button.button-20 {border-radius:2px;}Visit facebook page

Scotland Support - Local groups

Facebook Group

Ayrshire PDA Support/Awareness Group

PDA support group for Ayrshire .fusion-button.button-21 {border-radius:2px;}Visit facebook page

Scotland Support - Local groups

Facebook Group

Edinburgh & Lothians PDA Support Group

This is a Support Group for any Edinburgh and Lothians-based parent/carer of a child, teenager or young adult with diagnosed or suspected Pathological Demand Avoidance as part of their Autism profile. .fusion-button.button-22 {border-radius:2px;}Visit facebook page

Scotland Support - Local groups

Facebook Group

Lincoln and surrounding areas PDA Parent Group

A support and meet up group for Parents/Carers of children with Pathological Demand Avoidance .fusion-button.button-23 {border-radius:2px;}Join Facebook group

East Midlands Support - Local groups

Facebook Group Meet-up group

ASD/PDA Support Orkney

Support group for parents, family of children/teens on the spectrum or diagnosed people themselves. In particular autism and PDA (Pathological Demand Avoidance). For newly diagnosed or waiting to be diagnosed find out what benefits, support, both local and national is available. There are many resources which can be shared [...]

Scotland Support - Local groups

Facebook Group

PDA Parent Support Group Gloucestershire

This group is for any parents in Gloucestershire with a child/young person with PDA or suspected PDA. Due to the current situation we are not holding our usual meetings at present, but we are holding meetings by zoom once a month. Please contact me at vic.lottie@outlook.com or have a look [...]

South West Support - Local groups

Facebook Group Meet-up group

PDA support group Dorset

A local PDA support group for parents with children with pathological demand avoidance or who's child may be showing signs of PDA. Locally there is a lack of professional support so this group has been set up to give local parents a forum to share experiences, ask advice and share [...]

South West Support - Local groups

Facebook Group