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Lancashire – PDA Support Lancashire

PDA Support Lancashire PDA Support Lancashire is a support group run by and for parent/carers of children/young people with a suspected or known PDA autistic profile, living within the Lancashire County Council boundary. Meeting details: The group offers peer-to-peer support and information, regular online sessions with speakers and monthly face-to-face meet ups, in various locations in Lancashire. Activities for members are organised via a Private Facebook group (see link below) - for further information please visit our website pdasupportlancs.org Contact details: To join the group, visit our website pdasupportlancs.org and complete the Contact Form or ask to join the FB group directly. Facebook link to Private Group (please answer ALL joining questions fully).

PDA Bridgend Support Group

A support group for parents/guardians/carers of PDA children & young people (diagnosed, not diagnosed or on the pathway) who live in Bridgend. Local PDA adults also welcome to join as well as local professionals who would like to learn more about PDA. Online Facebook group that will also aim to organise regular face to face meet ups in the Bridgend County Borough and surrounding area. Join Facebook group: PDA Bridgend Support Group - Pathological Demand Avoidance   Please note: this support group is independent and external to the PDA Society. They are a member of our support group leaders’ network and recognise, understand, and support PDA and the work we do by sharing up-to-date information and resources from the PDA Society​, and as such have permission to use our PDA support group leaders' network logo, but we don’t have any control over (and cannot take responsibility for) the support or services offered.   Last updated: May 2023

Salisbury Support Group

This is a local Facebook support group for families and individuals living within the Salisbury, UK area. Offers online peer to peer support. Join Facebook group: Salisbury UK Autism/Aspergers/PDA/SPD/ADHD/SEN Support Group   Please note: this support group is independent and external to the PDA Society. They are a member of our support group leaders’ network and recognise, understand, and support PDA and the work we do by sharing up-to-date information and resources from the PDA Society​, and as such have permission to use our PDA support group leaders' network logo, but we don’t have any control over (and cannot take responsibility for) the support or services offered.   Last updated: March 2023

BCP & Dorset PDA Group

Facebook support group for people and families in BCP (Bournemouth, Christchurch & Poole) and Dorset who have a connection with PDA. By working together, we may be able to offer insightful feedback to local authorities, but at the very least, we hope this will be a place where we can vent, support one another and share ideas. Visit/join this group via Facebook: BCP & Dorset PDA Group (Pathological Demand Avoidance)   Last updated: July 2022

Rotherham Parent Carers Forum

Rotherham Parent Carers Forum are a registered charity run by parents and carers of children and young people who have Special Educational Needs and/or Disabilities (SEND). We offer support, information and friendship to families of children and young people (age 0-25) with SEND (including PDA). We also offer support and information to service providers. We offer a range of services and support including peer support, counselling services, sibling support, strategic work and family activities. We have face to face and online support groups, including a closed Facebook group for parent carers. To find out more please visit our website: RPCF Rotherham Parent Carers Forum; call our office landline on 01709 296262 or email admin@rpcf.co.uk   Last updated: July 2022

AllMatters Neurodiverse Jersey

Support group for Jersey, Channel Islands. Everything to do with neurodiversity, emotional wellbeing and support run by 2 parents of children with a PDA diagnosis and ARFID. Contact: Penny Chapman – Email: pennyjoshua@hotmail.co.uk Message/join the public Facebook group: AllMatters Neurodiverse Jersey     Please note: this support group is independent and external to the PDA Society. They are a member of our support group leaders’ network and recognise, understand, and support PDA and the work we do by sharing up-to-date information and resources from the PDA Society​, and as such have permission to use our PDA support group leaders' network logo, but we don’t have any control over (and cannot take responsibility for) the support or services offered.   Last updated: December 2022

Dundee & Angus advice & activities groups

Autism/ADHD Advice Group Dundee & Angus Facebook group (includes families with PDA children).  I’ve started this group as I feel that myself and the other members have a lot of experience, knowledge and hints/tips that we can share. It’s also just good to know that there’s someone else who understands even if things can’t be changed. You can ask for information, advice and support from the other members or message me if you want personal advice, support and help. I also run a Facebook group for parents/carers to post organised activities such as council holiday programmes but also to give them an opportunity to post/organise informal meets up and activities. Thanks Arlene.   Visit advice group   Visit activities group

Autistic and PDA parent support group Cardiff

We are a very helpful online community of experienced parents and carers and also professionals. We are available to help assist, advise and support each other. Happy to welcome anyone who is on the journey and finding things challenging. I am an experienced parent of 4 myself. Two of my children are diagnosed autistic with demand avoidance presentation and also ADHD. I have participated in many courses along the way. It’s my mission to help other parents learn to advocate for their child and look after their well-being.     Join Facebook group

PDA Families – North East

Public page and private support group for PDA Families - North East (formerly Tyneside Durham and Cleveland PDA Support Group). It is our intention to spread awareness of Pathological Demand Avoidance and signpost to relevant information for both Parent Carers and Professionals. Visit/join the private group via Facebook: PDA families North East Support Group Visit/follow the public Facebook page: PDA Families - North East   Last updated: July 2022

ASD/PDA Support Orkney

Support group for parents, family of children/teens on the spectrum or diagnosed people themselves. In particular autism and PDA (Pathological Demand Avoidance). For newly diagnosed or waiting to be diagnosed find out what benefits, support, both local and national is available. There are many resources which can be shared here.   Join Facebook group

PDA Parent Support Group Gloucestershire

This group is for any parents in Gloucestershire with a PDA child/young person or suspected PDA. Private Facebook discussion group and monthly meetings in-person and via Zoom. In-person meetings take place once a month at Up Hatherley Library in Cheltenham. To find out more, please contact vic.lottie@outlook.com or have a look at our Facebook group: PDA Parent Support Group Gloucestershire   Last updated: June 2023

PDA Support Group for Pembrokeshire

This is a confidential support group for parents/carers and family members of children with PDA, parents who believe their children might have PDA and adults with PDA. It is intended as a supportive and safe place where we can openly and freely discuss concerns, queries and our own experiences without fear judgement or criticism from other members.   Join Facebook group