Adults

Found 46 listings

Sleep Misfits: The reality of Delayed Sleep Phase Syndrome & Non-24

Sleep Misfits is the first book to extensively explore delayed sleep phase syndrome (DSPS) and non-24-hour-sleep-wake disorder (Non-24) through the words of actual experients. Although circadian sleep disorders have seen an increase in published research and media coverage, they are still little-known and little-understood. There remains massive prejudice and discrimination [...]

PDA for social care professionals (webinar)

In this webinar about PDA (Pathological Demand Avoidance) for social care professionals, independent social workers Cathie Long, Mary Cartlidge and Rachel Gavin join PDA Society Trustee Vikki Threlfall. The webinar includes presentations about: assessing PDA in children and working with families in accordance with relevant guidelines and legal requirements (Mary) [...]

Helpful approaches for special occasions

Special occasions, celebrations and holidays can be overwhelming for autistic people, so we've put together some general suggestions of helpful approaches for PDA families & individuals which can also be shared with wider family & friends to help everyone understand what helps. This one-page information sheet is free to view and [...]

What is PDA? information sheet

This information sheet contains some essential information about PDA and what helps, in an easily shareable format... it can be downloaded & emailed or printed & shared with others.   Published by: PDA Society, May 2021   .fusion-body .fusion-button.button-10{border-radius:2px 2px 2px 2px;}Download/print sheet   Also available in this series are our What is PDA? booklet and What is [...]

PDA best practice – the PDA community’s voice

PDA best practice - what the PDA community would like professionals to know This is one of two videos created for PDA Day 2021 that share best practice about PDA for professionals from all sectors – including healthcare, education, social care, the law, therapists, counsellors, advocates and policy makers. This video [...]

Local position statements and information on PDA

Local authorities, NHS trusts and other bodies are increasingly producing and sharing information about PDA within local areas. This page contains links to such information. Local position statements Some local areas have found it helpful to state their position on the use of terminology around PDA. Examples of formal position statements include: [...]

Helen’s story – PDA in families and deciding to home educate

Helen self-identifies with a PDA profile and sees the same traits in other family members including her daughter and her Mum, with mutual understanding across the generations having led to an instinctively collaborative and compassionate approach to both parenting and education. Passionately believing that our education system is not [...]

Introduction to PDA (2021)

An introductory video about PDA (Pathological Demand Avoidance). This video is just over 20 minutes long and covers lots of information, including: What is demand avoidance? PDA & Autism Key features of a PDA profile Research & clinical themes Why identify PDA? How PDA can feel What are demands? Demand [...]

What is PDA? booklet

This booklet is designed to be an introductory guide to the Pathological Demand Avoidance profile of autism for individuals, families and professionals. The booklet covers an overview of PDA, how PDA can feel, an insight into what demands are and how they’re avoided, info about identifying PDA, helpful approaches and [...]

National Autistic Society PDA resources

Here are links to the National Autistic Society's PDA resources: Pathological Demand Avoidance (PDA) Network Autism resources What is Pathological Demand Avoidance? An adult's perspective Pathological demand avoidance: an interview with Ruth Fidler and Phil Christie PDA and mental health Meeting the educational needs of pupils with PDA Top [...]

Helpful approaches infographic: PANDA strategies

This infographic illustrates the key strategies which are helpful in working with and understanding someone with a PDA profile of autism. Conventional support strategies, including those often recommended for autism, are often ineffective and counter-productive with a PDA profile of autism. In place of structure, routine, firm boundaries, praise, rewards/consequences, is [...]

Keys to care

A single page information sheet for supporting and helping someone with a PDA profile. Ideal for those working with individuals whose care-needs have been identified as relating to demand avoidance. Useful as a grab-sheet for members of staff - a regular reminder of what can help. Also helpful for family [...]

Self-help, coping strategies and therapies for adult PDAers

Here we have included a downloadable PDF version of the Self-help, coping strategies and therapies for adult PDAers page, found in the Adult Life section. It includes suggestions for self-help, coping strategies and therapies which were assembled from a variety of first-hand accounts shared by adults, diagnosed or self-identifying as [...]