Adults

Found 34 listings

Helen’s story – PDA in families and deciding to home educate

Helen self-identifies with a PDA profile and sees the same traits in other family members including her daughter and her Mum, with mutual understanding across the generations having led to an instinctively collaborative and compassionate approach to both parenting and education. Passionately believing that our education system is not [...]

Introduction to PDA (2021)

An introductory video about PDA (Pathological Demand Avoidance). This video is just over 20 minutes long and covers lots of information, including: What is demand avoidance? PDA & Autism Key features of a PDA profile Research & clinical themes Why identify PDA? How PDA can feel What are demands? Demand [...]

What is PDA? booklet

This booklet is designed to be an introductory guide to the Pathological Demand Avoidance profile of autism for individuals, families and professionals. The booklet covers an overview of PDA, how PDA can feel, an insight into what demands are and how they’re avoided, info about identifying PDA, helpful approaches and [...]

National Autistic Society PDA resources

Here are links to the National Autistic Society's PDA resources: Pathological Demand Avoidance (PDA) Network Autism resources What is Pathological Demand Avoidance? An adult's perspective Pathological demand avoidance: an interview with Ruth Fidler and Phil Christie PDA and mental health Meeting the educational needs of pupils with PDA Top [...]

Helpful approaches infographic: PANDA strategies

This infographic illustrates the key strategies which are helpful in working with and understanding someone with a PDA profile of autism. Conventional support strategies, including those often recommended for ASD, are often ineffective and counter-productive with a PDA profile of autism. In place of structure, routine, firm boundaries, praise, rewards/consequences, is [...]

Keys to care

A single page help sheet for supporting and helping someone with a PDA profile. Ideal for those working with individuals whose care-needs have been identified as relating to demand avoidance. Useful as a grab-sheet for members of staff - a regular reminder of what can help. Also helpful for family [...]

Self-help, coping strategies and therapies for adult PDAers

Here we have included a downloadable PDF version of the Self-help, coping strategies and therapies for adult PDAers page, found in the Adult Life section. It includes suggestions for self-help, coping strategies and therapies which were assembled from a variety of first-hand accounts shared by adults, diagnosed or self-identifying as [...]

Tim’s story

Tim hadn’t heard of PDA until his youngest son was diagnosed with this profile of autism two years ago. During his son’s assessment Tim realised there were parallels with his own life. He was referred to adult mental health services by his GP where he was told that despite [...]

General PDA support

A range of third party Facebook groups covering different topics, for different audiences. General Pathological Demand Avoidance (PDA) Group The Autism and PDA Group PDA Inclusive Universal  PDA (Pathological Demand Avoidance) UK Group PDA Global Group PDA Pathological Demand Avoidance Discussion (formerly: PDA Pathological Demand Avoidance Support - Families & Practitioners [...]

Blogs by PDA adults

You, Me and life dealing with the triple A's Riko's blog. PDA and More and Riko's Facebook Page Julia Daunt - ​Me, Myself and PDA blog and Facebook page "NO" - Rosa Parks Diary of a Painfully Shy Introvert and Facebook Page Sally Cat's PDA Page (Facebook); Sally Cat's PDA blog and Sally [...]

PDA by PDAers

PDA by PDAers: From Anxiety to Avoidance and Masking to Meltdowns This book is a collection of genuine insights and experiences from people living with PDA, adapted from their interactions on a popular online support group. It includes frank discussions of topics relevant to PDA, including work, relationships and managing [...]

Ben’s Story

Years of being misunderstood led to one failed placement after another before Ben was eventually sectioned age 29 and spent 3 years in an ATU. His first supported living placement was too unstructured with serious repercussions for Ben’s health and wellbeing. Under the Care Act 2014, Ben’s family now [...]

Tony’s Story

Tony is 40 and lives in the U.S. He has a diagnosis of ASD with co-morbid Generalized Anxiety Disorder and Complex PTSD. He identifies strongly with PDA and has been reducing demands in his life so that he can lower his anxiety levels. His long-term goal in life is [...]

Mark’s Story

Mark ‘built masks*’ and ‘faked neuro-typical behaviour’ all his life whilst struggling under the surface with social interaction and unable to find a settled home or work life. Mark was diagnosed with autism aged 50 and self-identifies with a PDA profile. But lack of recognition of this more atypical [...]

Julia’s Story

Julia was diagnosed with PDA by Elizabeth Newson aged 12 after her increasingly challenging behaviour resulted in school exclusion and social isolation. Now in her early 30s, Julia recounts the impact PDA (and her co-morbid ADHD) has had from childhood onwards and how increased self-awareness and connecting with other [...]