Adults
Found 15 listings
What is PDA? booklet
This booklet is designed to be an introductory guide to the Pathological Demand Avoidance profile of autism for individuals, families and professionals.
The booklet covers an overview of PDA, how PDA can feel, an insight into what demands are and how they’re avoided, info about identifying PDA, helpful approaches and [...]
National Autistic Society PDA resources
Here are links to the National Autistic Society's PDA resources:
What is pathological demand avoidance (PDA)?
Supporting pupils with a demand avoidant profile
The National Autistic Society provides useful information to help everyone understand anxiety in school and school refusal – though please note that the strategies suggested would [...]
Support for PDA adults
This page signposts some sources of useful information, support and advice for PDA adults and their families.
The PDA Society takes considerable care to check the services that we signpost, however we’re not responsible for the quality, experience or outcomes from third party organisations. We’re currently developing an accreditation process [...]
Workplace adjustments: employers’ guide
Businesses and employers are increasingly recognising the benefits of employing autistic people, but much more still needs to be done. The Chief Executive of the National Autistic Society recently said “most autistic people who want to work aren’t able to work” because conventional roles and workplaces can present many [...]
Tim’s Top Tips: ideas for adults
Tim Collins is an adult who was recently diagnosed with PDA. Along with sharing his story with us (please see his case study) he has kindly created a list of Top Tips designed to help adults navigate their way through life.
Daily life
Keep a notepad and pencil handy at [...]
Self-help, coping strategies and therapies for adult PDAers
Here we have included a downloadable PDF version of the Self-help, coping strategies and therapies for adult PDAers page, found in the Adult Life section.
It includes suggestions for self-help, coping strategies and therapies which were assembled from a variety of first-hand accounts shared by adults, diagnosed or self-identifying as [...]
Adults: PDA & mental health
The following is a summary of Dr Judy Eaton's talk at the PDA Society Conference in Birmingham on 18th April 2018
Judy opened by sayings that people often ask her “what is this PDA? There was never this PDA when we were younger. Where were all these people?”. Her response [...]
Tim’s story
Tim hadn’t heard of PDA until his youngest son was diagnosed with this profile of autism two years ago. During his son’s assessment Tim realised there were parallels with his own life. He was referred to adult mental health services by his GP where he was told that despite [...]
Ben’s Story
Years of being misunderstood led to one failed placement after another before Ben was eventually sectioned age 29 and spent 3 years in an ATU. His first supported living placement was too unstructured with serious repercussions for Ben’s health and wellbeing. Under the Care Act 2014, Ben’s family now [...]
Tony’s Story
Tony is 40 and lives in the U.S. He has a diagnosis of ASD with co-morbid Generalized Anxiety Disorder and Complex PTSD. He identifies strongly with PDA and has been reducing demands in his life so that he can lower his anxiety levels. His long-term goal in life is [...]
Mark’s Story
Mark ‘built masks*’ and ‘faked neuro-typical behaviour’ all his life whilst struggling under the surface with social interaction and unable to find a settled home or work life. Mark was diagnosed with autism aged 50 and self-identifies with a PDA profile. But lack of recognition of this more atypical [...]
Julia’s Story
Julia was diagnosed with PDA by Elizabeth Newson aged 12 after her increasingly challenging behaviour resulted in school exclusion and social isolation. Now in her early 30s, Julia recounts the impact PDA (and her co-morbid ADHD) has had from childhood onwards and how increased self-awareness and connecting with other [...]
Sally’s Story
Sally was diagnosed with autism in her 40s and through her own research self-identified as having a PDA profile. She felt empowered by the self-awareness that her diagnoses enabled and eloquently describes how this has helped transform her life whilst also explaining how PDA impacts her every moment. Sally [...]
Peter’s Story
Peter’s primary school years were a nightmare and his behaviour at home took a toll on his whole family. Lack of support and fighting the authorities added to the burden. Eventually his parents made the heart-breaking decision to request a residential placement for Peter. With experienced support staff who [...]
Riko’s Story
Riko was diagnosed with Asperger’s aged 27, and through her own research realised that PDA was the best fit for her profile. Looking back, Riko realises how much she masked her difficulties and found her own ways to accommodate for them, though she also experienced periods of deep depression [...]