Found 333 listings
PANDA approaches in German
The PDA Society has been contacted by Elli C who has kindly translated our PANDA approaches into German. We’re sharing the translation here in case it helps others.
Please note: the PDA Society is not able to verify the accuracy of translations listed on our website.
Translation date: May 2022
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Information in German
Elli C (german_language_pda_learnings) on Instagram shares information about PDA in German and plans to translate PDA Society resources to share there as well.
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Please note: the PDA Society is not able to verify the accuracy of translations listed on our website.
Sleep Misfits: The reality of Delayed Sleep Phase Syndrome & Non-24
Sleep Misfits is the first book to extensively explore delayed sleep phase syndrome (DSPS) and non-24-hour-sleep-wake disorder (Non-24) through the words of actual experients.
Although circadian sleep disorders have seen an increase in published research and media coverage, they are still little-known and little-understood. There remains massive prejudice and discrimination [...]
A2ndVoice (London)
A social enterprise non for profit organisation supporting the needs of autistic people and their families, raising awareness and understanding from different perspectives, outreaching also to the Africa, Caribbean, Asian and Minority Ethnic Communities (ACAME) and Dual Heritage Communities in tackling the taboos and myths around Autism.
A2ndVoice hosts a [...]
I’m Not Upside Down, I’m Downside Up
Welcome to my downside up life! My name is Ariana and I have something called Pathological Demand Avoidance which is a form of autism. Most people just think I'm naughty and misbehaved, but I want to show you why that's not true by telling you about what my life [...]
Cariad Autism & PDA Hub
Information and support for parents and carers who are caring for an autistic/PDA child or young person. Based in North Wales.
Facebook page
Twitter
Website
cariad.wales72@btinternet.com
What is PDA? booklet in Finnish
The PDA Society has been contacted by PDA Suomi who has kindly translated our What is PDA? booklet text into Finnish. We’re sharing the translated booklet text here in case it helps others.
Please note: the PDA Society is not able to verify the accuracy of translations listed on our [...]
Information sheet for social care professionals
This 2 page resource gives social care professionals an introduction to key information about PDA, including how PDA may present in children and adults, examples of good practice and helpful approaches plus where to find further information.
Published by: PDA Society, March 2022
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What is PDA? booklet in Polish
The PDA Society has been contacted by Pomiędzy PDA who has kindly translated our What is PDA? booklet text into Polish. We’re sharing the translated booklet text here in case it helps others.
Please note: the PDA Society is not able to verify the accuracy of translations listed on our [...]
Keira’s story
Keira is 17 and currently doing very well after a 10 year struggle with an eating disorder and difficulties related to her PDA profile not being understood or supported by health and social care. Her story illustrates the life-changing impact when professionals adapt their practice to be person-centred and [...]
Eating Disorder Support
This page signposts some sources of useful information, support and advice regarding eating disorders.
The PDA Society takes considerable care to check the services that we signpost, however we’re not responsible for the quality, experience or outcomes from third party organisations. We’re currently developing an accreditation process for services and [...]
Introduction to PDA (2021) Hungarian translation
The PDA Society has been contacted by Kontroll-Álom who has kindly translated our Introduction to PDA video transcript into Hungarian, with the help of autism spectrum consultant Ms Ildikó Balázs.
Please note: the PDA Society is not able to verify the accuracy of translations listed on our website.
Translation date: February [...]
PDA Mama Bear (USA)
PDA Mama Bear, Sandra McConnell write blogs, hosts training, and mentors young people to model and demonstrate that there is such a thing as “positive PDA.”
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Identifying & Assessing a PDA profile – Practice Guidance
Practice guidance collating the professional practice and experience of a multidisciplinary group of professionals working in the NHS and private practice.
The goal of this document is to aid assessment of a PDA profile, to distinguish PDA from other presentations of marked demand avoidance, and to signpost appropriate support and [...]
Helping Your Child with PDA Live a Happier Life
Drawing on the author's personal experience of parenting a child with PDA, this insightful and informative guide offers strategies and tips for all aspects of daily life, including sensory issues, education and negotiation.
Full of advice and support, this book is not intended to provide information on how to change [...]
Journeys With PDA (USA)
Journeys with PDA provides consultations, trainings, resources, and support to families and professionals living or working with individuals with a PDA profile.
Journeys with PDA was born out of a desire to spread awareness about a unique profile of autism, Pathological Demand Avoidance. We are both raising sons with autism, [...]
PDA for social care professionals (webinar)
In this webinar about PDA (Pathological Demand Avoidance) for social care professionals, independent social workers Cathie Long, Mary Cartlidge and Rachel Gavin join PDA Society Trustee Vikki Threlfall.
The webinar includes presentations about:
assessing PDA in children and working with families in accordance with relevant guidelines and legal requirements (Mary)
[...]
Extreme Demand Avoidance in Children: Refinement of a Caregiver-Report Measure
Extreme Demand Avoidance in Children with Autism Spectrum Disorder: Refinement of a Caregiver-Report Measure
For anyone involved in either research or in the assessment of neurodevelopmental conditions, this adaptation of the EDA-Q will be of interest. Called the EDA-8, it is a refined and simplified scale that benefits from the [...]
The Adventures of Pickle
To most people, a pebble on the beach is just that – a pebble.
For a little girl with Pathological Demand Avoidance, it’s much more and a very special bond is formed. To help with her anxiety, the little girl chooses Pickle the pebble to accompany her through all that [...]
The Family Experience of PDA
An Illustrated Guide to Pathological Demand Avoidance.
Eliza Fricker gets it. Describing her perfectly imperfect experience of raising a PDA child, with societal judgements and internal pressures, it is easy to feel overwhelmed, resentful and alone. This book's comedic illustrations explain these challenging situations and feelings in a way that [...]
Positively PDA clubhouse community
Clubhouse is a free audio only platform (no video) available on ios and android.
The Positively PDA club currently runs two rooms a week. Our Tuesday Lunch Club is our weekly support room to check in with each other, share the week’s high’s and lows and ask questions. The Thursday [...]
What is PDA? booklet in Russian
The PDA Society has been contacted by a supporter who has kindly translated our What is PDA? booklet into Russian. We’re sharing the translated booklet here in case it helps others.
Please note: the PDA Society is not able to verify the accuracy of translations listed on our website.
Translation date: [...]
Helpful approaches for special occasions
Special occasions, celebrations and holidays can be overwhelming for autistic people, so we've put together some general suggestions of helpful approaches for PDA families & individuals which can also be shared with wider family & friends to help everyone understand what helps.
This one-page information sheet is free to view and [...]
Alternative perspectives on PDA
Alternative perspectives on PDA
The PDA Society’s current position, based on research, clinical evidence and lived experience, is that PDA is best understood as a profile on the autism spectrum.
However it’s important to acknowledge the alternative perspectives on PDA that are currently evident.
These relate to the usefulness of the construct, [...]
Pathological demand avoidance in children and adolescents: A systematic review
Pathological demand avoidance in children and adolescents: A systematic review
There has been a lack of funding of research into PDA to date and so this timely paper is particularly useful for giving an overview of the research history and looking to the future and what is needed.
With any newly [...]
Helpful approaches for parents/carers
This 2 page information sheet provides a summary of PDA helpful approaches for parents and carers.
Autism and the PDA profile are ‘dimensional’ – meaning they vary a lot from one person to another and at different times or with different people – so parents/carers need a ‘toolkit’ of helpful [...]
Individual differences, ADHD, Adult Pathological Demand Avoidance and delinquency
Individual differences, ADHD, Adult Pathological Demand Avoidance and delinquency
In this paper, Egan et al looked at a range of different characteristics of a group of adults to analyse how PDA might fit with other described conditions. They used the EDA-Q developed in their previous work as a self-report tool [...]
Jim’s story
Jim is a 33 year old PDAer and has worked at Waitrose for 7 years. He likes to raise awareness of PDA and share his story so that parents know that things can turn out well for their child despite how challenging circumstances may be along the way. Jim [...]
Strategies and support for school (letter template)
Shared with us by US-based bloggers pdaparents.com, this letter template can be used to share important strategies and support information with school, in addition to the required documents that are part of the IEP process.
It is important to read through and decide which parts apply to your child, and [...]
Dundee & Angus advice & activities groups
Autism/ADHD Advice Group Dundee & Angus Facebook group (includes families with PDA children).
I’ve started this group as I feel that myself and the other members have a lot of experience, knowledge and hints/tips that we can share. It’s also just good to know that there’s someone else who understands [...]