Found 268 listings
Understand Me
Understand Me: An inspiring journey of a boy with PDA
9 year old Spencer recalls his struggles at mainstream school and takes us on a journey of his experiences whilst going through diagnosis and the EHCP process to a successful specialist placement. Spencer’s feelings of isolation and sadness, and his [...]
Pathological Demand Avoidance Explained
Pathological Demand Avoidance Explained Kindle/E-Book Edition
What is PDA? What does it feel like? What does it involve?
PDA stands for 'pathological demand avoidance'. It describes a neurotype (type of brain) which is classed as part of the autism spectrum. There's more to PDA than avoiding things. This book describes what PDA is using simple words [...]
Coronavirus support
We've collated and created specific resources to support the PDA community during the Coronavirus pandemic. They are spread across 4 pages:
Links and tips for the PDA community during the Coronavirus pandemic
Accessible information about coronavirus (social stories etc.)
Information about mental health
UK GOV Guidance
Returning to school advice
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PDA North America
PDA North America was established as a result of the March 2020 Chicago PDA workshop. At this first PDA event in America, there was overwhelming enthusiasm and support for an ongoing effort in the US and Canada by the parents and professionals who attended. Diane Gould hosted the workshop [...]
Do You Know Me?
The sequel to last year’s bestselling Can You See Me? Co-written by autistic twelve-year-old Libby Scott, with diary entries based on her own experiences of autism with a demand avoidant profile. Great for reading with friends and family and engaging a wide audience, this book sees autistic protagonist Tally [...]
Positive About PDA Cardiff
Facebook page for Positive about PDA events held in Cardiff. Theses events will be aimed at professionals and families.
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PDA Suffolk Support
This group is for parents/carers/family of people either diagnosed or suspected of having PDA. Suffolk has been quiet in terms of PDA but it needs a louder voice - let's start by supporting one another here and meeting up to discuss campaigns, strategies and be friends to one another [...]
National Autistic Society PDA resources
Here are links to the National Autistic Society's PDA resources:
What is pathological demand avoidance (PDA)?
Supporting pupils with a demand avoidant profile
The National Autistic Society provides useful information to help everyone understand anxiety in school and school refusal – though please note that the strategies suggested would [...]
Support for PDA adults
This page signposts some sources of useful information, support and advice for PDA adults and their families.
The PDA Society takes considerable care to check the services that we signpost, however we’re not responsible for the quality, experience or outcomes from third party organisations. We’re currently developing an accreditation process [...]
The Spectrum Girl’s Survival Guide
How to Grow Up Awesome and Autistic
"Never be ashamed of being different: it is this difference that makes you extraordinary and unique."
This essential go-to guide gives you all the advice and tools you'll need to help you flourish and achieve what you want in life. From the answers to [...]
PDA tools and resources – tes online
The following PDA-related resources are available to purchase or download for free from www.tes.com ...
Managing Demand Avoidance Toolkit
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The Demand Avoidance Toolkit, is an adapted framework of collaborative approaches used in education to teach pupils with PDA (Pathological Demand Avoidance). This pack works alongside the Zones of Regulation [...]
PDA-related suggestions for healthcare passports
The National Autistic Society has created a health passport template that you can either complete online and print out, or print out and complete by hand, for yourself, your child or someone you care for.
There is also helpful guidance on the National Autistic Society’s website about how to fill [...]
Kirklees PDA Support Group
Please email Aileen.Hosty@southgateschool.co.uk for group information and meet-up details.
Warwickshire PDA Support Group
Please email pda.warwickshire@gmail.com for group information and meet-up details.
Telford PDA Support Group
Please email pda.telford@gmail.com for group information and meet-up details.
Dunstable, Bedfordshire Area Support Group
Please contact Sarah on 07568 341100 for group information and meet-up details.
Kingston Upon Thames Support Group
PDA Support Group for parents/carers of young people with PDA.
Meets: at Express offices, 452 Ewell Road, Surbiton KT6 7EL, 12:30pm - 2pm on the third Monday of the month, term time (please visit website for upcoming dates). Pop in or for more information email info@expresscic.org.uk
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Reading Support Group
Monthly meetings at alternating locations in central Reading and Tilehurst.
Contact: pdagroupreading@gmail.com
Wolverhampton Support Group
Please contact pda.wolverhampton@gmail.com for group info.
PDA Sutton, Surrey Carers Support Group
Facebook group and monthly meet up on a Thursday or Friday for parents/carers. Covering Sutton, Wallington, Carshalton, Banstead, Cheam, Epsom, Ewell, Merton areas.
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Borders Additional Needs Group (BANG)
BANG (Borders Additional Needs Group) is an outreach service for parents, young carers and disabled children with rare, complex and additional needs.
Meetings and activities are for the whole family; children, parents, carers, siblings, and grandparents. A special need has an impact on the whole family and our support, advice and [...]
Italian translations and blog
This blog and YouTube channel includes translations of PDA information into Italian.
Un altro blog sull'autismo?
Ebbene si. Un altro. Un blog di una mamma con un figlio nello spettro autistico.
Ma se non altro, una condizione nuova, non diagnosticata in Italia! Lo scopo di questo blog è portare in italia conoscenza [...]
Articles
The most recent PDA articles published in professional publications and on national support websites.
Providing PDA support - Aileen Hosty - nasen Connect www.nasen.org.uk (shared with kind permission) May 2020
Understanding PDA – Ruth Fidler & Libby Hill - The Link (speech and language magazine for schools) January 2020
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Support for siblings
It can be tricky to balance the needs of individual children within any family, and this can be even trickier in PDA households.
Our Siblings page offers advice around strategies and tips for supporting siblings.
A PDA parent has also written two very helpful documents: a Q&A for Siblings and Personal [...]
PRISM Dlr Ireland
PRISM is a peer led support service for families affected by conditions on the autism spectrum including PDA in Dun Laoghaire Rathdown. PRISM Dlr became a registered charity (Registered Charity No. 20142711) in January 2018.
Services include:
Peer support meetings
Self-care for carers
Specialised talks and workshops
Confidential phone line
Advice and [...]
Helpful approaches infographic: PANDA strategies
This infographic illustrates the key strategies which are helpful in working with and understanding someone with a PDA profile of autism.
Conventional support strategies, including those often recommended for ASD, are often ineffective and counter-productive with a PDA profile of autism.
In place of structure, routine, firm boundaries, praise, rewards/consequences, is [...]
Keys to care
A single page help sheet for supporting and helping someone with a PDA profile. Ideal for those working with individuals whose care-needs have been identified as relating to demand avoidance. Useful as a grab-sheet for members of staff - a regular reminder of what can help.
Also helpful for family [...]
PDA Reference Booklet for Health, Education and Social Care Practitioners
This booklet was initially produced and printed in 2014 as part of our 'Awareness Matters' campaign and revised in 2016.
The booklet will be useful to Health, Education and Social Care Practitioners.
This is a free electronic resource. Distribution is positively encouraged. In addition, the PDA Society can supply hard copies [...]
Practice Guidance for Professionals – Ireland
The 'Mapping Experiences of PDA in Ireland Study', Doyle and Kenny, was published in 2020.
A report describes the research and findings in detail.
In addition, the study resulted in the development of a series of seven practical and appealing advice sheets for professionals and parents. They have been published by PRISM [...]
Pathological Demand Avoidance: summary sheet
A one-page explanation of the PDA profile, produced by the PDA Development Group and published in June 2016. It describes the main features and the key approaches to supporting a PDA person.
The PDA Development Group comprises a group of clinical and professional experts, and includes representation from the NAS [...]