Found 264 listings
PDA tools and resources – tes online
The following PDA-related resources are available to purchase or download for free from www.tes.com ...
Managing Demand Avoidance Toolkit
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The Demand Avoidance Toolkit, is an adapted framework of collaborative approaches used in education to teach pupils with PDA (Pathological Demand Avoidance). This pack works alongside the Zones of Regulation [...]
PDA-related suggestions for healthcare passports
The National Autistic Society has created a hospital passport template that you can download and complete for yourself, your child or someone you care for.
There is also helpful guidance on the National Autistic Society’s website about how to fill in the template.
We've put together some suggestions that may be [...]
Kirklees PDA Support Group
Please email Aileen.Hosty@southgateschool.co.uk for group information and meet-up details.
Warwickshire PDA Support Group
Please email pda.warwickshire@gmail.com for group information and meet-up details.
Telford PDA Support Group
Please email pda.telford@gmail.com for group information and meet-up details.
Dunstable, Bedfordshire Area Support Group
Please contact Sarah on 07568 341100 for group information and meet-up details.
Kingston Upon Thames Support Group
PDA Support Group for parents/carers of young people with PDA.
Meets: at Express offices, 452 Ewell Road, Surbiton KT6 7EL, 12:30pm - 2pm on the third Monday of the month, term time (please visit website for upcoming dates). Pop in or for more information email info@expresscic.org.uk
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Reading Support Group
Monthly meetings at alternating locations in central Reading and Tilehurst.
Contact: pdagroupreading@gmail.com
Wolverhampton Support Group
Please contact pda.wolverhampton@gmail.com for group info.
PDA Sutton, Surrey Carers Support Group
Facebook group and monthly meet up on a Thursday or Friday for parents/carers. Covering Sutton, Wallington, Carshalton, Banstead, Cheam, Epsom, Ewell, Merton areas.
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Borders Additional Needs Group (BANG)
BANG (Borders Additional Needs Group) is an outreach service for parents, young carers and disabled children with rare, complex and additional needs.
Meetings and activities are for the whole family; children, parents, carers, siblings, and grandparents. A special need has an impact on the whole family and our support, advice and [...]
Italian translations and blog
This blog and YouTube channel includes translations of PDA information into Italian.
Un altro blog sull'autismo?
Ebbene si. Un altro. Un blog di una mamma con un figlio nello spettro autistico.
Ma se non altro, una condizione nuova, non diagnosticata in Italia! Lo scopo di questo blog è portare in italia conoscenza [...]
Articles
The most recent PDA articles published in professional publications and on national support websites.
Understanding PDA – Ruth Fidler & Libby Hill - The Link (speech and language magazine for schools) January 2020
PDA: Working with parents and carers - Natalie Menagh - NASEN connect (reproduced with kind permission) [...]
Support for siblings
It can be tricky to balance the needs of individual children within any family, and this can be even trickier in PDA households.
Our Siblings page offers advice around strategies to try to reduce the impact of PDA on siblings and tips for supporting siblings.
A PDA parent has also written [...]
PRISM Dlr Ireland
PRISM is a peer led support service for families affected by conditions on the autism spectrum including PDA in Dun Laoghaire Rathdown. PRISM Dlr became a registered charity (Registered Charity No. 20142711) in January 2018.
Services include:
Peer support meetings
Self-care for carers
Specialised talks and workshops
Confidential phone line
Advice and [...]
Helpful approaches infographic: PANDA strategies
This infographic illustrates the key strategies which are helpful in working with and understanding someone with a PDA profile of autism.
Conventional support strategies, including those often recommended for ASD, are often ineffective and counter-productive with a PDA profile of autism.
In place of structure, routine, firm boundaries, praise, rewards/consequences, is [...]
Keys to care
A single page help sheet for supporting and helping someone with a PDA profile. Ideal for those working with individuals whose care-needs have been identified as relating to demand avoidance. Useful as a grab-sheet for members of staff - a regular reminder of what can help.
Also helpful for family [...]
PDA Reference Booklet for Health, Education and Social Care Practitioners
This booklet was initially produced and printed in 2014 as part of our 'Awareness Matters' campaign and revised in 2016.
The booklet will be useful to Health, Education and Social Care Practitioners.
This is a free electronic resource. Distribution is positively encouraged. In addition, the PDA Society can supply hard copies [...]
Practice Guidance for Professionals – Ireland
The 'Mapping Experiences of PDA in Ireland Study', Doyle and Kenny, was published in 2020.
A report describes the research and findings in detail.
In addition, the study resulted in the development of a series of seven practical and appealing advice sheets for professionals and parents. They have been published by PRISM [...]
Pathological Demand Avoidance: summary sheet
A one-page explanation of the PDA profile, produced by the PDA Development Group and published in June 2016. It describes the main features and the key approaches to supporting a PDA person.
The PDA Development Group comprises a group of clinical and professional experts, and includes representation from the NAS [...]
Good diagnostic assessment – children
This information has been produced by the PDA Development Group, August 2017. The PDA Development Group is an informal group comprised of representatives from the NAS and PDA Society and individual practitioners with an interest in PDA from a range of disciplines (education, paediatrics, psychology, research) working in both [...]
AET National Autism Standards
This extensive paper entitled 'The Distinctive Clinical and Educational Needs of Children with Pathological Demand Avoidance Syndrome: Guidelines for Good Practice' was written by Phil Christie and originally published in the Good Autism Practice Journal. It is reprinted by the Autism Education Trust (AET) to accompany their National Autism [...]
Education Provision and Support – Guidance
Children and Young People with PDA: Guidelines for Educational Provision and Support
This guidance was prepared by the PDA Development Group and published in December 2019. It provides and introduction to the topic, describing key principles and how to put the principles into practice.
The PDA Development Group comprises a group [...]
DHSC statement on PDA
The Department of Health and Social Care (DHSC) does not take a position on matters of clinical debate, but does recognise that there is a valid debate on the PDA profile, and highlights the need for specific support for individuals.
Extract from published ministerial statement “…When assessing how best to [...]
Evidence for use of PDA terminology
Evidence for Professional Consideration of Demand Avoidance in Autism Assessments
The continued debate around the use of PDA as a diagnostic term has led to polarisation amongst professionals, and the potential for friction between families and clinicians.
This document presents some of the evidence, including Government statements, which demonstrate that it [...]
PDA: Why social workers need to know
Pathological demand avoidance: what is it and why do social workers need to know?
Cathleen Long explains how an understanding of this part of the autism spectrum can help support parents.
This article was published in Community Care - a leading online resource for social workers, in May 2019. It describes [...]
Workplace adjustments: employers’ guide
Businesses and employers are increasingly recognising the benefits of employing autistic people, but much more still needs to be done. The Chief Executive of the National Autistic Society recently said “most autistic people who want to work aren’t able to work” because conventional roles and workplaces can present many [...]
Tim’s Top Tips: ideas for adults
Tim Collins is an adult who was recently diagnosed with PDA. Along with sharing his story with us (please see his case study) he has kindly created a list of Top Tips designed to help adults navigate their way through life.
Daily life
Keep a notepad and pencil handy at [...]
Self-help, coping strategies and therapies for adult PDAers
If you wish to read online, you might prefer the article in the Adult Life section of the Society's website. Here we include a downloadable PDF of the same information.
It includes suggestions for self-help, coping strategies and therapies which were assembled from a variety of first-hand accounts shared by adults, [...]
Challenging school exclusions
Children and young people with PDA or other forms of autism, or indeed other special educational needs, can struggle with behaviour which challenges. Our Being Misunderstood survey showed that almost 1 in 10 had experienced permanent exclusion at some stage.
This has been possible because schools have said that the [...]